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I wrote in the abdominal forum too. But I'm thinking some fibro buddies might give some insight.
I've had extreme exhaustion on and off all my life. Was diagnosed with PCOS, then Hashimotos, then Graves Disease and now most recently told that it was probably none of those things and is likely Lupus or Fibromyalgia.
In Feb I had campylobacter and landed in hospital for 5 days. I have experienced chronic pain all over my body since then. GP decided it was either lupus (liver issues involving surgery where part of my liver and part of my stomach was removed due to extreme infection - very small part of my stomach, quite a bit of my liver and my liver is thankfully fully grown again and normal. Had no issue with my stomach until Feb). Ever since then, I have what is considered chronic constipation (I can go 8-14 days without going to the bathroom!) but I've also had extreme exhaustion, hair loss, agonising pain in my shoulders, neck and hips and morning stiffness in my knees and fingers. I also have numbness/pins and needles at least once a day in my fingers or feet. I have chronic dizzy spells where I think I'm going to faint. Paracetamol does not help at all. Neither does Ibruprofen. Codeine & Ibruprofen mix tended to help a bit with the shoulder and hip pain but not much.
GP sent me to a rhuematologist in early August. He did a range of tests and said "none of the results point to any particular disease, you have markers for a number of diseases" and is continuing to do more blood tests. In August, he said it was likely a mix-message issue with my CNS, then earlier this month said it was fibromyalgia, then the next week said he never said it was fibromyalgia (he had even written it in my GP's report so we KNOW he said it was)
Anyway, two weeks ago I started getting extreme pain (like the campylobacter pain I had in Feb) in my upper left quadrant of my abdomen (doctor said likely small bowel), and landed in the emergency room and then hospital for 4 days. CT scan did not show anything wrong. Bloods all normal. Temp occasionally low-grade fever but mostly normal. Slightly low blood pressure but nothing to worry about. Eventually got sent home with oxycontin and told to come back to see gastroenterologist if it got worse.
It got worse. Gastroscopy has been done (last Wednesday) but I don't get the results until October 13 (surely they would have told me if it was bad right?!) Told to see my rhuematologist.
Rhuematologist (who by the way I think is hopeless, he doesn't listen and won't help me!) told me that fibromyalgia NEVER affects the abdomen. He told me I just need to see my gastroenterologist and make him sort that out as it's totally separate to what's going on with my pain (which by the way he refuses to treat - I am on 5mg endep for sleep but he said take paracetamol for pain - um why?! It does NOTHING!)
Pain has now moved to my lower right quadrant (above my pelvis diagnal to my belly button) as well as the upper right quadrant.
Has anyone experienced this with Fibromyalgia?! Or do I have something on top of the fibromyalgia I now have to worry about?!?!
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