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Fibromyalgia

Posted , 8 users are following.

meli44
meli44

My gp put me on 20mg of prednisone while we find a rheumatologist. Doesn't seem to be working. I have severe pain all over my body, muscle cramps in my calves, stomach, feet, and hands. My back hurts horribly. My feet swell up and hurt so bad. I have gad this type of flare up before, thought it was just sciatica. Oh, nevermind the not sleeping too!! Please someone tell me im not crazy!!!!😢

0 likes, 15 replies

15 Replies

  • bill38615
    bill38615 meli44

    Posted

    You ain't mad! Unfortunately I have same symptoms for 6 years but no diagnosis. Lots of pain killers and lots of pain but no end in sight. Try and stay strong and positive.

    Hope you soon find relief.

    • meli44
      meli44 bill38615

      Posted

      Thanks Bill, I've had these flare ups, if you will, before this one just seems so painful. I mean muscles are cramping up everywhere. Thanks for letting me know I'm not alone! 😊

    • bill38615
      bill38615 meli44

      Posted

      Cramps are absolutely horrible, uncontrollable, and painful. Heat has a slightly soothing, comforting affect though not actually healing. I have tried meditation, relaxation techniques diversion thoughts but to no real end. The only assuring thing is that the attacks will ease. Stay strong.
  • Becci19
    Becci19 meli44

    Posted

    Hi you are not crazy! I found voltarol eases my calf pain more than taking diclophenic as a tablet. Also on cocodamol, tramadol and amitriptyline. The tramadol is deffo the best wouldn't be working without it. Hope you find some relief!! smile

  • meli44
    meli44

    Posted

    Thanks Becci, im on prednisone and its not doing a thing. Im wajting for my doc to find a rheumatologist, he says the ones around here dont believe in fibromyalgia!!! Can you imagine??? Im on meds for depression and anxiety and when thjs haplened a few years back my doc sent me to a rheumatologist around here. As soon as he saw wbat meds i was on he said oh, youre depressed! I said nooo im not. He said yes you are. Depression makes you achy. I said im not achy, im in pain. He said youre depressed. That was that!
  • Becci19
    Becci19 meli44

    Posted

    That's ridiculous, tbh all the Rheumy does is diagnose then it's up to your gp to treat so if you have a good gp suggest different meds and things to try and then it's trial and error or if not ask for a different gp. Mine is great I'm so lucky, I've had hydrotherapy, a massage course, pain killers as above, referrals to urology, gynaecology, ENT ect for overlapping conditions and a complete diet, excersize and lifestyle overhaul and 12 years later I finally feel I can manage it. Although having a flare now but that's my own fault for doing more hours this week! Hope you get something sorted sorry for rambling smile 

  • meli44
    meli44

    Posted

    Thanks Becci, I appreciate the rambling, i need all the info i can get 😊. Im gonna call my gp tomorrow, I am getting no relief from this prednisone. Hope you feel better too!

  • EarthaKitt
    EarthaKitt meli44

    Posted

    Preds aren't for fibromyalgia. Wrong medication and very dangerous side effects. They are for PMR and GCA. 

    • meli44
      meli44 EarthaKitt

      Posted

      Thanks earthakitt, I'm just learning about all of this my gp said the pred was the best anti inflammatory . All i know is I'm in pain and the pred makes me pee every 15 min. Thats the only side effect i bave so far.

    • mandy72855
      mandy72855 EarthaKitt

      Posted

      Ya I agree, prednisolone wouldn't work cos they fibromyalgia doesn't cause inflammation although they prescribe antiinflammatory meds!!! My mum suffers with polymyalgia and she always gets relief from prednisolone, that does cause the muscles to inflame. Us poor fibros have take 13 lots of mixed meds due to all symptoms. More research is so needed for us.

    • meli44
      meli44 mandy72855

      Posted

      Thanks Mandy,

      Sorry for your mum, my feet did sweel up lime balloons last week. But this is why I joined this forum. My gp said prednisone is the best drug for fibro and I am definitely feeling no relief what so ever from it.

  • wendy17323
    wendy17323 meli44

    Posted

    Hi

    I have had polymyalgia for three years of which the GP gave me prednisone and the effect is immediate and it is curable but you have to be weaned off it slowly buy lowering the dose every two months

    It is not suitable for fibro and does not work at all,  so I am somewhat surprised that he has given it to you

    My son died suddenly aged 44 and the shock changed it to fibromyalgia which is pain in all your muscles all over your body moving to different places even at different times of day,   the brain sends extra high pain messages to all areas

    I still try to stay active by forcing myself to do things   I then rest with hot wheat bags on the pain area

    I take a muscle relaxant an hour before bed Melatonin 2mg and late as possible strong pain killers

    It is something  I have endured for sometime and at 73 I am learning to live with.

    Go online and learn the difference between polymyalgia and Fibromyalgia

    hope this helps !

    • meli44
      meli44 wendy17323

      Posted

      Wendy, I'm sorry to hear about your son. Ive read tbat sudden trauma can bring it on. Ive been through so much i couldnt pick one thing. Ive had these types of flare ups for years but never thks painful, widespread, of long. My entire body is in pain. I will do so.e research on polymyalgia as well, thank you. 😊

  • pamie28299
    pamie28299 meli44

    Posted

    Most definitely not crazy!! I have so many weird symptoms at times, that I hesitate to even say anything to friends who don't experience this condition!!

    • mandy72855
      mandy72855 pamie28299

      Posted

      Oh ya, I know that feeling of not being able to talk to certain friends. My so called best friend has in the three years since my diagnosis, has told me that I don't have ME cos she's researched it and it is CFS and we shouldn't say ME as that is really bad. Hey, who's she kidding, we all know how bad we feel. Yes it is the same condition, just had name changed by professional s over the years. She is now saying that she has the same symptoms as our fibromyalgia. Quite sad really how people who you think should support us are actually some of the cruellest non believers!!!As we all know fibromyalgia and CFS/ME is invisible to a degree, but I, I don't know about anyone else but I've aged 10 years in 3. I've always been athletic, hard working and very healthy. I used to work for NHS with people who presented with learning disabilities and mental health. I was assaulted by a patient in 2011 and from that year I just never seemed right. I continued in work until 2015, when I just shut down my body just couldn't cope. I've just had a diagnosis of PTSD recently. Anyway I think my point is our life is hard enough and changed in sooo many ways, we could do without negative responses.

      Stay strong all.

      With love

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