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Fibromyalgia

Posted , 2 users are following.

robogran
robogran

smile Anyone care to share their Fibro experiences and have a chat or two?

I have been a sufferer of the debilitating complaint for 11 years now and would love to talk to other folks in the same position as myself

0 likes, 5 replies

5 Replies

  • Flowerlady
    Flowerlady robogran

    Posted

    Morning Robogran...Good name does that mean you have loads of energy.

    I were diagnosed 3 years ago with Fibromyalgia and probably had it for years before that too.

    I am in constant pain, and its getting more and more. Been back to the Rheumatologist a month ago and he suspects i may have CFS/ME as well. 

    Today after a month I went to my doctors to get results from the rheumy, and he had not heard back, not even the blood results. I were not at all happy as I had to walk half a mile to see him as I were unable to get a lift. Now I am crippled in pain.

    I used to take Pregabalin but weaned myself off that as the side effects were awful. Dizzy, felt sick all the time, numbness, bad headaches, feeling as if I were drunk, sluring speech, wrong words coming out thats just a few.

    This is a cruel disease we all on here have, thank goodness there is an excellent site like this for us to come on to have a chat. 

    Antway, I will be off to make myself a cuppa and try and build some energy back.

    Chat soon..Regards Annesmile

     

  • helen70967
    helen70967 robogran

    Posted

    Hi Robogran,

    I was diagnosed with Fibromialgia and CFS in 2006, with other conditions diagnosed before and after. I am now being tested for M.E and other conditions.

    I understand how isolating it can be to have even one condition in this family of illnesses. If its not the symptoms of the illness its the side effects from the drugs given to help 'manage' it. I am currently taking - 22 tablets per day.

    I found it important to stay as possitive as possible and focus on what I can do.

    That's me I look forward to getting to know you better and trading coping strategies.

    Talk soon. Helen. xxx

     

  • Flowerlady
    Flowerlady robogran

    Posted

    Hi Robogran, are you still around for a chat on here?
    • victoria63790
      victoria63790 Flowerlady

      Posted

      Hi anne. I too have been suffering with fibromialgia/ME symptoms...I have been looking for someone to chat to but no luck as of yet.

      I am feeling slightly isolated.

    • Flowerlady
      Flowerlady victoria63790

      Posted

      Hi Victoria,

      I am on here every day hoping to chat with anyone, don't know where Robogran has vanished to. 

      Feel free to chat. my days are long and lonely..regards Annebiggrin

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