Fibromyalgia

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My doctor thinks i have fibromyalgia i am in constant pain i cant seem to keep my eyes open but i try not to show the pain or tiredness in front of my family as they say its lasyitis and laugh at me i am only 28 but i dont want to go back to my doctors and tell him the tablets dont work incase he thinks i am making it up 2 i really dont no what to do i lie in my bed in tears with the pain even walking my dog or sometimes getting dressed is hard please give me some advice

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  • Posted

    Paula go back to your doctors and tell them tablets are not working. It took me almost 3 years before I noticed one that worked for me. I don't think my family understand how I feel either it took a breakdown of the mental sort that made everyone realise that it's not just the pain but my mental state that has been affected. Leave flyers around about fibromyalgia for your family to see and hopefully they will recognise that it is real and it can be debilitating at times. Sadly with fibromyalgia it's little trial and error for meds, you are going to find some have nasty side effects but the most important thing I've learnt is to deal with the mental health. I have an assessment next week and joined another mental health services to get me back.

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  • Posted

    I'm so sorry you're feeling so bad, it's very difficult to feel so fatigued and in so much pain and not have support from family members. You must go back to your doctor and ask to try different medication and you may find one that helps you. Unfortunately there isn't a definitive medication that works for fibro and it is a bit if trial and error finding one that works for you. If you could get a member of your family to go with you to the doctor so it can be explained to them that you do have fibro, and what it is. When they hear it first hand, they might be more inclined to believe you. Also ask them to Google it, to get a better understanding. One (of many) annoying things with fibro is that you will look fine even though you can barely lift your head with fatigue and your body is wracked in pain so I use the 1 to 10 scale with my family. If I'm feeling really bad at a particular time I'll tell them I'm at an 9 or 10 but if I'm feeling reasonably good I'll tell them I'm at a 2 or 3. Then they know when I am feeling bad but also that I can feel reasonably good. The best thing you can do for yourself is pace yourself. Build your energy to do something and don't overdo anything so that it leaves you in pain. Its all trial and error Paula, till you find your own level, and you will. Its also very depressing not being able to do all the things you could have done before, so you need to mind yourself mentally. You also need to tell this to your doctor. I think getting your family, or at least one member if your family, to understand will help you cope a bit better. The very best if luck to you on your journey.

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  • Posted

    From the little I know about FM. My partner is 57 and had,it for many years is that unfortunately there simply is no one pill fix as it effects all who suffer in different ways.

    You need the support of your family and friends as the journey is a tough one.

    Good luck

    Richard

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  • Posted

    Thank you guys i will make an appointment with the doctor is there anything i can do to help the pain i have been looking online but it is all been about what tablets you take i no it wont go away but i would just like to be able to go to work without being in so much pain.x
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    • Posted

      I had acupuncture and tried with a acupuncture, I have to say acupuncture and a good strong massage helps, but my acupuncturist wanted to also focus on other things and it was costing too much. As much as I want to rid the pain financially can't do it every week. De-stressing helps if possible I'm still looking at ways to de-stress. People suggest epsom salt in the bath, hasn't worked for me, cutting out sugar which I have but not totally so still waiting to see the benefits. Gentle exercises as suggested by my physio, and talk to someone, I find at the moment this site helps but I am registered to speak to a counsellor soon.

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    • Posted

      Hi Oompa, I'm new to this group and I've come to the conclusion that I am suffering with FM. Loads of indicators but it's not that well known in the UK and I think it's luck of the draw if you get a GP who even knows what it is, let alone understands it. I wanted to ask you about the comment you made about being 'registered to speak with a counsellor soon'. How does that come about?  Keep strong and happy 😃

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    • Posted

      Hi Madasahatter, I live in Birmingham, so it's Birmingham healthy minds, it was my physio who suggested it, I was seeing a counsellor while I was under the pain management specialist but that was occasionally and before being diagnosed. My new physio said to give Birmingham healthy minds and I've made the call, they sent me a questionnaire and I'll have assessment Saturday. Check your local mental health charities, there's also a charity called spring 2 mind I came across them through work and remploy, research them. Let me know how you get on

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  • Posted

    I'm so sorry you're going through this. No one understands what we feel except those here in the group. You need to speak up and talk to your doctor. Don't suffer in silence. Get a referral to a rheumatologist for diagnosis. Getting diagnosed and finding what works for you takes time.

    Like oompa said I do Epsom salt baths and take magnesium at night to sleep. But that doesn't work for everyone. I have also gone to a chiropractor and acupuncturist. Some people like certain medications but I can not tolerate them due to side effects. You have to do trial and error to come up with a plan with your doctors that works for you.

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  • Posted

    I'm sorry you have this

    I'm also suffering for years now

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  • Posted

    Living with Fibromyalgia for 8 years now. Tried many things for pain. Have studied pubmed clinicals. I also have hypothyroidism along with hashimotos. They are usually found together in fibromyalgia patients.

    The one thing that has helped is Fresh cut

    Pineapple. I will explain.

    The theory is that your muscles are not repairing at night from normal day use. The thyroid connection is that your metabolism is so slow..you are also not aging as fast (see pub med: rats made hypothyroid double life span) and results in also weight gain. At 47 i am told I look very young and just got my first two gray hairs...havent gotten anymore..but ok.

    Cellular regeneration is slower. Its like your muscles are functioning on cells that should've already replaced themselves. Your metabolism is using last weeks cells but you are forced to function at regular speed. This is why gravity feels heavier. Your muscles are fatigued all the time and walking around feels like you are dragging an extra 200 lbs behind you and you could swear you were in a car accident the night bedore or that you feel like you are in the body of. 90 year old person. That is how I describe it to friends and family. It also helps not having ignorant

    people around in your life. That's not always a choice. But I do agree to print out this data and leave it around.

    Pineapple has something called Bromelain. It is the ONLY edible food that has this. It is an enzyme that breaks down protein. It is called the "Flesh Eating Fruit"...when its fresh cut it immediately starts breaking down the taste bud cells on your tongue. This is why some people have problems tasting other foods for a few hours after eating.

    The theory is that the bromelain is forcing your cells to die off at a faster rate to help push the cellular regenerarion time in your muscles. It takes anywhere from 24-36

    hours after eating pineapple to feel the effects...along with a good night sleep.

    It cannot be canned..juiced and must be eaten in an hour or less after being cut. The core contains the highest concentration of bromelain...chew on a bit of core after eating 6-8 large chunks!

    No medication has matched the pain and fatigue reduction pineapple has done for me. Maybe Coffee with a shot of espresso can help for about an hour or two. Pineapple ypu can eat every other day or 3 days. Figure out what your level and rate is.

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