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Fibromaylgia or not

Posted , 4 users are following.

amybober5982
amybober5982

I have been diagnosed with fibromaylgia for a few months now an is having a hard time excepting it. I'm a health worrier an I always assume the worse an think it's more than what it is. Can anyone with fibro relate to any of these symptoms an if so which ones. I have pain mostly in arms an legs, muscle twitching, lately facial pain, migraines, fatigue, my arms an legs is tired quick after activity, soreness in back of legs when walking, sometimes it feels like my feet an legs get a little numb, an depression. I also have tender spots that hurts when i touch, breast gets really sore at times, i clench so sometime my mouth will be fatigue when chewing. I take gabepentin 300mg but doesn't help. Tryed lyrica an cymballta but made me sick. I will also wear compression socks when legs hurt an it really helps. I would really like to see if any of my symptoms match with your fibro symptoms especially of my arms an legs getting tired with activity.

Thanks so much!

1 like, 7 replies

7 Replies

  • Maggers
    Maggers amybober5982

    Posted

    Hi anybober - welcome to the site and to the club nobody wants to be in. Yes to most of  your symptoms. Arms and legs twitch and ache sometimes stabbing pains.  Epsom salt baths help.  I control my fibro as best  I can with diet, supplements, hypnotherapy, exercise and remembering to use the word "no" when people ask me to do things I know will  either be too much for me or make me suffer the next day. I found no relief with drugs - the side effects were worse than the symptoms.  What you will find that your fibro is exclusive to you and although we share similar symptoms not all will be the same.  You will also learn in time what you can and can't do and you will learn to pace yourself.  There are some lovely folk on here so feel free to ask anything because someone here will know the answer or have suggestions where to find it. Take care and remember be kind to yourself.
  • kaz_40
    kaz_40 amybober5982

    Posted

    Fibro is all about pain you can get it any where in your body.  from arms legs feet hands stabbing pains in the head. painful fingers jaw pain leg stifness migrains fibro fog nausea back pain chest pain troble gripping with your hands boiling hot 1 min freezing cold the next you can also have me with fibro where you are totaly fatiqued most of the time. what symptoms you have described are fibro symptoms their are over 100 symptoms you could get at any given time. Iam unable to take pain meds because of the terrible side affects Ive suffered. so I take ibuprophen and use a hot a water bottle. the hot water bottle sometimes help and ibuprophen helps a little. its a learning curve for us all on finding what helps us and what doesnt 1 thing we all have to do is learn to [ace ourselves. as we cant do what we were once able to do as if we over do things it can make our condition worse and make us quite poorly gentle hugs
  • kaz_40
    kaz_40 amybober5982

    Posted

    depression is also a fibro symptom all us girls try to help support each other so dont ever feel that your alone we are all in this togeather take care gentle hugs
  • TeresaJS
    TeresaJS amybober5982

    Posted

    Hi Amy. Do you sleep well? Teresa.
    • amybober5982
      amybober5982 TeresaJS

      Posted

      I sleep really good for the most part I have always been a tired person but once I get up in the morning I still feel really drained an tired like I only got an hour of sleep.
    • TeresaJS
      TeresaJS amybober5982

      Posted

      You're so lucky!

      Well, according to some authors that's the defining line: if you have all those symptoms but can still sleep then it's not fibromyalgia. It can be thyroid, adrenal or some other metabolic or hormonal dysfuntion. 

      I'll PM you a link so that you can learn and assess that for yourself. 

      Take care. Teresa.

       

  • lisa52101
    lisa52101 amybober5982

    Posted

    Hi amybober,

    im afraid you've joined a club no one wants to be in. That said you'll get lots of support and advice from all of us on here. I think it's safe to say that almost all of the symptoms you've described are typical of fybro, that's if there is any such thing as typical. As you read the other responses you'll notice that some of us will have some or most of your symptoms and others will have another set of symptoms although there will always be a crossover in what we experience.

    Worrying about your health can in fact make some of your symptoms worse, so it's important that you try to relax a little. I know,it's much easier said than done. Hopefully as you get talking on here you'll realise that your not alone with this. We really understand what it's like. You can rant, ask questions and within a short space of time you will find your responding in much the same way as we are.

    it takes time to find out what works for you but take heart that if one person doesn't have an answer, there will be 5more you can suggest something. I hope you find what you read here helpful in some way.

    Take care, gentle hugs.

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