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Fibromyalgia!!!!

Posted , 6 users are following.

charley123
charley123

i was fiagronsed with fibromyalgia around 3 weeks ago, although ive struggled with the symptoms for around 6 months, i know that isn't long but for me it feels like a lifetime, ive had to be lifted out of bed, i can no longer do PE at school, im having to use the lift for most days and its just been very hard for me, ive tried to get the doctors to give me something other than painkillers, anti depressants and sleeping tablets but its been no use. I did use crutches against my doctors advice and it was the best week ive had in the last few months, i didn't have many problems, but ive been told that i'd soon become dependant on them but i reall dont know what else would help, does anyone else?????  Any help would be much appreciatedx

Charley x

2 likes, 12 replies

12 Replies

  • anne90395
    anne90395 charley123

    Posted

    Hello Charley,

    So sorry to hear of your problems. You don't give your age, but guess you arequite young. My heart goes out to you, especially if you are dealing with this at a young age. I can only share my own experience. After 2 years of symptoms I was diagnosed. Now on 50mg Amitriptylene, that is all. Helps with the sleep, whichis so important, not so much the pain. I deal with that by pacing myself.Hope this helps a little bit.!

    Take care, Anne

    • charley123
      charley123 anne90395

      Posted

      Hi anne,

      Thankyou for your reply, i am quite young, still in school, i also a on Amytriptylene but 10mg, it does the same for me as it does you, i would definatly advise investing in a TENS machine, it helps me more than pain killers.

      Everything has been much appretiated, Charleyx

  • christine26761
    christine26761 charley123

    Posted

    Hiya Charlie, I have had this condition for over 17 years now, it took years to diagnose so I probably had it for years befire that, I also have other conditions too that so often go with it! I am only on 25mg of Amitriptylene at night it is an antidepressant-wasn't prescribed as that for me, I don't take it for that..., but it was found to be xcellabt for stopping the pain from carrying over (like a boat at the nerve endings) to more nerves..it gives me a great nights sleep and getting enough sleep is paramount to dealing with pain...be blessed..happy 2015
    • charley123
      charley123 christine26761

      Posted

      Hi Christine,

      i too am on Amitriptylene but havent found it as helpful unfortunatly

      Happy 2015 Charleyx

    • christine26761
      christine26761 charley123

      Posted

      I take mine at 8.30pm every night..it helps me sleep incredibly, which in turn enables me to handle the pain..do hope the docs get your dosage sorted..tooo much makes you too zombie, too little doesn't do to much at all...happy 2015  to you too, really hope things are sorted out for you soon,,unfortunately we are all different something's work for some and not for  others   And yes...it dies take time..it took me nearly a year to get to where I am...it's manageable please be encouraged..
    • charley123
      charley123 christine26761

      Posted

      Thankyou, at the moment i just feel like giving up, but its nice to hear it gets better, i am on a very low dose so maybe i should higher it a little bit thankyou, its much appretiated xxxxxx
  • cristian46692
    cristian46692 charley123

    Posted

    Hey Carley123 My problem started like more than 3 months know,I have seen 4 Doctors and after (1) x-ray , ultrasound,(2 )MRI none one knew what I have, finally I decided to go for acupuncture and the only way that my insure would cover it it have to be done by an MD ,so I did an appointment ,I was told that I have carpal tunnel ,I really dont think I have Carpal tunnel because the pain is too strong that I can't even handle it, I got an injection in my hand today and I have to wear an orthopedic wrist,but it hurts more with it, I been smoking some marijuana to help to sleep and with the pain because I have not been prescribed with the right medicine ,nothing help ,I can't wait to go back to my regular happy life ,because its been hell for me the past couple months
  • hope4cure
    hope4cure charley123

    Posted

    Hi Charley,

    I would get. Second opinion. See if u can see a rheumy. There r DEMARDS. And bio drugs to help.

    this sounds more to me like arthritis. I have had juvinile arthritis.  

    I hav hav had FM sice my early 40's when it was just all in UR head pain because at that time there really wasn't much to help. 

    No there are many new drugs on the market . I would strongly suggest that u see a rheumatologist . They r better informed about FM and can offer many new drugs to help stop the pain. Not pain meds these r drugs that can give u back mobility and give u back UR life....

    Kind Regards

    HOPE

    this

     

    • charley123
      charley123 hope4cure

      Posted

      Hi Hope,

      we've been trying for god knos how long to see a rheumotologist, eventually my doctor told me my pain was just in my head so reffered me to CAMS and told me that until i had seen them i wouldnt be seeing a rhemtologist, this was back in september, i still havent had an appointment and have been told that the waiting list for an apppointment is around a year, so in around august i should get my appointment and then after that they may let me see a rhemotologist, we have seen 2 other doctors which was how i was diagnosed with Fibromyalgia but still cant see a rhemotologist until i get my appointment with CAMS

      Thankyou for your help, its much appretiated

      Charley x

    • tiswas24537
      tiswas24537 charley123

      Posted

      if its fibro/chronic fatigue it is in your head . its your amygdala gland misfiring . and unless you treat the cause your constantly get symptoms and as time goes on your get more

      . i started with aches and pains 10yrs ago ,  and since then iv been thru a whole host of symptoms , lots have been reduced with the help of relaxtation cds and supplements

      and acupunture , but now i am suffering from the worst crushing fatigue iv ever had i full asleep standing up in the shower even while talking on the phone , so in 10yrs no its got worse not better . and as doctors say theres no cure your just have to live with it. , i hope to prove them wrong by the 27th of june .

    • charley123
      charley123 tiswas24537

      Posted

      I'm hoping to get acupuncture but I'm not sure what else there is really, when I said the doctor said it was all in my head they meant it like the pain didn't exist, like I was just making it up, I'm glad that now I can prove them wrong x
    • tiswas24537
      tiswas24537 charley123

      Posted

      yes i understand that hun . i was just trying to be funny . it is in the head the docs are right , for once but not in the way they mean. 

      its a miss firing gland in the brain .that keeps sending out pain signals and other symptoms .

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