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Fibromyalgia...

Posted , 5 users are following.

silversioux
silversioux

Has anyone else on here been diagnosed with Fibromyalgia... only diagnosed last year but have apparently had it for quite a few years. They only diagnosed me after losing eight and a half stones after having a gastrric bypass two and a half years ago. i definietely explains a lot of things past and present. Just wanted to know how people cope with all the different aspects of it and what meds people have tried.thanks sioux

1 like, 11 replies

11 Replies

  • ShazKent70
    ShazKent70 silversioux

    Posted

    Hi I am sorry you are a fybro sufferer.  I was diagnosed in April by a specialist. I take iron supplements and vitamin D. For my pain medication  I range from cocodamol, tramacet, tramadol and morpheine.  My diagnosis took approx 8 months with regular trips to the docs surgery demanding something be done, after loads of blood tests, x rays and specialist visits I was diagnosed. Most days are bearable, meaning I only take cocodamol during the day and a morpheine at night to help relax me. I can't remember the last time I slept all night so I joined the library, lol...... 

    I try to keep my work and relaxation balanced, I have two dogs that are my life and I force myself to take them walkies EVERY day. I have given up trying to get family members understand and ignore the famous comment "well you have had it for so long it shouldn't be any harder to cope with"  I sleep when I feel the urge during the weekends and don't make too many plans because I never know what my pain levels are like. 

    Only knowing the little I know about fibro I would suggest that you read about it, talk to people and pester your doctor until he/she listens to you and you get your meds to a level that you can cope with. You are lucky if your family are supportive 

    • bronwyn97278
      bronwyn97278 ShazKent70

      Posted

      Morning to you both;  yes you stated somy very good points, Shazkent, and answered most concisely......there is probably a couple of extras that I will add to Silversioux.......Magnesium Tabs are very beneficial (I actaully look for Bio-Magnesium, as it has the added extras of Viamin D, E and C).....Gabapentin is a good medication, that a lot of us trial, as it is a Nerve Blocker, and helps the Extra Sensitive Nerves......when/if you come to the stage of "burning" sensations on your skin, some of us also use Amitriptylline.....have you been referred to a Rhuematologist....they are usually the best for keeping you in the loop of best treatments.....there are many medications/treatments out there, some work, some don't, and it is always different for different Fibro Folks (as our bodies are sensitive to different things).....but one very useful treatment that I cannot do without is my physio/massages, to loosen the knots that form in my ligaments/muscles.....find yourself a good, knowledgeable physio who understands Fibro and your body (if you do not have one already), and make regular appointments.......also click into any of the Fibro blogs on this site, and you will find new support systems, how others deal with their issues, and of  course...ALL of the different areas of body which it affects and what the treatment is for each folk......hoping to see you on the forum, and let me know if this is not what you are looking for as I am really feeling the "fibro fog" today.....can't think/type clearly (and I'm sure that you know this feeling)???               redfaceBron
  • christine26761
    christine26761 silversioux

    Posted

    Welcome yo us silversioux, we are world wide...you will get loads of info on here from people who have experience and of course lots of empathy and good listeners.....Yes..I've had it 22 yrs had it for 10yrs before that undiagnosed...very hard to diagnose...sooooo many different symptoms.The only med that I take fo Fibro is Amithriptilyne 25 mg it took a few years of trial and error, like all of us..I've been on it 16 yrs now..never needed it increasing..I take at night.,sleep beautifully no pain no muscle cramps/spasms..but a tad groggy getting up, but absolutely fine once up..I take double the recommended dose of vitamin d3 and magnesium, hit water bottles galore when needed and the biggest thing to remember us to stay stress free...Fibro lives stress..I know it's very hard sometimes..also there is light at the end of the Fibro tunnel..I only get bad flare ups now...it has been a long time I've had it maybe that's why???....it's like a remission for a few months then it comes back with a vengeance..but those remission months are just beautiful..especially .don't let. this Fibro beat you...learn how to live with it...be blessed silversioux, gentle hugs from Australia, have a lovely day..:-) xxx
  • carole28488
    carole28488 silversioux

    Posted

    Hi, everyone:  I was diagnosed with Fibro three years ago, after taking a hard fall onto concrete.  I'll never forget that day.  I tripped over one of those concrete things tht stop your cars from going any further. It was at my church, while trying to do volunteer work.  I broke my nose, ruined my knees, and my already bad back got a whole lot worse.  Fibro is probably the most painful thing that I've ever gone through, with the exception of depression and anxiety, which I also had.  I take Lyrica whever I can, but the side effects are pretty bad...I also take Tramadol and Val Terrin...I manage as well as I can, but you never know when you are going to have a flare up...I'm just glad I'm retired as a paramedic because I can hardly go out of the house it gets so bad...Bless you all, and gently hugs...
    • bronwyn97278
      bronwyn97278 carole28488

      Posted

      I think you deserve retirement, after working as a Paramedic.....that is One Very Stressful job/career............and would cause anyone to succumb to Fibro........stay in the loop.....Bronwink
    • carole28488
      carole28488 bronwyn97278

      Posted

      Thank you, bronwyn:  It is very stressful, but also rewarding...my back has been terrible ever since.  You don't realize how heavy those stretchers are until you go to life one in an emergency...I was just a tiny little thing...hard work....HUGS.
    • christine26761
      christine26761 carole28488

      Posted

      Goodness me Carole, what an amazing career you had, thankyou very much on behalf of everyone you have ever assisted..poor you, tripping whilst volunteering...my husband does  car park duties every Sunday at church..it can be a worry..especially when it's pouring with rain..I really feel for you and will be praying for you..no wonder you ended up with Fibro.....gentle hugs to you from over the seas..try keeping stressless, as Fibro just loves stress. Be blessed. Have a lovely week, try to enjoy your retirement...Rom 8:28 ALL things...even Fibro..:-)xxx 
    • bronwyn97278
      bronwyn97278 carole28488

      Posted

      Oh yes Carole; do completely know how much care and emotions went into "lifting those sretchers", as I spent a lot of my career receiving those stretchers and their patients.......I would always tell anyone who wanted to know about my work, that the Paramedics/ambos and the Police saw a Lot more than I did.....you are Very Selfless People and no-one can Compare their work to your's......you deserve a Lot more than you ever got.............admire you............Bron
    • christine26761
      christine26761 bronwyn97278

      Posted

      Total agreement with you there a bron ...my daughter was an ICU nurse.. now a lecturer doing a PhD..,the things she did...just amazes me and she is sooo small too..you guys who did/do nursing..you are true champions and heroes, the terrible hours and call ins just alone..wow!!! .you all amaze me.,well done..be blessed..have a lovely day
    • bronwyn97278
      bronwyn97278 christine26761

      Posted

      xxlolactually am Hoping for a lovely sleep............am very tired.....as we all are.........x
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