FIBROMYALGIA

Hi

That is very strange! I would definately go see another doctor with your weight loss. Really cant understand why he will not get some bloods done or something for you. It is good you have lost weight but I suppose you have gone to much the other way now. There has to be a reason. Hope you manage to find a doctor who will listen and help you :-) x

Tess x x

Oh my, that definately needs looking at. Yes, I agree, see another dr or if you have nurses at your surgery, ask them to do it for you. lack of mobility sometimes causes weight gain, and so much loss in a short space of time needs looking at.

I dont know if you have an out of hours service - we have Badger attached to hospital in Midlands, If it comes to it, phone them after dr surgery hours (around 11pm or even 1am - its quiet then), tell them that you are really unwell etc., they will ask you to come in, then tell them about your weight, they might admit you and investigate. then it will be logged on hospital records. something needs to be done love, keep us up to date, as bit concerned. XsanX

Hi, I'm Sue and joined a few months ago but this is my first post - I think lol.

I was diagnosed with fm in August last year and thankfully I'm still able to work.

Hope to get to know you all.

Sue

Hi everyone, i too have fm and have been really bad for two yrs now but have only just been told that this is what i have, im finding it very hard to come to terms with and just dont know where to go or what to do, is there someone out there that could help me through this???? i suffer with all the symptoms that others are talking about on here ranging from the sleepless nights to extreme pain all day every, i use crutches to help me get around and a wheelchair when out shopping my mobility has gone from hero to zero, i used to be so active and feel like i have been stopped dead in my tracks is this meant to be like this? surely there is something the doctors can do im on all the pain meds but just dont seem to get a break, i get extremely stressed and just dont know what i can do to ease this please HELP!

Am I allowed to put a link for a forum for fibro sufferers please?

Sue

Hi sue my name is teressa i would very much like to know what link you have found for sufferers of fm. Teressa

Hi Teressa, I'd love to tell you, I just don't want to get 'struck off' lol for mentioning it but it should be ok....shouldn't it?

I'm a volunteer with this new group, I'll put the link on and hoipe I'm not doing anything wrong. Are you in the UK? Not that it matters......

Sue

fibroaction.healthunlocked.com/

Hello All.

I havent been on line for a little while, ive had a flare-up which seems to be going on for ever. The damp rainy weather isnt helping, but we need rain at the moment to prevent a drought.

My flare-up includes swollen neck, ear ache and swelling all down the left side of my body, deeming me

even more less mobile than usual.My moan is over. must carry on for the sake of my family. my daughter will be leaving home this summer to start uni. I am dreading it, I am holding back tears as I order or buy bits and pieces of kitchen wares(in pink) for her to take. More than most, we all have to cope with fm, but we do. :o)

Hi Xsanx

Know what you mean about the damp weather. I have had lots of aches and pain with this damp weather as well. I know how difficult it is when your children leave home and go off to Uni. I have had two sons go to Uni and is difficult at first but you do get use them being away from home. You can keep in touch with them by phone, text or email. It they have a facebook page and you have one can keep an eye on what they get up to that way as well. Have you any more children at home? I hope it all works out well for your daughter. How does she feel about going to Uni. It is a bit scary at first for them but once all the paperwork is complete they do settle down quite quickly. Will she be far away from you? You will have the pleasure of when they come home to visit to bring their washing with them. Good luck and take care.

Thank you for the encouragement dear smarty.

Well done to your sons for progressing, and having asperations, and for you, the part you play in their lives.

I do have 2 lads still at home, one of them will be starting senior school in sept.

Daughter not going far, staying in same city - she requested accommodation near-ish so that she can

come visit me often. she needs to spread her wings, and she is very sensible... i am lucky because she didnt give me any teenage strop. She is nervous and excited too,, same goes for my son, but the youngest feels left out as he has no major changes at the moment. His time will soom come.

Its arnica jel time and meds before bed time. thanks again.

hi xsanx

It is good that your daughter will not be too far away from you. What is your daughter going to do at Uni.

I also have three other children who didn't go to uni but have done well in their careers as well. I have a daughhter who is two exams away from being a qualified paramedic and will know by tuesday if she has passed. I am also very lucky to have three lovely grand daughters as well.

How are you feeling today. Seems like we are going to have this damp weather for a while longer now.

Cant wait for the warmer weather to come.

hi xsanx

It is good that your daughter will not be too far away from you. What is your daughter going to do at Uni.

I also have three other children who didn't go to uni but have done well in their careers as well. I have a daughhter who is two exams away from being a qualified paramedic and will know by tuesday if she has passed. I am also very lucky to have three lovely grand daughters as well.

How are you feeling today. Seems like we are going to have this damp weather for a while longer now.

Cant wait for the warmer weather to come.

I have had Fibro for over 25 years, I have had IBS for over 30 years, and am lactose, wheat, gluten intolerant.

Fibro, i have good days and bad days, and try to pace myself so I dont overdo the good days, and suffer the bad days. I attended a Pain management Residential Course in Wales, and it was the best thing I did, It got me to manage my pain more than reaching for the pain killers each time I got pain, they reviewed my medication, and it is now better, I have pregablin, and co-codamol, tramadol in the evening when sometimes my pain is high.

I am trying to get GPs to find out more about the condition so they can stop saying that it is all in the mind, or 'do you have access to the internet?' yes but if I took this magnificant pill I would be cured if I knew that it was true!!

I want more GPs to fully understand what being in chronic pain is like,,,, so they can really listen and give you what you need not what they think you need...

I mean I have told the GPs that it is like having the worst toothache from head to feet 24/7, and the worst Man Flue ever 24/7 and well that is a really good day then.....

damp cold weather goes for my pain more, and hot weather goes for my fatigue so I need to be warm when it is cold and cool when it is warm,,, think I need to get my hot flushes sorted out first with the menopause..

I keep calm by knitting and stroking my lovely cat.. oh and watching Dr Gregory House (hugh lawrie), or Dr Mark Sloan (Dick Van Dyke) on Diagnosis Murders. they are my therapy,,

what do you do to keep calm and take your mind off the pain or fatigue???

xx

Hello again smarty, and hello tigger55

Good luck to your daughter for tuesday. wow, what a service for folk in need. She will be good, because she has an understanding of pain and suffering thru you.

My daughter did an article on FM, and got an extra grade for it. She said it was another way to tell people about this condition. She was also tempted to post a copy of it to my previous GP, but decided that it would be a waste of her paper and ink and postage stamp lol.

Apparently, if dr's are of a certain (older) age, they wouldnt have much knowledge of FM because it is fairly new, unless the dr is prepared to keep up todate, however my previous gp was not old, well, i didnt think he was.

I had physio this morning and I know I will be feeling the effects from the manipulating tomorrow, but all will settle within a few days and then I will feel the benefit, I love my physio, i av been seeing him for 8 yrs, he does his thing while chatting and joking with hubby, as if im not there lol. today he was singing songs from musicals and shows - highly entertaining.He has shown hubby how to work the areas where knots are. my previous GP said it was all in my head and sent me to counsellor, who told me to report GP because of his behaviour and attitude - i did not have the energy so changed to another GP.

tigger55 - you have had it all, yet you still have the energy to encourage... many thanks.

Ive yet to think about menopouse - I might drift through it been tanked up on meds, hopefully.

I cross stitich, read and watch tv. I do love the old black/white films and anything crime based and detective, so we have some thing in comon. I have recently tried my hand at card making and enjoying it. A friend from church has asked my to help her do a charity sell at the Bank she works for. Bank has promised to donate pound for every pound we make. the actual date is yet to be booked, but i have started making. Im trying out new techniques and quite like parchment - it helps as cognitive therapy.

some times, when im having a flare up,and feel stuck in the house, I go costa, have a drink or three and just read. it gets me out of the house. I used to have to go into our city centre, but had to rely on hubby because I would be to tanked up on meds and unable to drive, that disturbs his working hurs. Lucky for me, a new costa cafe has now opened very near me and that is such a blessing. I have spent 3 hours reading and chatting to the girls who work there.

Another day lived, and it wasnt too bad today. its medication time, so i will bid you a good restful nights sleep.