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Hi all. Hope this finds you well. Up till now I have been doing some posting to the Sjögrens Syndrome community. However turns out I did not get that diagnosis. Very recently I had testing for that. Blood test and then the lip biopsy. Both turned out negative.
I am male, age 44. I was diagnosed with fibro about 20 years ago. I have however had many good years since then. 2 years ago i started crossfit even. Was in the best shape of my life.
Then this summer in July i began to get a dry sore tongue. Had never ever had anything like this. Mouth dryness became worse and worse. Now its to the point where I have got my first dose of Salagen to start creating saliva. Talking has been difficult unless I have gum or something to moisten my mouth. Saliva is clearly much much less. Has been extremely hard mentally and physically.
I would like to know how many of you may deal with something similar. What scares me is that this has just gotten worse and almost 4 months. Which makes me think this is no flare. Usually they come and go with any other symptom I have had. This is different. Never had a symptom like this before but reading on the net I see that there does seem to be people out there with fibro who suffer from dry mouth.
I guess I keep praying that this is only temporary but the fact that it has been going on for this amount of time really freaks me out. Originally i had thought maybe it was down to stress. Sore mouth, sore tongue, dry sore lips, dry throat at times and bit of burning in my nasal passages. Does this resonate with anyone on here. Have you been through something similar? Thank you very much for your any comments.
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