fibromialgia and coping with heat and sweating

Posted , 3 users are following.

i have ordered my cool vest cant wait till it comes hope its all it says it was because i cant do much more of these tempertures ,its killing me i think i will be wearing it in doors as well. at this rate will let you know if it works .i am desperate.to get cool .

apperently we will catch the end of an hurricane so they were saying on the news

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54 Replies

  • Posted

    My head sweats the most, whatever the weather. I have just done the dishes and the sweat poured from my head like a tap!  My hair is saturated during the night too, and again, when I am doing the dishes. Really annoys me! I wash my hair and it feels lovely for about half an hour after it has dried (cant hold the hairdryer so I just put it in plaits and leave it) then the sweating will start and my hair feels horrible again! Hardly worth me washing it, but I cant wash it often anyway cos I struggle getting in and out of the bath and lifting my hands to my head! Hope it works, let me know. The ironic thing with me though is that I can be freezing at times, especially my feet, even when my head is sweating! Lol
    • Posted

      i no what you mean for me its extremes in winter if i am still my feet and hands  become frezzing but the trunk of my body can be hot ,if i move about i get the circaltion moving and i am sweating with the back of my neck becoming wet .

      summer is the worst esp this year , the sweat is just pouring of me dont have to do anything , and the heat in my body is just awful,

      i will let you know if the cooling vest works, [i hope so]

      why dont you try in the mean time a chillow pillow that you feel with water you can put it in the fridge then take it to bed with you ,you supposed to put it in side your pillow case but i hold it to me like most people snuggle a hot water bottle,

      have you tried one of those neck scrafs that have beads in them you soak them in cold water with ice if you have some for a few minutes till the beads swell and take on the water, then you dry of on towel so its not dripping and tye it round your neck as the water evaporates it cools you,they are about £5 on ebay ,

      you can wear them any where and always pop to the loo and refresh them under the cold tap, it might not last as long as it does normal folk mine dosent but it should get you thru the washing up or a meal

      .worth a try.you will sweat more on the head as that is wear your heat escapes from , you can get injections on the nhs for excsive sweating but i shouldnt think they would be suitable for the head area,

      i have also found on ebay , a blue natrual gel its for cooling muscles  but it really makes you shiver so on the days i have had to go out in this heat iv applied it all over it does work . if your interested i will get the name of it and the seller and let you know. i no its a misery but you just have to keep plodding along . i get precious little support or understanding , from my son and husband , and i have no friends here mostly because i cant get out about. i am just glad i can chat on here.

      and hopefully help someone.

    • Posted

      I will look out for those on ebay thanks.

      i know what you mean about support from people. My ppartner was really great for a while. Now he just seems to ignore me and I wonder if its resentment. I sometimes think he thinks I am exaggerating the pain! Blimey for what reason!? I would much rather be out and about enjoying myself! He just cant get his head around it, how something can come on so suddenly. We had bad news at the vets yesterday about my dog and basically we need to have her put to sleep tomorrow or Friday. The stress of that visit I am sure was what caused a new pain that just suddenly started last night in my knee, felt like  a piece of glass was in it, its that sharp, but there is nothing there. He said it looks swollen and I must have bumped it but I know I havent. I am sure you are helping lots of people on here. You seem to know the products to buy etc, so well done! X

    • Posted

      oh my sweet, my husbands the same. oh you, must of banged.

      it . somewhere .

      no the whole street no's when i have banged a part of my body it hurts like hell. i think i would remember. 

      if he does anything ,its iv done the stairs for you iv washed up for etc, when i fell and broke my nose the other year,he said you have caused me a great deal of inconveience now. [really made me feel good] just because he had to ring up work to get a week of , because i had slight concusion and small broken bone in my hand that had to be in a splint.as well as my nose,.being broken.

      I AM SO SORRY to hear about your dog i can feel your pain seriously even the thought of having my dog put down brings me to tears can i ask what it is she has, if its not to painful a question ,

      i know this is going to sound a really silly thing to say,but try not get to stressed up i did when my dad died and i had an awful bout of shingles that lasted months

      i only know about stuff because i am for ever searching for answers

      i wont take meds , because i dont trust doctors, so i have to find other answers. 

      once again i am so very sorry about your dog , god bless her and you. your laugh at me now .because i am crying for a dog i dont even no how crack pot is that.

      i suppose if you love dogs then anydog is like your own.

      esp when a story in the paper yesterday shows you the other side

      of people ,a puppy was tied up in a carry abag and put in a council bin thank god someone found it and its save and well.

      i liked to do the same to that person but i tie the bag really tight.rotten horrid people in this world .

    • Posted

      Yes, there really are some nasty people about. I think I would do time if I saw someone abusing an animal. I wouldnt be able to help myself. I have gotten into trouble before for screaming at someone who I saw hitting their dog and again when I saw someone smacking their child. I had a right go at them in busy birkenhead centre. Got told to mind my own business. I said it is my business! Anyone being abused is everyones business and I will never butt out!  She has a tumor in her mouth and it has suddenly become much worse, bleeding a lot. We got told 3 months ago but she has been happy, enjoying her walks etc when I have been able to get out, until the last few days and last night she was crying. I got up and made a chicken paste butty and put a tramadol in it. It helped her a great deal. Its the only way i can get meds into her, she loves paste butties. Shes lying here with me on my bed now but does not want me to touch her. I only lost my gorgeous kitten 4 weeks ago and he was only 21 months old and the most adorable, loving cat I have ever known! He used to wake me several times a night pushing his little face into mine wanting kisses, purring his little head off. He was the cutest, happiest most loving and lovable cat ever. It was liver failure aapparently but took vet 6 days to find out and he suffered the whole time. It destroyed me and I still cant believe he has gone. Jess, my dog, has been my constant companion for 11 years since I rescued her. I took her absolutely everywhere. We used to have caravan holidays so that we could take her with us. I have walked her all over north wales. She used to love being out with me so much. She has been on the great orme, anglesey, loggerheads, moel famau, countless canal trips. When we found out we booked a canal holiday for a week and she loved it. She just loves being near water and seems to be fascinated with it. It killed me and I went theough a bottle of oramorph in a week but it was worth it. She jumped off the boat to come and do the locks with me each time. I have to ringvet today but I cant bring myself to pick up the phone. I know I have to though, especially after last night and the way she looks today, although she is not crying. Thats the thing-she has not complained at all and still goes crazy every time I come home from the shop, squealing with delight just cos I am back. I am going to miss her so so much and cant bear the thought of her not being here, not greeting me, not forcing me out of bed to walk her. She loved Marvin so much too, my kitten, and I keep telling her she will be with him again. He absolutely adored her and would snuggle into her. At first she didnt really like it, but he was persistent and she soon got to love him. He took to her immediately at 7 weeks old and slept next to her every night after he had had his kisses and cuddles from me. I will only have Milo, my other cat and I am worried he is going to be lonely. He didnt eat for a few days after Marvin went and seemed to be looking out for him, even though we did let him know as the vet said it was definitely the right thing to do. He looked shocked, it was horrible, but I think he thought he was coming back. He used to sit on a little wall just looking around the garden. He is eating ok now but I know he will feel it when Jess goes too. Gosh life is so difficult!
    • Posted

      thanks shazz i am now in floods of tears , i love animals so much i cant bear for them to be in pain or hurt in anyway. i think you might have to get a little mate for your remaining kitten ,because loosing another pal might be to much. cats a very sensitive cretures,

      my brother lives in france and so far each time he lost a dog that he went over with ,his come across another stray to take its place, they went over with two a king charles , and rotweiler both have since passed on ,vets arent as caring over there as they are here, he now has 5 because people just dump them there or have them put down , waynes like me a big softee just cant let that happen ,mind you he does have a large house and a lot of land , he now has a rotweiler, scottie, a hound, yorkie,and a border terrier, and a cat.

      i expect he will attract more his like the pipe piper only with dogs.

      think of the pain shes going to be in sweet heart , and just bite the bullit i know its really hard , and i know that given the choice you would rather find her gone in her sleep in her bed ,rather than have to have her put to sleep,   i will be thinking of you ,god bless ,

       

    • Posted

      Thank you. I am sorry for upsetting you too!

      i keep saying I cant get another pet, as its just too painful going throughh this each time, but if one finds me then I would never turn it away. All of my pets over the years have managed to find me, rescued in one way or another, except poor Marvin who was my kitten-he came from my next door neighbour, probably why he was so happy all the time, he was 7 weeks when he came here, a tiny bundle of love and energy. I feel he may come back to me so I will be looking out for a kitten in need over the next few weeks. Just seemed far too soon for him to leave us.

      good on your brother. I would do exactly the same thing if I had the space. I always say if I won the lottery I would buy land and look after all the unwanted, neglected peta and have a llearning disabilities day centre and mental health drop in and would pay them to help look after the animals, as well as other projects to keep them occupied, growing fruit and veg, making crafts to sell etc. i used to work with learning disabilities and also in mental health and I know how much services are needed here now after so many have been shut down and the need for them to feel helpful etc. well, I am going to see if she wants a walk, if she is up to it

    • Posted

      thanks but theres no need its not your fault that i am over sensistive,

      i always get dogs from rehoming kennals,to .

       iv never found one but if i did and couldnt find its owner , i woould keep it.

      we have my daughters dog at the moment and i am going to get upset when we hand him back in a couple of weeks , we have had him since feb, and although his a bit of an handle full his such a little charector

      i will miss him.

      i said i would take him on if he wouldnt resettle but i am not sure i can as it seems to be affecting my dog ,shes depressed nearly all the time ears down tail down,  and scruff has attacked her a couple of times quite nastley . so not sure what to do .

      i hope you both enjoy your walk, [sorry to ask but is here absolutly nothing they can do for her] i hate to be in your position. try and have a good couple of days .we must be a couple of peas in a pod  i always said that if i won some money that i would collect up all the strays i could find and give them a really nice home and loads of love and cuddles.

      i have Aspergers syndrome so does my son ,and middle brother , its alonley life as people dont like others who are differant.

    • Posted

      No, there is nothing they can do. We had hoped we could keep it under control, but now it is starting to consume her mouth and her muscle in her head has collapsed. Vet wanted to do it yesterday as her mouth started bleeding dreadfully as soon as she touched it! The tumor has become huge in just a few days, we coouldnt even see it the last time we tried to give her antibiotics through a syringe. It looks awful now and when it starts bleeding big clumps fall out and vet said she will be swallowing all that blood now. We had a nice slow walk and sat on a bench near the marsh here but when we got up to go again, she wouldnt move for ages. I nearly had to come back for the car. She hasnt eaten at all today so I cant get her pain relief inside her. The tumor will be making it very uncomfortable to eat.

      i know people with asperges and lots of people with mental health problems and I know the prejudice that a lot if ignorant people have. They're the ones with the problem though, not you, so dont let that get you down. I do not like ignorant people who judge without even knowing someone, really annoys me. I have to take Jess to see my ex soon so that he can say goodbye. We visited my parents last night. Seeing her sat in the grass enjoying the sun earlier on our walk just broke my heart and I couldn't help crying for the duration all the way back.

      going to try to get her to eat again now. Take care x

    • Posted

      shes had a good life with you  ,you have given her fun and happy times

      its her time to go in piece and with love , give her a kiss from me to ,

      i am sorry i must sound like a right nutter, but i cant bare it  the pain of saying good bye, the pain you must be in , as well as her.

      even when my sisterinlaws dog died i cried buckets i wrote him a poem and sent it to her with a plac for his grave that she could put his photo in

      .

      i suppose when you are treated like a reject in socity and i have trust me and now  i am watching my son being treated the same way you feel for others in any kind of pain. proberly more so than normal people.

      please dont think that i am being cruel when i say this but i hope you have alovely ev ening together and  tonight  she goes in her sleep so that you dont have to do that painful thing even though its best for her . rather than sufering

      .you take care . and  i know either way its going to be  a loving release. for her. shes had some kinda of life. because she has been some kinda of dog. god bless x

    • Posted

      Thank you so much and no I don't think you are being cruel at all. It would be so much better if she went peacefully in her sleep tonight and I am praying for the same thing. I don't want to be the one to do this, the thought is tearing me apart.

      its awful that you have been treated like that and it must be dreadful watching your poor son going through it too! My son drives me mad at times. He can be very selfish etc but I cry for him if he gets upset for any reason and my daughter too. All we want is to see them happy isn't it?

      well Jess has eaten a bit this evening and she enjoyed her visit to my ex who I am still good friends with. She wandered around the pub beer garden saying hello to everyone as she always does, so gently. Her tail was wagging like mad when she saw my ex too. It just all seems very confusing right now. I still havent phoned the vet, but i suppose I must tomorrow.

      thank you for all of your lovely words of support xx

    • Posted

      i wil say a pray for jess as well , that she will go in her sleep peacefully.

      i dont believe in god like most people,but i believe in a higher being and the love , wonder and power of the universe.

      i am glad jess had a good visit ,

      god bless you both.x

    • Posted

      I know how bad sweating can be on one. Shopping for groceries is the worse time of all. I will be dripping sweat every where. This is usually at the check out and is most embarassing, People have thought I was having a heart attack. I now carry a towel with me at all times and wipes, Any info on products to help reduce sweating would be appreciated,  After being soaked I will get chilled from the wet hair. I, too lack support and have become isolated. When you don't look sick people assume you are either exagerating or attention seeking, No one knows the pain we suffer.
    • Posted

      So sorry about your dog. They are family and putting them to sleep is a hard decission to make. I've had many pets over the years and had to make that choice a few times. It's never easy to do even knowing it's to end their suffering. One should never feel bad for caring for  the welfare of children or animals. The world needs more concerned people and less critizing, 
    • Posted

      try a neck scarf that you soak in cold water or icey if you have it till the tiny beads swell , then dry of on atowel so it dosent drip wrapp round like an ordinary scraf  should help you get your shopping done , and if like me it wares of quicker than stated go to the toilets and resoak before you start shopping all depends on how long it is to the shops,

      they cost about £5 from ebay and there are a few english sellers but becareful alot are from japan, iv just ordered another . i can give you the sellers details if interested.

      if thats not enough buy a cool vest ,iits what MS sufferers use.

      but designed for out door sports man.and manual workers.

      theres several types, ones that work like the scraf but i dont fancy damp on my back,thru evaperation .

       or the most popular type is a waist coat type with lots of pockets that you put little blue ice packs in after freezing that should keep you cool while out an about.hard to find and not cheap i ordered mine from a german ebay seller

      , but there are some on AMAZON and they also sell on line in sport and moter cycle shops .but its a nightmare searching ,because so many are from the usa , and the one english one i found wanted all your details so they could just bombard you with emails , so i brought from germany .proberly be here sooner than if i brought from the uk any way.

      hope iv been of some help. anything is worth a try.

    • Posted

      Thank you, its very hard to make the call right now, as she is still wagging her tail and eating! I am so so torn! I am gonna look into those items Tina suggests too, the neck scarf definitely appeals to me.
    • Posted

      Well she is still very much here and looks even brighter today than yesterday. How can I ring them while she is still wagging her tail and wanting to eat. It all makes no sense x
    • Posted

      well sweetie as long as she can take stuff for the pain and seems ok in her self as much as she can do, hold of.

      you will know when, but i am still hoping for you both that she just goes in her sleep.

      remember sometimes people and animals suddenly improve just before its there time .

      my nan did bright as a button she was sitting up in bed in the hospital , everyone thinking she would be fine, the next day she was gone. just like that

      .  go with your instincts we all have them if it dosent feel like the right time then wait, worst comes to the worst the vet will make a home visit even at night, so hold back and do what you think is right. i lite a candle for her last night and asked the universe to take jess quitley in her sleep when it was her time. thinking of you both .take care x and one for jess X

    • Posted

      Thank you Tina. Yes I realise they usually improve just before leaving us and I would prefer, obviously, that she went peacefully in her sleep, we spoke to vet and explained our dilemma and said we just cant do it while she is still looking so content and the minute I feel she is starting to suffer I will act accordingly. I too will speak to the angels and thank you so much for your caring, you realky are a caring lady xx
    • Posted

      the other product iv mentioned loads is nano GOLD , you take it daily it dosent interfere with other meds, for 500mls its £18.50 plus p&p of £2.90

      from ebay seller

      you can buy a smaller bottle 200ml or a sample bottle but its something you wont notice its working till you have been taking it for a couple of weeks ,

      so your best of going for the 500ml you should feel the differance after the bottle is compleated, theres also info on both nanno gold and silver on this page just scrhool down.

       

    • Posted

      thank you for reply i think your so right  , do what you feel is right.

      i to shall ask the angels to rock her to sleep when its time.

      i am very much a believer in angels and what you put out you get back, my friend and my tarot reader says , that i am what they call a SENSISTIVE.

      i feel very deply other peoples saddness and while that is very hard at times ,being a sensistive has kept me safe as well

       i know when i am around bad people i sense it.  unfortuntly it makes for people thinking  that you are a bit weird ,  i told my friend that the man she was seeing was dangerous but she wouldnt have it , 

      some months later he had her hanging by her feet over a railway bridge, luckly the guy she is now with. was passing by after late shift, and came to her rescue. it can be a curse to care and feel to deeply , but i rather that then not care about anything

    • Posted

      You and I have a lot in common. I am actually a tarot reader too and get a lot of comfort from my cards. I have many different sets of tarot, oracle and angel cards and often speak to angels. I feel their presence.  I had a similar experience with one of my friends, sensing the guy she was seeing was evil. It became very apparent to her very soon afterwards. I, too, feel others' sadness and pain and it is very hard to deal with. This is why I dont like seeing the news and never read newspapers as it just distresses me too much. My partner, though, loves having the news on. Sometimes though, if he realises it is distressing me, he will go into the conservatory and just listen to it on the radio.

      yes, it can be a curse sometimes knowing when people are not nice and with there being so many around, it sometimes feels like we are very much in the minority. I used to read tarot cards for people in work and I found out a lot more about them than they were happy with! Lol

      thanks again for your caring and support and I do hope you are feeling well at the moment xx

    • Posted

      well there you go their must be something in it because we seem to have formed a link , my reader is a lady called spirt name lainy , real name elaine. i found her oringaly thru ebay , i no it sounds odd ,but there was lots on at the time, and i just kept searching till i made a connection and lainy was the one,

      not supposed to be allowed any more on ebay.

      iv been having readings with her for 3yrs we have a connection regarding our mams  who were the worst , didnt show any interest in us so she knew how i felt, and i knew how she felt,

      we were both close to our grandparents and missed them terriabley

      lainy had two sisters , called karen and deborah there  my middle names,

      . theres loads more connections with us plus shes been so right many times , she even knew before steves daughterinlaw knew that she was pregnant ,how about that,

      she has predicted a new man in my life soon in the futrue ,whos going to make me happy, because all i have ever wanted is to be is loved and wanted something my parents never made me feel thank god for my lovely ,grandparents.

       steve dosent either its not his fault just the way his made , his not  a bad man dosent beat me or anything we just dont connect .

      i even said to lainy your making this new man up ,just to keep me sane ,

      she said nope clear as abell, his waiting for you, with the same interets and belives

      , she, said that like you shes had people ask in desperate sitiations is there anyone new coming into my life and she sometimes has to say no, but if there in any danger she always gives them advice.to keep them safe but  she never lies ,

      so fingers cross my white knight will appear. i dont watch tv anymore we removed the airel ,but before that i to never watched the news and never read newspapers,  i dont watch any horror films or supernatrual stuff either it messes with my head and i constantly replay the it in my head ,

      I WISH YOU AND JESS A PEACEFUL NIGHT . X.

      and a big one for jess X and hug to. candle ready to be lit tonight .for jess.

    • Posted

      Thank you so much! It is very much appreciated! Jess has eaten well today and is sitting here with me on my bed seeming very happy. She had lots of excited squeals for me when I got back from the doctors but didnt actually move from the couch. This is the first time she hasn't come running to me. She did talk to me lots though andwas made ip that I was home. She is just such a lovely gentle dog. We know its still only days, but if she can enjoy the sun and a few treats for a few more days then why not?!

      well I do hope you find someone that you have a good connection with. It makes all the difference and you deserve it! 

      Thanks again and goodnight to you xx

    • Posted

      good night to you both. may the angels watch over both of you while you sleep;x and one for jessX
    • Posted

      iv just solved the problem of the neck scraf , im buying another ,and a small insulted sandwhich bag ,into which i shall put an ice pack, so you can put one scraf on straight from the fridge and the other straight from fridge to the sandwiche bag ,

      so you can swop them over when you get to the shop and put the other one in while your shopping, so when you come back and need to drive home ,you can take that one out and use another cool one , proberly help on  a trip out , as well as long as you keep the bag sealed the ice pack shoul stay semi frozen .keeping the scrafs cool.

      if you order one dont be put of thinking theres hardly any beads init i thought mine was faulty but it swelled up as it should have. when i put it in water.

    • Posted

      Lol you think of everything! Soundis like a great idea! I will definitely lok at those. Looks like a day in and lying on my bed for me today. Hips are just dreadful, shoulders and elbows not much better, so hopefully I will find something to watch on tv. I overdid it yesterday by driving and going out for tea! Lol hope you are having a good day? X
    • Posted

      well my generation was taught to use our imangination more in play, so i think alot , and work out problems sometimes quite simply ,

      my hips are painful at the mo because iv been housebound with the heat so they have seized up a bit from sitting to much, my elbows are always tender, and neck tight, but bearable.

      hows jess today, . i fell asleep last night after a visit to my daughters with her dog, sad or what, i woke early hours to a reall down pour, went in kitchen for a cuppa , and there sat a toad , had to look twice ,had to get steve to get him out because they scare me,

      and i was afraid if the dogs gaught him ,because although they scare me ,i still wouldnt like to see it hurt. but it was funny ,this toad just sat there looking at me,

      steve shooed it out , and it just sat under our canopy . ahhhhhhh

    • Posted

      Ha ha I had a frog in my conservatory the other night too, I suppose it is to be expected here though as there are hundreds around the garden and I always leave the door open. Once i put my foot in my show only to find one in there! Once I actually part sat on one on the loo! Lol 

      jess seems ok in herself, talking to me, sitting in the sun etc. but has not eaten yet today. We went out for tea lasy night and I got sausages just so she could have them! She did enjoy them, but not today it seems x

    • Posted

      thats one way to cure constapation for me put  a toad on the toilet seat.

      hahah

      arhhh poor jess she must be getting so tired now bless her she knows shes loved by you and dosent want to leave you , bless her . hope she picks up later ,  i don tknow what else to say . except your both in my thoughts.

    • Posted

      Thank you Tina, you have been so kind! 

      Yes it must have been near the loo seat and as I sat down felt something slimey on my bum! Lol I jumped up quick and the poor thing splashed into the toilet so I had to fish it out quick and take it to the garden. Luckily it seemed unhurt, was a hell of a shock though! Lol

    • Posted

      i bet it was , id had a heart attack. i am jsut waiting on sausage casserol for tea bet jess would like that,

      i dont do it from scratch anymore i dont like cooking, to be honest .i love baking because its creative, but cooking i dont enjoy , unless i am experementing, i  have war time cook books and i love trying them out when i am up to it.

      i love my slow cooker i just bang it all in and switch it on , bang  some spuds in my electtric steamer and iv got a meal with out chopping .and hassel. i still have fresh brocli and cauliflower and cabbage but i get tehm allready prepaird . hope you and jess have a nice evening .

      i will say another pray for jess.tonight. 

       

    • Posted

      Thank you! I hope you have a good evening too!

      sounds nice. I used to love cooking too, I would be happy spending hours in the kitchen before it all got so bad x

    • Posted

      Hi Tina she seems just the same today, no sign of the tumor bleeding which is good, she hasnt got up to move yet, but neither have I so thats not unusual. How are you today? X
    • Posted

      had a bad night iv been eating bad due to the heat and consummed to much salt , which i belive caused inflamation around an old injury site around the bottom of my ribs, which iv had for days really tender,

      so i fell asleep in chair woke up feeling sick and the pain worse, then was sick ,pain seems to be greatly reduced to day.

      but this is the 2nd time in 3months , i do find it hard in the hot weather because i am so restricted with foods all the great summer foods that i love and want to consume and will be light in the heat i cant eat .i dont want stew and dumplings in summer so i eat tinned meat and cheese alot which is really bad for anyone.

      it is worrring but the inflammed tender feeling around the bottom of my ribs has almost gone so ia m sure its linked to the fibro ,but this bloody condition has so many symptoms its a nightmare . to know if its something eles.i am glad that jess had a good night and that she seems pretty much the same today. she certainly is a fighter . bless her. try and have a good day.

    • Posted

      I am sorry you have been suffering. I had fish and chips last night and paid for it, I think the fat is so unagreeable to me, I felt sick all night till I eventually fell asleep. Its gone now though.

      jess is certainly a fighter. She does not want to give in to this at all, its obvious. 

      Hope you have a good day too, thanks x

    • Posted

      she knows shes needed and dosent want to leave you i think

      but as long as shes not in pain theres not a problem and you hang on to each other as long as you can.every day is a memory

       if you had listened to the vet she wouldnt be here now , every day is precious .

      did you ever read a true life story called tuesdays with morrie ,its a film as well .

      brillant ,sad but uplifting book , about an old man dying and a young man through his weekly visits to him, learning how to live and what really is important.  in life.

      i read it in a day couldnt put it down.

      i also loved a film called first do no harm ,about a mothers fight for her sick child, true story. happy outcome thanks to her fight.

    • Posted

      Yes, thats true, we have had another 5 days already with her and she still looks hapoy and comfortable. 

      I havent read those books, I tend to avoid sad stories to be honest but the first one sounds interesting indeed, I may look that up. Its quite amazing how so many people never get what is really important in life. I first read about Buddhism about 13 years ago and it completely changed my outlook and in fact my whole life. I am not materialistic and am never happier than when walking or sitting in a beautiful garden. I cant wait yo go to my next Nt garden. Bodnant is my favourite, but chirk castle garden is so beautiful, just on a much much smaller scale. If it was nearer I would visit probably 4 times a week! Lol

    • Posted

      i didnt find either films or books sad , more inspiring that you can take a step back see whats important

      , and the same can be said for first do no harm , its inspiring that she fought for the right to have her son treated by a special diet  at a epelaspsey ,treatment clinic.rather then being wierd up in hospital being pumbed full of drugs that made martters worse

        its a high protein diet ,which in may cases helps suffers to lead a near normal life , they even used some reall life sufferes in the film as clinic staff, it was a very positive film  , another film about the after life which i thought was so positive and interesting was is called What Dreams May Come Robbie Williams .

      i have never read anything on buddisuhm iv started them but found them abit to complex , maybe i am just thick. i believe tina turner become a buddist and it changed her life  ,

       i hope you have a lovely day together , the rain is pooring down here ever since about 10am we have thunder and lighting as well

    • Posted

      We just have rain and really strong wind here now. You can get some really simple books on Buddhism, I have a few, look on amazon, its great for books and you can normally find some good ones where you just pay 1p plus postage. Buddhism is basically about acceptance and appreciation of life in all forms, not trying to be better by trying to keep up with other people but by being happy with your lot, accepting it, and being a better person by helping others, being happy and content with things around you, not trying to achieve things that are not beneficial to you as a person etc. it really makes you feel that you can be happy. I used to feel that I was so different from other people and that I should be trying harder. But after reading these books, I felt content with what I had and realised I could be myself and not give a sh1t about what other people thought. I wear what I want, not what everyone else wears, things I like, colourful, bohemian and not what the latest fashions are and I dont care. My ex used to look at me as if " what are you wearing"! And would try to put me off certain things, but I thought "sod you, I will dress for me, not you! " and people often compliment me on my dresses!  He never really got me though, one of the reasons we split up. You need to be with the right person in life, someone who gets you and appreciates you for who you are and doesnt try to change you x
    • Posted

      your so right iv always been out of step all my  life a square peg every one tried to bash into a round hole.

      now i just dont care like you i wear what i want ,not fashion , if i had a figure i would live in vintage clothing from the 1930s such fantastic stuff

      alot of

      people today think gothic is new and hippies were new they were far from it , the freedom movement started i think in the 1930s mostly for the rich i admit but they wore long dresses and robes and ties around they heads and spoke of phlosphey and a new way of life.

      and we all know goths arent new.

      i hate fashion and especialy that essex look , i just do my own thing ware what i want

      , i tend to stay in black thou because i am fat but i add colour i like colour and i add trims and sew on appliques .i like studs to

      .my hand s have been to bad for sewing this year but shall start again when the weather cools

      , i cant ware heals now so i always go for studs on my boots and buy clip on bling for my shoes. i keep all trimings and buttons even black leather studded tassles from a handbag ,old jewarly anything that i might be able to add to something to make it differant to anyones eles . if i am going to be classed as afreak due to my aspergers might aswell play up to it. i say. mind you at 54 iv had many arguments with women who say i am not that old , i think they need there eyes looking at myself,

      but its nice to get a compliment.

    • Posted

      Ha ha, just be yourself and sod everyone else! I am overweight too and feel more comfy in dresses than I could in jeans, my legs are still slim though so jeans that fit my waist just look odd on my legs, much more comfy in dresses  x
    • Posted

      i like my dresses for the same reason and i bless the person who invented lycra , i think back in the late 50s.

      iv given up on jeans I  carry most O f my weight at the front,so i look pregnant , its a horrid reflection, really upsets me

      , because i am not lazy like your self i would walk for miles and be on the go althe time if my body let me, so i get up set with the frustration .

      i try to think well sod them but inside it really hurts, thats another reason i dont want to go out, because i am embarresed.my legS arent slim either so dosent really help , i ware a size 20/22 and all my life iv been what i call normal 12/14 then 14/16 after my kids , now in my mind i look hiddius . i try really hard not to let people get to me ,but words do hurt .

      no matter what the rhyme say's .

      i will look for some basic books on buddisum .have you any titles you can suggest.

       have you ever seen the film TRULY MADLY DEEPLY i love that film must be my faverite film its out of print now i had it once but sold it by mistake with some other dvds i was selling,

      it stars julliet stevenson , along the lines of ghost but far superior, its so funny and touching . and another of my favs is city of angels nicolas cage. oh well not much eles to say , X AND A HUG FOR JESS .good night god bless to you both.

    • Posted

      I have allmy weight at the front too and I get embarrassed at times but most of the time I just dont care what anyone thinks. I have battled with a belly for many years! Lol

      i will have a look through my collection, when I can find them, my place is such a mess at the moment! And I will try to recommend some. I know there was one I bought that was such an easy read. I have books by the Dalai Llama too.

      i havent seen that film,maybe its available second hand on amazon? My favourite film is 'as good as it gets' with jack nicholson. I lost the video (yes I still have a front loading video player! Lol) so got it really cheap on amazon or ebay, for 99p I think.

      i love Nicholas Cage too! 

      Thank you I will give Jess a big hug, she has eaten well today! 

      Goodnight x

    • Posted

      oh i am really pleased , see what love can do . you obviously love each other very much i am so pleased you didnt listen to the vet. so much extra precious time you'v had together , i hope she has another good day.

      you sound a very confidant lady thats one thing i lack ,i will stand up for anyone eles rights , i think thats courage not confidance .i dont like bullies and have always fought back for others but i dont find it as easy to do for myself, i w as bullied thro juniors and 3 yrs of seniors untill i snapped , then they left me alone , it was an all girl seniors so you can imagine.

      with all this new way of dealing with bullies it still goes on in schools my pet shop lady has a daughter whos 15 and because she is a book worm she gets bullied some awful ,

      but she just sticks her heels in and studies more to annoy them , shes going somewhere . and gues what when i listened to her mum describing her ,i said, bet shes a capricorn and she was only just thou the 19 jan. so am i .

      i got no respite from it because i got it at home as well ,plus i couldnt tell my parents because my mum would have been disinterested and my dad would have made my life even more of an hell and i proberly would have had a smack for being a whimp so i just kept it to myself ,at juniors i faked 7 weeks of with mystery stomach pains thou because i was so scared .

      when the doc said if it was no better by next week i was to be sent to hospital i gt better, and went back to the bullies. all i wanted was to be left alone.

    • Posted

      Blimey Tina you have had such a dreadful life, but there is definitely a lot of strength there. All you need to do now is find the strength to deal with your home situation so that you can find some real happiness, you deserve it! There are meet up groups all over and I think it would be great for you to join one. I joined one here about 18 months ago and it was a godsend. I went to quizzes, meals out, walks etc and got to know some lively people. It opens up a whole new life for you and I enjoyed it so so much and I really feel you would really benefit from it. You will meet some likeminded people and make new connections, this could even be how that special person enters your life! Just look up 'meet up' and you will see groups near you. My local ones are in Wirral, Chester and Liverpool and you can join as many as you like. We have all kinds going on and i could have gone out every day if I could have made it - bowling, walking, quizzing, (even though I wasnt that good there were teams of 6 so it was just a social night and a good laugh), crafts, drinks, meals, weekends away, cinema, theatre, just all kinds! It would be so good for you, I know you would love it! The first time I went on my own I was a little nervous and I took a friend the next time but everyone was so friendly and they all went on their own too, I miss those days! X
    • Posted

      That should say lovely people not lively, although some of them were very lively! Lol 
    • Posted

      yes iv tried finding those meet up groups ,iv know one  to go with so iv never had a go . plus i dont drive so its hard to get to anything, iv got a couple of spiritual groups near by that i am considering, but i am not confidant .about facing people.

      iv joined other groups and peopel just dont get how you cant do somethings i dont want to keep explaining so i say nothing and end up suffering, i slipped on a dog biscuit this morning now i keep on getting sudden stabbing pains across my back , how perfected is that.

      i am just a complete and utter mess, emotionly which impacts on my well being.in the physical sense. will try and have a good day ,

      you and jess make some more memories.

    • Posted

      hi shazz did you know that the lovely nicolas cage, had two wives die on him a third leave him , and he has tried to take his own life twice,

      thats proberly why we are drawn to him we can feel his pain, you can see it in his face.

      i think its lovely that you still have a vidio recorder my old man is always updating tvs and stuff i just learn it with my aspergers and brain fog then its time for something else .drives me mad

      i had a black and white tv portable for years when i was a single parent as that was all i could afford never bothered me.

      i hate the way they tell us to recycle are rubbish ,then try and sell us  a new tv every 5 mins, and i wish they wuld bring back the good old fashioned milkman with glass bottles that were reused,instead of horrid plastic things.

      that go to landfill. this world will never make anysense to me.

    • Posted

      You are right, it doesnt make sense, but not much does these days. I didnt know that about nicholas cage!

      i hope you are feeling a little better by now. I am exhausted as I have been out all afternoon trying to sort out a car. My old one was just about to pack in, so we needed one desperately. I live out in the sticks and getting anywhere is very difficult without a car. So we want to take jess to one of her favourite places tomorrow while we still can!

      hope you have a good evening x

    • Posted

      oh thats a lovely idea take lots of pics  ,

      she really is a very lucky dog,bless her .

      in the respect that she is so very much loved.

      it sounds like you live out some where like the tv serise VERA is filmed

      i love that show shes so like me , wants to be long but dosent quite get it.and the senery is beautiful shall be serise 4 this week because i couldnt watch it when it was on because of the add breaks, i like to really get into dramas, foyles war is one of my faverites any thing where the acting is superb. .and where actors look like people you could meet on the street. i loved bletchly circle , and call the mid wife to .

      i will have to get both on dvd now ,as we have cut the airel so we cant get live tv. and dont want it.

      i will pray for jess again tonight , feels like our prays are being heard

      and i am so pleased that you both get this extra time, its so precious .

      a big X FOR JESS AND A HUG. I HOPE U BOTH HAVE A PEACEFUL NIGHT AND A WONDERFUL DAY TOMORROW.X

       

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