Fibromyalgia - feeling low
Posted , 7 users are following.
I was told a month ago I had fibromyalgia after several months of tests, and 12 years of tiredness after having glandular fever. I'm now 30, have a 4 year old son and I think it's just hit me. I struggle most days and rely on my partner to help with our son more than I want, as I get tired and sore easily.
We want another child and I simply don't know how I will manage.
I'm very emotional now and feel I'm failing in a lot of areas of my life due to feeling so tired and suffer with my joints.
Do others feel this way?
1 like, 14 replies
bronwyn97278 katharine81627
Posted
There is not a lot that any of us can say to make you well again, but if I tell you what I have done/do, it may make it easier to help yourself, as I feel this is all that can be done "help ourselves".....
If you havn't already found yourself a Good Rhuematologist, do so immediately....research the net for one who Understands Fibro...ask around amongst your local community. Hoping that you are prepared to take the appropriate medications that will help with your pain (I have found Amitriptyline to be the best...and also helps with our emotions)....for the Joint Pain, there a few alternatives, from hotpacks to gels, and anti-inflammatories..(I use Voltren with Pariet to protect my gut lining; and A Dencorub with Aspirin-like pain relief in gel form for joints)...I also ensure that I have either Physio or a Remedial Massage regularly, as this is necessary to keep my muscles "loose", and follow through with some Very Gentle Exercises....the ones that are taught by Pilates. I can also understand how you feel re your husband having to do what you feel is your Share of the household/baby needs....but if you push yourself to do these things, you will only have to pay the price a few days later....our body Just does not like us to overwork itself...I'm not sure of your financial situation, but I do feel that if you could afford (or talk to a Social Worker) to find someone to do a few hours a week to help with the cleaning etc, then you maybe able to spend those Precious hours with your husband and bub...always remebering that any major Stressor, will make you worse....I have been unwell for 20+ years, and have learn't that with each new stressor, another part of my body becomes afffected....Most of us have also felt that supplements play a big role too....Magnesium, Epsom Salts Baths (not too hot, as the heat is an exacerbator), and I also take Berroca dissolved in my Water Bottle, as it contains Many vitamins that help my immunity, and give that extra bit of oomph.......I am sorry, as I have said, that you are having to go through this, and I really hope that now this condition is becoming more Recognized, that New treatments will be found, and that you will be lucky and can get some quality of life.......keep inputting onto this site, as many others will give you the support that you need......Hear from you soon
with a gentle hug from over the net/ocean..............Bron
sharon53053 katharine81627
Posted
christine26761 katharine81627
Posted
bronwyn97278 katharine81627
Posted
Mace223 katharine81627
Posted
Like others on this site it helps to know you have people out there that understand what you are feeling. I am very glad I found this site. When I am struggling I know I have some one who will help.
I hope you find this site helpful too.
I feel like I have lots of new friends.
I thank you all for your support. Hugs to everyone x
katharine81627
Posted
5bronwyn - I've had an ok day today, it the wall as I call it and had to rest but pleased I managed to be out and about with the family a lot of the day.
As others I suspect, I have better days than others, and returning to work this week for the first time in 5 months was definitely a struggle.
I've started today back taking some aloe products that I had to take some time ago so will let you know if I find they help!
Many thanks again, it sounds like some of you have replied from America!!! Wow thank you
bronwyn97278 katharine81627
Posted
katharine81627 bronwyn97278
Posted
Many thanks again
Maggers katharine81627
Posted
I echo what has already been said by the fellow fibro folk. You are still coming to terms with your"label". Be kind to yourself. Learn to say "no" to anything you feel will leave you exhausted. My colleagues understand I cannot join them on evenings out not because I do not want to but because I would be fit for nothing the following day or possibly week afterwards. Explained the right way they will understand. No is the hardest word. I took ages to learn but feel I have to use it to preserve my own sanity. I use various supplements, alternative therapies. As everyone's fibro is different it is a case of trial and error to find out what works for you. Chin up - there is always help and a listening ear on these boards.
Take care
sharon04040 katharine81627
Posted
katharine81627 sharon04040
Posted
kaz_40 katharine81627
Posted
katharine81627 kaz_40
Posted
kaz_40 katharine81627
Posted