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Fibromyalgia/Chronic Abdominal Pain - Could it be MS?

Posted , 4 users are following.

keeleyann
keeleyann

Hello all,

I have been suffering with Chronic Abdominal Pain, fatigue, constant constipation, muscular pain, anxiety and other symptoms that come and go.

I have had Abdominal MRIs, ultrasound, blood tests ect. And nothing ever is found. I am under gastroenterology who are treating it as functional pain. I have seen rhaumatology who said it's probably fibromyalgia and that they would see me in a year (I found most upsetting that they just brushed off). And I am under the gynecologist now too.

But...

How do I go to my GP and ask them to look into ms? I don't want to seem paranoid, but I know my body and something isn't right and I'm sick of being in pain.

0 likes, 11 replies

11 Replies

  • aggie28088
    aggie28088 keeleyann

    Posted

    Have you been tested for other auto-immune conditions, such as lupus? Have your docs ran an ANA panel? You will need a brain and spine MRI to rule out MS-- but your symptoms sounds more along the lines of another auto-immune disorders. Good luck!
    • keeleyann
      keeleyann aggie28088

      Posted

      Hello,

      I have had many blood tests so I believe I have. The reason I am wondering if I should be tested is that I have other symptoms that the doctors seem to push aside. I am having problems with circulation/numbness in my toes (they suspect raynaud's), constant shoulders and arms muscular pain, and my eyes are sensitive to light.

      I have booked an eye test on Wednesday so I'll see how that goes.

      They are putting the symptoms to fibromyalgia. But I am on 80mg of Amitriptyline a day and pain killers. I just have no where else to go. There's no more help....

  • judy43125
    judy43125 keeleyann

    Posted

    You need to remember when you go to the dr that he is working for you, it is your body and you can decide if you want to see another dr for whatever reason. If dr resists just insist
    • keeleyann
      keeleyann judy43125

      Posted

      It's not that my doctor's aren't good. But between department cuts, specialist nurse (the only professional I could contact) going on long term leave and already being on medications they'd give me. I've hit a road block.

      I'm off work again today because of horrible neck/shoulder pain. I'm going to try go go tomorrow for help. But I have no idea if they'll listen to me about seeing a neurologist. It's the last thing I can try, other than helping myself.

  • tony06571
    tony06571 keeleyann

    Posted

    I am very interested in your symptoms, i feel like it was written by myself. Along with everything you said. I have extreme burning and pins and needles pain in legs. Over last few months I get numbness in my calves. The pain is worse when I lye down. I often wake from sleep in pain from my legs. I only recently started researching MS. I quit taking the meds for fibro myalgia . They did nothing but make me a zombie. I have a appointment coming with a specialist, I voiced my concerns about MS. I too was worked to go down that road , fearing I was being paranoid. But I too know something is really wrong. I'll keep you posted,please do the same. Good luck too you. And don't let fear stop you from from getting answers. No one knows your body better than you.

    • keeleyann
      keeleyann tony06571

      Posted

      Thanks for sharing your experience. I will keep you posted. I'm hoping to get a doctor's appointment today and see if they'll refer me to Naurology and see if they can help my neck/shoulder pain so I can go into work tomorrow.

    • keeleyann
      keeleyann tony06571

      Posted

      So went to my GP appointment. No referral as they don't think Naurology would see me with my symptoms. And told to do graded exercise again.

      So I'm completely broken. But somehow need to pick myself up. I am lucky to have a partner who wants to help me get better, but we don't always agree on what's best.

  • keeleyann
    keeleyann

    Posted

    Also I wonder if anyone else has had this strange symptom. I also find it difficult to urinate. I have to really concentrate and relax before. Anyone else had this?
    • tony06571
      tony06571 keeleyann

      Posted

      I do know by researching, bladder issues are associated with MS. Mine is a little different I have a severe urge too go in middle of the night and when I finally get up bladder was not nearly full. However, one thing I read over and over is ,how everyone's symptoms vary. There are many symptoms that I didn't talk to my Dr about , and as I have been researching, it seems they are all connected. And they are so drastically different I never brought it up or ever considered them too be connected. I think there is such a thing as to much internet and researching as everything has a diagnosis. But it can be useful with a open mind and not self diagnosing. Try and stay positive, I know it can be very frustrating and painful. The Dr See's us for a few minutes, we live with this 24/7. So do your best to write everything down and try and help them connect the dots. Because there not the ones living it and are getting paid no matter what. Good luck.

    • keeleyann
      keeleyann tony06571

      Posted

      Thanks for the message. Honestly I don't know what to do anymore. I work 10 hour days 4 days a week at a desk. And they are killing me. I can't seem to get a balance on my pain medication, I have waves where they make me nauseous and dizzy yet I've been on this dose for a couple of months. I don't get as bad a reaction when I can be still/lay down, but it's not a choice at work.... Anyway I just seem to be moaning.

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