1. Community
  2. Women's health
  3. Uterine Fibroids

Fibroids online emotional support

Posted , 9 users are following.

ola1991
ola1991

Soooo I was diagnosed with fibroids two months ago. I was quite happy that I had finally been diagnosed after suffering with anaemia and having very painful periods that lasted more than 7 days. I’m currently waiting to have surgery, it’s a very emotional waiting game. I realised that throughout this journey I haven’t spoken to someone that really understands what it feels like to have fibroids. I decided to make this page to talk to others who are going through the same thing. We can support Each other, share tips etc. Support goes a long way 

0 likes, 13 replies

13 Replies

  • ola1991
    ola1991

    Posted

    If you have Instagram add Fibroids_101. Support goes along way. Sometimes you feel like your speaking a foreign language when discussing fibroids with other people. 
  • jennie_98895
    jennie_98895 ola1991

    Posted

    Hello yes I had a fibroid too and they just burned it out of me 2 weeks ago. I was anemia myself which made me to almost faint. The fibroid were a size of an grapefruit. He burned it out of me and removed some Endometriosis off my uterus. That fibroid is a living hell it gave me cramps and pain as well. Hope you get yours out soon. Good luck
    • ola1991
      ola1991 jennie_98895

      Posted

      Did they reccomend this for you or did you make the decision not to have an operation. How do you feel now 

      Also what did you do in managing your iron levels ? 

    • jennie_98895
      jennie_98895 ola1991

      Posted

      He asked me did I want to get rid of the fibroid or leave it in me but I wanted it iut so the turned it out. But still I have so much pain after the surgery and no they did not give me anything for my low iron
  • Guest
    Guest ola1991

    Posted

    Hi ola, I was diagnosed with multiple fibroids last Nov, I tried various medications but eventually listed for hysterectomy. I had the abdominal op 4 weeks ago. They removed 9 fibroids. I am recovering quite well, glad I had it done.
  • may49858
    may49858 ola1991

    Posted

    Hi Ola you are not alone. I had 13 that were removed by abdominal myomectomy in May. I am glad I did. I don't look 6 mths preggie anymore. I am still healing. Just remember ittakes time and its major Surgery. You won't regret it.

  • dm2136
    dm2136 ola1991

    Posted

    Hi Ola, I’m almost 6wks post op from abdominal hysterectomy and recovering well and delighted to be free of those life draining fibroids! I received some really good practical info on here prior to my surgery which really made a big difference to me. Also, the reassurance on here was priceless. I had been blissfully unaware of fibroids until I was in a&e with a very large degenerating one. What I didn’t  realise is how they can drain you prior to treatment so be prepared for that. I was so lethargic and even small tasks felt like such an effort, probably due to the low iron etc. I also learned on here how they can press on nerves etc and cause back/leg pain among other things so all my symptom last started to make sense when I read about others and their experiences. You’re not alone so ask about anything you’re unsure of and eat of luck with your treatment! 

    • dm2136
      dm2136

      Posted

      *best of luck with your treatment! 
  • Koko04
    Koko04 ola1991

    Posted

    Hi Ola, I am in the same boat ass you. Got diagnosed in July was only able to see a consultant last week and now I am waiting to recieve the letter to confirm the surgery date. I live in London and will be doing the operation on the NHS so the wait will be long which is depressing as my symptoms are getting worse. When are you due to have the surgery?
    • joanna81756
      joanna81756 Koko04

      Posted

      Hi, I am also on nhs and from get my diagnosis to operation date was 9 weeks , so don't try to wory how long you wait as nhs is amazing and they look after us ;-) 

    • Koko04
      Koko04 joanna81756

      Posted

      Lucky you! I had to wait 7 weeks just to see the consultant and now waiting to recieve the letter to confirm the operation date. Can't wait for it to be over!

  • rossy79
    rossy79 ola1991

    Posted

    I was diagnosed 2yrs ago of various fibroids, first I try the home remedy, but didn't turn out well, then my Doctor prescribed esmya, with I did 2 sections (6months) which turned my heavy menstruation of 8days to a normal 3days period, two months ago I finally undergo operation, now I've recover my life back, don't you will be fine after ur operation

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.