1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Fibromyalgia diagnosis

Posted , 9 users are following.

cat61777
cat61777

What frustrates me is those who claim they have fibromyalgia and have gone through tests, including pressure points and show that they don’t have fibromyalgia. But claim they do?, I feel as if the doctors should help those who are suffering from something as they are in pain but this is the problem and why fibromyalgia suffers get frustrated, if you had fibromyalgia you wouldn’t want to wish it on your worst enemy and if all tests are clear surly you would be relieved that you don’t have the condition and look at other conditions that could be the problem. 

0 likes, 26 replies

26 Replies

Prev
  • Tannersnan
    Tannersnan cat61777

    Posted

    Hello cat I am not sure what you mean by your statement but there is NO FULL PROOF TESTS for fybromialgia I am convinced that many of us are told we have it because doctors aren't sure what we have, I have been told I either have lymes or fybromialgia after many tests and doctors.

    • cat61777
      cat61777 Tannersnan

      Posted

      It’s more for those who have had a diagnosis from a rheumatologist not a doctor, this is like saying those who who have been diagnosed haven’t really got fibromyalgia?. I have both fibromyalgia and endometriosis so yes it can be confusing but my consultants and specialists say that fibromyalgia is a real thing and is a fault with the central nervous system that creates our pain paths, think the frustration is those who have a diagnosis feel frustrated with those who phob them off or claim they have fibromyalgia without seeing a specialist. 
    • carol_60923
      carol_60923 Tannersnan

      Posted

      My doctor said I have fibromyalgia. Sent me to physio they sending me for a mri scan. The physio done points said I have 16. I have today had gabapentine increased to 2000 a day with 4 nortriplin also strongest dose of co codamol.  I have told him trying to work with all the medication and pain is awful, then he said how come you haven’t been referred to a rheumatologist as if I would know. I’m glad I’m getting referred it’s like they have done everything back to front. Same examinations all the time which I have said I can’t have the reflex one on the knees and stuff as my hole body aches and pains terrible after it. Sick of getting passed around with no proper diagnosis. 
    • cat61777
      cat61777 carol_60923

      Posted

      Sounds very frustrating carol and hope you get the answers with the rheumatologist x
  • katishma
    katishma cat61777

    Posted

    What makes me furious is people that claim to have fibromyalga or given diagnosis by a doctor that clearly doesn't have a clue, looking down or judging those of us that struggle with the pain and yet aren't able to work.

    I know two other ladies (besides my mother) that claim to have fibro. The one has told several times that tried Gabapentin doctor gave and it made her feel funny so not taking it. Says she just uses bio freeze and deals with it. She is out gardening and canning oh and fixing for the freezer. 

    Acts as though am lieing or faking all my problems.

    The other lady is older and has arthritis. Her doctor says she has polymyalga and fibromyalga. Takes Tramadol,  Gabapentin and just 3months ago added Lyrica along with other meds for cholesterol, high bp, thyroid and .....

    She is barely able to brush her hair and get dressed by herself. 

    This lady treats you as though lieing because aren't as bad as she is. (side note: was just hospitalized for blood clot in arm and series of mini strokes.)

  • cat61777
    cat61777

    Posted

    I have had various operations to remove endo from my bowels, bladder, woman, ovaries extra but don’t want a hysterectomy as of yet as no children and under the age of 38,  before my diagnosis they thought I had viral arthritis and I lost 3 stone in weight after a bite in my ear, was tested by every specialist and doctor as I wasn’t good, once things calmed down then then thought I had colitis but I had severe endo so the bowel symptoms was endo sticking to my bowels, seen rheumatologists, neurologists and loads of tests and was diagnosed with fibromyalgia, my dad had fibromyalgia and was addicted to pain meds. 
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.