fibromyalgia

Hey there so sorry your in such pain I def can relate and I know how it feels to go dr to dr and come up with nothing. Everyone uses something diff as all meds work differently for each person. For me I have to have pain Meds however I know drs do not give those in many states but I have so many affects from fibromyalgia arthritis in neck knees back, spondylosis anxiety muscle spasms asthma degenerate disc migraines ugh too much but I will say I started talking meloxicam 15mgs once a day for arthritis and inflamation and my spasms were so bad I was in tears they were under my chest all the way around to were I went to er twice for shot of toradol. Week one the spasms stopped now second week the arthritis is alil better. It's non addictive and worth trying. My husband has used bout a year n his pain is gone with it. Now I don't know when off of pain will be back but had I not started I think I would have been back in er. It's prescribed by reg medical dr so no specialist needed. Feel better everyday is a struggle I know but we all push forward and continue to fight till we fine a solution. My family hears me but could never understand my pain which is how I found this site so I can relate to others and hear what they tried in hopes it may help me also huggs 🙂

H Denise

Im sorry to hear you are so poorly.  fibro has to be THE most mi-diagnosed, under-diagnosed and mi-understood ailment on the planet!  I think 99% of folk on here will say the same - it has taken them YEARS to get any diagnosis - some are still tyring and what vexes me more than anything is the lack of undertanding - from doctors, hospitals, work colleagues, friends and family because we do not look ill.  well i feel ill.  to be honest, i look dreadful but slap on some makeup and lipstick and other than being very slow on my feet and have very limited mobility - I don't look ILL.  FED UP of people saying, oh you look so much better - or - you walked the lenght of the town yesterday - ithought you were better - didn't see me in my bed, in agony by 6.30pm, nor unable to do do anything the day after. grrrrrrr.  rant over. sorry!  ihave come to the conclusion - well came to the conclusion at the beginning of this fibro nonsense - the meds simply do not work.  the consultant at the pain clinic wrote in her letter to me, 'Reduce and stop the oxycodone as not effective,giving side effects andultimately likeley to result in increasing levels of pain.'  well where do i go from here?  anyone out here on this forum have any ideas please let me know.   

Everything you have said could be myself writing it, I too have Fabriomyalgia and have and do experience everything you have described, I've have my diagnosis for many years now and still don't have any control over it as it is such an unpredictable nasty illness, I have found only people with the same illness can really only understand, my family are good but I do get the impression they really don't get the magnitude of it sometimes xxx