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Hi to all with fibromyalgia ,
I've been diagnosed with fibro in February this year although I've suffered with the symptoms for many years I'm now only 35 but feel about 95. My wife is a nurse and she has pushed me to go to the doctors over and over again I'm under pain management I've to have an mri scan on my shoulder on the 25 july,also acupuncture on my knees and also hydrocortizone injections on fentynol patches 50mg pregabalin 300mg,amytriptaline 50mg,citalapram 40mg.I have just been awarded higher rate mobility and lower rate care component for 18 months and to be revued after that .I have been reading all the nightmares that people have had trying to claim dla but has anyone kept updating dwp of changes to there medication and all the side effects they have .I'm really sorry for people that don't get dla buti do feel that the more you put dwp in the picture the better they will understand our problem but people must think of the ones that don't need or deserve dla you know the sort that have a blue badge that jump out of there car and walk off without any aids what so ever .I use a walking stick and a mobility scooter to get around and people look at me as if I'm taking the micky as I look fit and well but I would swoop all the pain and symptoms with them any day so my theory is keep sending letters to update your application no matter how small or big the changes are even if you experience another side effect or another pain just keep the letters flowing get a family member or a friend to write it if you can't do it but keep them in the picture as you would with an insurance claim ,keep a diary if fibro fog is bad like mine, go into depth on your application form use extra paper if you need to .that's enough of my rambling good luck to you all and may all of fibromyalgia cfs me etc make the world aware of our unfortunate condition take extra care .
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