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Fibromyalgia

Posted , 9 users are following.

shaun59085
shaun59085

Hi all hope u are well I have recently been diagnosed with fibromyalgia but had pain over the last five years it has got worse over the years.

I had visited hospital with panic I am dieing having heart attack my lungs have collapsed etc but the doctors keep telling me all my tests are perfect and fine and there is nothing wrong with me had all kind of test scans mri xrays blood tests brain scans nerve conducted tests etc.

I feel down upset want to cry let of steam but just can't.

Only last nite I woke with chest pain dizzy like I couldn't breath shackey pins and niddles were do I stop this happens all most every nite and I start a conversation and drift into something without knowing is there something seriously wrong with me am I going mad can fibromyalgia really do all this to a person I don't know much about fibromyalgia and was hoping someone could help or point me in the right direction to help everyday seems to be a struggle for me I tried to claim pip as my gp told me to and they told me there is nothing wrong with me I also have alpha one Copd ibs carry of cdiff acid reflux diverticulitis on top of it I feel so down with it all as family and friends just tell me I need to get on with things I have tests done and there is nothing wrong are they right am I just selfish and should shrug it of I have tried but I just can't do it I feel so alone in this all its so hard but everyday I wake I am still here even though the night I feel like I am dieing which makes me think I am going insane I really find it hard to sleep to especially at nite and wen I do I awake feeling like I have had no sleep even if I have had 10 hours plus sleep and thank anyone who can help in advance

0 likes, 14 replies

14 Replies

  • Becci19
    Becci19 shaun59085

    Posted

    Hi Shaun, I was diagnosed just over a year ago and you'd be surprised just how many symptoms FM has. Google 'complete list of FM symptoms' 

    There are also so many overlapping conditions, most many of us have, you do need to find an understanding GP or Rheumatologist to help with a treatment plan as medication, diet, exercise and therapies all help but everybody finds something different helps. Also support of friends and family, you are not selfish and are going through alot! I think it's hard for people to understand. I hope you find some here. smile 

    • shaun59085
      shaun59085 Becci19

      Posted

      Thank u for ur reply it has been hard I am a single dad to which I now I am a gd father to them they are my world.

      I just feel like i am a problem to others and family friends my kids adore me and I keep it away from them how I feel but cuddles from them help with the pain lol

  • dave0865
    dave0865 shaun59085

    Posted

    Hi Shaun Have you ever looked in electrosensitivity? Most people dismiss it but the symptoms are all very similar to FM. I suffered for Electrosensitivity (ES) for 10 years or more (I think I might have FM as well but my GP looked at me blankly when I suggested it some time ago!) and have taken many steps over the years to make life more bearable, to the stage that I'm 95% ok again. Night times were especially bad as I remember. I can't say that you have ES but there is nothing to lose from trying a few things...  I would suggest turning off the wifi in your house overnight, turning off electrical items like smartphones, cordless phones, laptops  etc. in fact if you can make your bedroom totally electric free for one night and see if you sleep any better and have less pain.  As I say you might not be ES at all but its worth a try... Post back after trying it..  Good Luck Dave 

  • Magpie2me
    Magpie2me shaun59085

    Posted

    Hi Shaun. Well Cudos for being a single dad! Such a noble assignment you have! 

    Well glad to hear that all your tests came back normal. That is a real positive thing Shaun. Dave gave some good insight as well since the nervous system can contribute to many worrisome symptoms and living in this technological age, we are subjected to all kinds of unwanted asssaults on our bodies. I would not be surprised that you are also suffering from GAD, which is Generalized Anxiety Disorder. Anxiety can bring on so many unpleasant physical symptoms that you would be astonished. I think that good tools to manage your stress Shaun would make a huge difference in your life. Being a single Dad comes with its own set of worries and anxieties. Perhaps asking your Doctor to help you manage anxiety and stress would be a good start. Also there is much information online regarding ways to control our worry and manage anxiety. I am guessing that you have many concerns and worries of your own with all the responsibility of raising your kids on.

    All the best to you Shaun! Don’t ever despair. There are answers and methods out there to help you cope. 

    Warmest Regards,

    Maggie 

    • shaun59085
      shaun59085 Magpie2me

      Posted

      Hi thank u I find parenting easy if I am honest lol it's women I find hard work lol.

      Joken apart I think a lot of it is anxiousness

  • heatherrosina
    heatherrosina shaun59085

    Posted

    Shaun I can sympathise, I've had fibromyalgia for over 10 years but these last couple of months Ive been having the worse panic attacks and shoulder and chest pain. Called ambulance out and everything comes up as fine just tell me I"m having muscle spasms, which is right as after taking pain killers and resting it does go off. I'm trying hard not to reply on tablets, I have amitriptyline for when I'm really bad and need some sleep. Not sure what has made it come on so badly just lately. Have just started trying cannabis oil (the legal stuff) it does seem to help with the anxiety but the muscle spasms are still as bad, just having real painful time today hence why O started looking to see if others get same pains. Its an awful condition to cope with.

    • shaun59085
      shaun59085 heatherrosina

      Posted

      I know it's so bad wen u have a panic attack call samartians on 116123 it helps me so much talking to them helps me calm down and feel less stress all the time they are 24/7 some think it don't help but just try it it helps me a lot compared to other treatments but I agree mine as got really bad over the last few months but started to settle wen I called samartians,

      I know about them cause I was in a dv relationship I was burnt with irons in my sleep and my ankle broke with an hammer to in my sleep flesh bitten out my arm in my sleep not that I am a weak man I just don't hit women so I just took it for over a year and half so I struggle with sleep at nite to now the pain and fear I guess

  • tammy_k
    tammy_k shaun59085

    Posted

    Oh Shaun, your pain and panic are real!  I have been told possible Fibro and I sound like a repeat of you with tests MRIs brain scans and every single doctor scratching their head at me. 3 years ago went thru horrible anxiety which lead to depression. (Getting no help or answers despite all my efforts and in mean time barely able to walk from pain). I have to say the anxiety did a physical number on me and I also felt like I couldn’t sleep and when I did felt like I hadn’t at all. Panic attacks, random muscle Jerks in neck and legs waking me up and neuralgia in arms and legs. I after felt like I wanted to “get out of my body” and run away from it. Things that helped:  counseling, a good psychiatrist who prescribed cymbalta (that was a miracle for my mind) and Gabapentin and traxadone for sleep. Also a good Chiropracter did some treatment that improved me by 60%. Am able to walk distances again and take some pleasure out of life. I live with chronically tight muscle cramps in my back and neuropathy in my feet. Physical therapy, stretching and strengthening core help some. But I always live with it. Gotta look at bright side. I could have cancer!
    • shaun59085
      shaun59085 tammy_k

      Posted

      I know wat u mean I have so many pluses to my life and it could be worse but wen the panic kicks in nothing else matters if u get wat I mean
    • tammy_k
      tammy_k shaun59085

      Posted

      Yes I do.  It’s hideous. Do you have a supportive family?
    • christine26761
      christine26761 shaun59085

      Posted

      Unfortunately friends and family just don’t understand..I ended up putting up healthy boundaries, just cut them off from my life. It’s not worth the stress, sounds harsh, but it’s nit really,  you need to look after you, real friends and really loving family come back very quickly, with empathy and much more understanding, remember in doing this YOUR NOT BAD, THEY MIGHT BE SAD for a time...be blessed..🙏🙏😍😍

  • christine26761
    christine26761 shaun59085

    Posted

    Hiya Shaun, you maybe need to see your doc about anxiety, I had anxiety the first few years ( had it over 30 now) I couldn’t count on my hands how many times I was whisked off to Hospital by ambulance, to be told each time I was ok, but I thought I was having a heart attack nearly every time, over time and realising that fibro has sooooo very many different symptoms and not everyone has the same, (a bit like anxiety a too actually) it’s very hard to know what’s going on, I never knew if it was fibro or something else..I was medicated by the doc for anxiety for a short while..it worked..the more I knew and understood about fibro, 2 things I would recommend:

    no stress, fibro loves stress., get as much knowledge on fibro as you can, use only good websites too. Hope it helps, really feeling for you Shaun, be blessed avaGoday.🙏🙏🙏😍

  • elizabeth05561
    elizabeth05561 shaun59085

    Posted

    Hi Shaun, 

    I would suggest some tips and tricks which worked for me, may help you...

    1. Breathing as a key: Try to breath deep which is called diaphragmatic breathing. 

    Link: https://my.clevelandclinic.org/health/articles/9445-diaphragmatic-breathing

    Results are effective from the day one and amazing results after a week of practice.

    2. Sunlight as a key: usually in winters the symptoms are more, don't miss an opportunity for even a minute of sunlight. Sun gazing for few minutes will clear the fog of the mind and cleanses the nervous system.

    3. Eating habit as a key: A bit of life style change, like mindful eating, drinking food and chewing water, sounds strange but google it for more stuff on it.

    These are the basics I follow to keep the symptoms in their limits.

    May be it helps you, try them.

    Wish you happy new year and get well soon.

     

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