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Fibromyalgia and heavy periods

Posted , 7 users are following.

airyfairy85
airyfairy85

Hi,

I am recently diagnosed with fibro, and over the past few months my periods have gotten heavier. This time I am getting a lot of big blood clots (day 3) and am quite alarmed. I am on holidays and don't know if I should go to the doctor (they may not do anything but tell me to wait it out). Does anyone else have experience of this? Is it a fibro thing?

Marie

0 likes, 12 replies

12 Replies

  • tiswas24537
    tiswas24537 airyfairy85

    Posted

    i suffered for 16 yrs with heavy periods and clots , needing to wear up to 3 pads at times, i was on weekly iron injections for 16yrs ,untill i could not tolerate them any more, then i had a hysterectomey, and the first signs of fibro started .

     

  • melanieb
    melanieb airyfairy85

    Posted

    I have had problems with bad nosebleeds and clots and I was diagnosed with antiphospholipid syndrome when I was diagnosed with fibro and chronic fatigue, you may have that, see your doctor about a blood test to check your clotting etc hope I haven't worried you but get it checked out 
  • Xxxxxtttttttttt
    Xxxxxtttttttttt airyfairy85

    Posted

    Hi Marie,

    how old are you? I am 46 and have suffered dreadful periods for a few years now, almost admitted once as they were coming thick and fasy, one being the size of my hand, but never really thought of it being related to fibromyalgia. They have subsided somewhat since that awful episode when I was losing a mugfull every 15 minutes, but years of suffering. I was going to have a hysterectomy but gynae persuaded me against it saying it would make my condition worse for sometime afterwards, and as I am already relatively housebound most if the time I couldnt cope with more pain. I would see a gynae when you come back and just try to enjoy your holiday for now and not worry.

    • tiswas24537
      tiswas24537 Xxxxxtttttttttt

      Posted

      your gynae was right to advise not to go ahead with the hyestorectomy

      i was stuck between a rock and a hard place , with out my iron injections i would have needed regular blood transfusions ,so i had my op in 97 and have had pain above the scar ever since , i also started with unexplained itchy rashes that covered most of my body

      and had my first bouts of ibs .

      i wish i had known about alternative medincicines

      i would have tried it for my peroid problems before going for the op

      so think very carefully . sorry to hear your mostly housebound

      i am at the moment due to this awful humidity.

       

    • Xxxxxtttttttttt
      Xxxxxtttttttttt tiswas24537

      Posted

      My mate thinks its no big deal to have the op cos its keyhole! Peoples ignorance really annoys me at times, but yeah I think he was right too. I started a course of prednisolone and have felt pretty good the last few days, even had a good walk yesterday, but only a weeks supply and my doc wont prescribe any more. I felt so good last night I was thinking I could go back to work etc, but now I know the hip pain is gonna come back with a vengeance as it always does once the steroids stop. I know its not good long term, but neither is constant pain that makes me want to take all of my oramorph, co-codamol and tramadol when it just gets too much. I am awaiting another rheumatology appt, a spine mri and a 7 day heart monitor now. Oh well I think I will have some rice pudding to cheer me up! Lol
  • doris7
    doris7 airyfairy85

    Posted

    Hi Marie,

    I used to have irregular and heavy periods before I want on the pill but it was due to polycystic ovary syndrome (I don't know if it's connected with fibromyalgia, it seems fibro quite often coincides with other autoimmunological diseases). The pill has regulated the periods and now it's much better, so maybe you should rule PCO (or other hormonal problems) out with your gynaecologist first.

    Doris

    • Xxxxxtttttttttt
      Xxxxxtttttttttt doris7

      Posted

      That sounds like good advice. Also the mirena coil is good. I had that for 4 years, no periods -brilliant! But last time they put it in wrong and I had to have it removed as it was really painful and have been put off having it again :-( but it did work wonders!
    • Xxxxxtttttttttt
      Xxxxxtttttttttt tiswas24537

      Posted

      It was like being tortured! They gave me a hysteroscopy with no sedation. It felt like someone had stuck a sharp poker up me. I felt the pain right up past my rib cage and was screaming and begging them to stop! I tried to push the nurse off me but was held down! I couldnt stop crying for hours afterwards. Even one if the nurses (there were 5 of them involved inthe procedure) said to me afterwards " I would never let anyone do that to me"! 
    • Xxxxxtttttttttt
      Xxxxxtttttttttt tiswas24537

      Posted

      I was supposed to go back and have the coil fitted under a general a few weeks ago but chickened out as the first time i had it done a few years ago, I woke up in recovery coughing up blood for an hour, was given no explation or even seen by a doctor afterwards and told by a nurse that I had stopped breathing during the operation and they had had to whip the tube out of my throat quickly!
  • doughty
    doughty airyfairy85

    Posted

    hi i sufferd with bad periods for years clots ect.. has some pollits removed last sept

    and then was diagnosed with fibro in feb this year,periods not to bad now though

    but the fibro is poo.. try to adapt hope you get sorted

    julie

  • shirley99502
    shirley99502 airyfairy85

    Posted

    I have the same i have just come back from my gps where he told me i look like im going through the menaporse  i have been given Tranexamic acid 500mg and when i have finished i have to go for tests ( i am 44 yrars old )  1 dr says im not until i am  between 48-50  so i dont know whether i coming or going as the 1 i saw today said i am going through it so if i was you hun i would get seen
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