FIBROMYALGIA

Oooo and I know what you mean about DLA. The thing is--if I was on my own I really couldn't manage on my worst days. I find it hard to shop as I have dizzy spells in supermarkets. I'm also affected if stand cooking & I can't queue either. My bp drops when I stand & I have been known to pass out.

If I don't pass out I can get confused, disorientated & sick. It happened the other week as I popped into Tesco for a couple of things & got carried away. It took me hours to recover & I only bought a few provisions for a trip I was going on. A full shop is impossible for me.

The new guidelines just don't allow for people like us to access benefits. Who the hell would employ me--I was an employer for years & I certainly wouldn't.

XX

Hi Wardene why don't you look at thyroid uk and go to healthunlocked. You can ask questions and will probably get a lot of answers too. Fibromyalgia is from an under treated thyroid. Once your thyroid is being treated optimally your pains should diminish. Take care

Jo xx

Hi I also meant to say you could go onto youtube and put in The holy miracle of the infallible tsh

and just watch it. Makes you think.

Jo xx

I had fm symptoms long before my thyroid started disfunctioning, but I must admit it became worse at the onset on thyroid problems.

I believe my fm was started by my brush with death, thanks to an incompetent gas fitter, who plumbed in a gas fire to a chimney with a capped off flue. He did a smoke test, but didn't check the right chimney, the smoke must have been coming out of the old bedroom chimney (very old house & the lounge had at one time been a shop--they capped the flue for some reason).

The previous owner owned the house/shop & had converted it back, forgetting about the flue, but never used the room. We bought it & used it until I collapsed & was rushed into hospital. They said I'd make a full recovery, but I now know the lack of oxygen causes the brain to age & as we all know--burnt fuel has more than just carbon monoxide. It has other chemicals that I believe have ruined my body. The other 3 members in the household haven't got away with it either. 2 young girls living with me are both chronicallly sick, both with asthma, 1 with ms & both have thyroid disease. They are not related to me & there is no history of asthma & early onset thyroid problems in the family.

I looked into battling the company through the courts for compensation, but who can take on the biggest supplier in the uk & win?

I know all about the NHS attitude to thyroid disease. I believe it's to save money. In the USA/Aus you get treatment a lot earlier. I'm on a miniscule amount of thyroxine & I have improved by taking it, but my levels are still very variable & they won't increase it atm. I am lucky to have an approachable GP who tried me on it.

I will take a look Stourie--thanks.

Hi Everyone.

A 'good morning' it is. Blessing number 2

(number 1 blessing is further on below)

wow, I woke up 45 mins ago, having had a fab night's sleep - nearly 9 hrs, a first for a very loooong time, medication helps, but I have meds all the time anyway. Its the loving hands of Hubby having been shown by physio how to help massage the painful points) with arnica jel. my physico is wonderfully understanding.

I didnt know thyroids was linked to fm, but it explains why my neck swells and ache terribly when having a flare up, I have been blood tested for over/under active thyroids but will do some searches.

DLA is so frustrating - there are crooks out there who spoil it for others, US!I have tried 4 times and always turned down. I have even had CAB help me fill in forms. my fm consultant completed a form they sent, and he told them that I was an intelligent articulated lady, but that has back fired on me because DLA said that I can find some sort of employment. what about my physical state???!!!.....i scream

Just like DLT, I have been on the other side and I understand that efficient reliability employees are important to run a happy successful ''ship''. Resentment will develop if other employees have to carry a collegue all the time because they too can only do so much. fibro fog, panic attacks, flareups and everyday pain prevents me from holding down a job. Even as a volunteer I was useless and had to leave.

I loved working, I thrived on interacting with folk, legal secretary, customer service, debt advising, helping people. Earning £'s was a bonus as i was ambitious. So its frustrating that my head wants to do stuff but my body fails me. The added guilt is that I cannot contribute financially nor with even the basic housework, yet needing the house to be warm all day adds to the ever increasing energy bills. Not able to buy extra nice things for my kids, yet they are soo understanding, and quality time is really quality, because we have to be creative. the bonus is that we are tight knit little team of 5 + the grandparents x 4.

Blessing number 1 is: my dearest friend, for 30+ yrs, was diagnoised with cancer on his birthday last year.

Today is his birthday, and he lives to celebrate

Its another very rainy today, but we need the rain, so that my 3rd blessing, and its still morning.

Have a good day every one, and count your blessings. X san X

Hi XsanX the best place to search would be thyroid uk it is a charity run by thyroid people and has a great forum called healthunlocked. You can subscribe to it and its free. Lots of great help there. Remember to go to youtube and search the holy miracle of the infallible tsh. Really interesting.

Meant to say that blessings are good

Jo xx

DLT

I was told that fm can be triggered by some type of trauma. Dear oh dear, your trauma was horrible.

Again, its the actions of others that impacts on our lives, but when its sooo severe, its hard to swallow. We need to use our experiences to help others, Its true what my Grandma used to say ""wisdom grows with age, but its what we do with all the wisdom that will make the lessons learned worth while"". easier said than done thou!!!

Hi all,

I'm taking part in a study for the long term effect of Co poisoning at Manchester Uni. Haven't heard anything for a long time--perhaps I'll be pushing up daisies when they finally come up with summat.

I hate gas appliances now--don't trust them at all. When I use my hob I not only have my extractor on, but a window open too. The fumes from a gas cooker is just the same as a gas fire, but there aren't any regulations to fit an extractor/flue to outside. In the days of insulation, double & triple glazing I think it's a disgrace that it's not enforced or admitted to.

I have a living flame gas fire, but again I have to have a door open to use it, which renders it useless. However, solid fuel & wood are even worse than gas, so we can't win.

DLTapped - you said "I hope Patient UK doesn't mind me posting about the other site. "

Far from it, we are here to bring fellow sufferers together and if there is other help in the shape of help groups or forums we encourage this.

So FMAUK is here for other users - www.fmauk.org/ and the forum mentioned above is here www.fmauk.org/phpBB3/index.php.

There is no problem putting links in your posts but there will be a delay while they go for moderation. What I have suggested to others is if you post your comment and then post the link in a separate post this means only the link won't appear until approved.

Hope this helps.

Alan aka Emis Moderator.

Thank you so much for allowing this & I hope it helps someone to join & have the support I've had. I now do my bit back by moderating for them. :D

Hi Xsanx

My daughter passed all her exams on Tuesday and is now a qualified paramedic. She won;t be able to use her skills as a paramedic until she has been put on a register. But she will get a pay increase. I am not liking this horrible wet damp weather. I have had a lot more pain lately and just want the sun to shine.

How are you feeling now after having your physio. Just been trying some new antidepressant tablets for sleep again. Only seem to get about four hours sleep overnight. Got to go back and see my gp in three weeks time to see how things are going.

Congratulations to your Daughter Smarty. It's nice to hear some good news.

I now take Citalopram & it's done wonders for me. It doesn't actually make you drowsy & it's best taken a.m. However--it seems to have calmed things down & I generally sleep better.

It's the asthma/coughing that disturbs my sleep the most atm.

Hi DL Tapped

Thank you for your congratulations. I hope you are managing to get some sleep and your asthma and cough not keeping you awake too much. It is so annoying when you don't get enough sleep. I still keep waking a couple times a night. I have only taken three of my new tablets dosulepin and havent noticed any difference yet in my sleep. I know it is early days and I have to go back and see gp in 3 weeks. Thinking of going back sooner as not sure if my osteoarthritis could now be rheumatiod arthritis. I have had this for ten years and has got a lot worse. I have now got some deformities on my fingers and some nodules which can be a sign of RA. Think I should go get it checked out.

Hi smarty - congratulations to your Daughter.

I am now feeling the effects of the physio, and went out with my daughter to day, as it was such a sunny, but chilly, day.Another good night last night, which helped put me in a better frame of mind.

DLT - I am also on Citalopram, and it does help. been on it for number of years. Its four days since I had my last voltorol and I am doing okay because the side effects are wearing off, so flareup is finally settling down, and because the drowsy is gone I can now drive again which gets me out of the house for a little while.

My Hubby suffers from the effects of asthma, but years ago, having done a little homework, and ''nagged''

when he got congested or whizzy, he now comes off all dairy products for a week or two, and it seems to work for him. Also, drinking drinks straight from the fridge triggers coughing. Maybe, try elevating your head, sleep with head slightly raised, again, downward drainage keeps congestion from settling on the chest or lungs.

Im at dr tomorrow, so I intend asking her about the link between fm and tyroids. Then back to physio for some more torture lol.

Blessing 1. I managed to get out today and enjoy the lovely sunshine.

Blessing 2. the xstitch that im doing to help my daughter with her art project is almost done.

Blessing 3. I managed to stay awake thru the whole of the film Picture Perfect, which my daughter and I watched before my lads returned from school.

Night night everyone. Sleep well.