Fibromyalgia and work
Posted , 8 users are following.
I have recently been diagnosed with fibromyalgia and CFS, this has been a blow to me and I feel quite isolated with this condition. Everytime I try to explain to people how I feel and what pain I'm going through no-one really understands. My boss at work understands because his wife suffers with the condition and rhuematoid arthritis.
My doctor is very understanding and we are trying to adapt the appropriate pain relief in order for me to go back to work.
Has anyone got any ideas?
1 like, 9 replies
Tivmeldrew
Posted
Keep going, you're important!
Best regards
sharon_1974
Posted
Lollypops
Posted
I will be receiving a phonecall from my GP tomorrow hopefully. I will mention the various medications she may try me on them. I was on slow release morphine then went to tramadol due to the drousy effect, but with tramadol I find that I have constant shakes increased.
When it was confirmed that I had fibromyalgia at the rhuematology clinic they mentioned I was low on Vitamin D so hubby decided to buy over the counter vitamins. So obviously it is a long term illness then? Is there any chance of it going away?
Thanks for your advice though it has helped, and nice to know I'm not alone
Los
Posted
Los
sammiej
Posted
Lollypops
Posted
Lollypops x
sammiej
Posted
Ewcia
Posted
I have similar situation at work. In fact i got written warning after some big misunderstanding .
Coworker went out of her way to complain about me. After speaking with my manager about my condition
and problems , my honesty turned against me . I was told that I throw fibro in peoples faces and was told that
We are not allowed to reveal our conditions to each other . I researched alot different sites only to find out that fibro employes were encouraged to talk about their conditions so coworkers could better understand.
Well, not where I work. The whole stress made fibro relapse,went back on med. leave d/ to depression and anxiety as well. So I can say I understand, how u feel.
Take care . Ewcia
julie477Knit_natter
Posted
We need a positive outlook, sort of cup half full not half empty. The pain medication for fibro that I take is nefopam with paracetamol, I also take clonazepam for restless legs,
Himalayan rock salt baths, available from west lab, on the Internet, soak in body temp water for 20 minutes before going to bed.
I have fibro for over 20 years, I'm afraid people do get fed up with us talking about it, what I have done is use a traffic light system so that I am not running through my symptoms to everyone I meet, as this tires me out and makes me feel sad, red day means I am having a bad day and need a lot of help or I cannot do anything, Amber day means I can do something's but need help, green day means I can carry out tasks, so when any one asks how I am or get up feeling worse I just say it is a red today or amber, then very feels more like helping than thinking here we go again, they can not feel our pain nor would I want them too, just their patienceand understanding. I found that this helps a great deal in helping people to understand , I then receive co-operration and support, the most important thing is pacing so that flare ups become less of a problem. Anotherimportant thing is being positive , looking at what I can do not what I can not, looking at what I have achieved in the past and feeling proud that no one can take away what I have done, and look for new thing that can be worked around or adapted to this horrible condition. I suggest that you speak to your co workers with your manager present and tell them about fibro as a group, say you are going to use traffic light system and how it works, as you don't want them to feel upset about you talking about your unfortunate health condition. Tell them that you are proud that you are still able to work, and want to get along with them and want continue in your employment with their support, that you are sorry if you have upset them by talking about fibro but you were following the advice of websites and that you really thought it was going to help you if they understood
what was wrong with you, and that you had not intended aggravate them , like you said being honest does
pay,
I have found it does hurt at first when you find out people do not understand, and that they say horrible things behind your back, the same happened to me, I was pulled before nursing officer other nursing staff said I
was just lazy, when all was explained it was much better, please try and stay positive, I'm sure you will win
them round eventually. Just remember you know you have pain and chronic fatigue does it really matter what others think so much. I hope you manage to sort things out and have better pain control
Kind regards
Fellow sufferer