Fibromyalgia driving me crazy

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Hello all! I was diagnosed with Fibromyalgia on Tuesday and believe me having a name is satisfying because I was really thinking I needed to be committed somewhere... Memory loss and fybro fog oh Lord it's crazy and exhaustion my husband thought I was lazy (I know he did). Thought I had some obsession with my bed... But to be honest I am his carer and after to seeing to him I had to rest straight away I am really bad after any task... I fully run our home on my own have done since day one and he was medically retired in 2009 and fully depends on me... But I struggle with my health and have other health issues.. But this finally rheumatology put a name to it they are still looking for lupus because some of my blood tests were questionable but they have discharged me to the gp to control the Fibromyalgia..

I need to know what I should do.? Can I get financial help if I stop caring for my husband and get him a home help carer.. I really can't cope with him and this plus everything else..

Just a advice and I will be grateful..

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16 Replies

  • Posted

    Go to citizens advice bureau and explain your circumstances. Take with you any financial paperwork you have. They are great at filling in forms and giving you up to date advice. Hope this helps. Y x
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  • Posted

    Once you have a Fibromyalgia diagnosis you can apply for both ESA and PIPS . Try and gather up as much medical evidence about you and your husband as possible and describe clearly how both your conditions affect you daily. Good luck . I have had Fibromyalgia for over ten years and have two young sons to look after , alone  and it is really tough but I just go from day to day and try to rest as much as possible. Due to shoulder surgery I am off work at the moment. 
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    • Posted

      Thanks and I will take your advice hard wrapping your head around it...Really frightens me because a friend of my husband ended up in a wheelchair.. Hoping that is not common... But i will get started because my head forgets everything even my boys name... I live via notepads..

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  • Posted

    Hi Mavis,

    So sorry...what country are you in?

    If USA, what state?

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  • Posted

    Hi Mavis.

    Hope you get better. I'm.going through same thing as you and myour doctor has suggested it's Fibromyagia but still investigating to check it's not another Rheumatological issue.

    I'm currently on amiprityline to see how it goes.

    Finding it difficult to type and write me work report now. My arms are always in pain. Also affecting my driving too. All this now taking toll on my work life.

    Would like to know what to do and how to manage life with this pains.

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    • Posted

      Hi Tbay

      I am on Naproxen and co-cocodamal because of other health issues osteoarthritis for 1. But I have no idea what meds I will be in the end. Like you I struggle with everything but the worst part is waking up every hour or two each night. I am so exhausted it's terrible... 😥😖😴

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    • Posted

      I should of said too that my rheumatologist is doing a second batch of blood tests to confirm or rule out other conditions.. Hope we all get sorted and find some sort resolution to this condition..

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  • Posted

    Everybody! Ok had my letter finally from rheumatology and I don't know what to say but I will share what He said.

    I was pleased to see Mai (my full name) in Rheumatology clinic today who still noticing Myalgia and Arthralgia with poor sleep and she is not refreshed in the morning. She had 18/18 tender points of Fibromyalgia for which I gave her the ARUK leaflet on Fibromyalgia and discussed the significance of graded exercise, sleep hygiene, and pacing technique. Could you kindly commence Amitripline 25mg increasing gradually to 75mg nocte.

    if she cannot tolerate Amitripline then the other option is Duloxetine,Gabapentin, or Pregablin. If all fail then you may refer her to Pain management programme. Her Inflammatory markers have risen it is not clear to me why they have been high since 2011 but it is not any rheumatological cause for this. He also states I will get physiotherapy for my arms.... So at last I can get some medication just got to get a appointment first... If my gps are doing there jobs they should approach me now.. As I have had two gp appointments and been to wait for rheumatologists confirmation.... So I am mentally relieved but I am still fighting this virus which has set off a asthma flare up... Upwards and onwards has my son says with a huge hug... I love my boys and I am very blessed they love and care for me.. My eldest is putting all the xmas trimmings up for us tomorrow so sweet.. I need to get a little better I have so much shopping to do. So much behind for christmas.. Got a get move or get me a secret santa.... Any input on the dr's info I will be grateful , I'm thinking it all clearly stated. I so gotta google some info naughty me but I'm not as clever as before.....

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  • Posted

    Lyrica is pregabalin

    Neurotin is gabapentin

    amitriptyline is fairly standard for fibromyalgia...just watch that you urinate regularly.

    Duloxitine is Cymbalta

    Cymbalta is the only one I have not taken. For me, Lyrica is best.

    Merry Christmas

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