Fibromyalgia - feeling low

Posted , 7 users are following.

I was told a month ago I had fibromyalgia after several months of tests, and 12 years of tiredness after having glandular fever. I'm now 30, have a 4 year old son and I think it's just hit me. I struggle most days and rely on my partner to help with our son more than I want, as I get tired and sore easily.

We want another child and I simply don't know how I will manage.

I'm very emotional now and feel I'm failing in a lot of areas of my life due to feeling so tired and suffer with my joints.

Do others feel this way?

1 like, 14 replies

14 Replies

  • Posted

    Hi katharine;  yes, I'm sorry to have to say so, and I am terribly sorry that you have to endure this condition as you are too young, with which should be a case of being at your Peak in life.   I, too, as do many others, feel our life has been taken from us....from the Inside, and so little is known about Fibro (and usually the Chronic Fatigue that comes with Fibro)

         There is not a lot that any of us can say to make you well again, but if I tell you what I have done/do, it may make it easier to help yourself, as I feel this is all that can be done    "help ourselves".....

       If you havn't already found yourself a Good Rhuematologist, do so immediately....research the net for one who Understands Fibro...ask around amongst your local community.   Hoping that you are prepared to take the appropriate medications that will help with your pain  (I have found Amitriptyline to be the best...and also helps with our emotions)....for the Joint Pain, there a few alternatives, from hotpacks to gels, and anti-inflammatories..(I use Voltren with Pariet to protect my gut lining; and A Dencorub with Aspirin-like pain relief in gel form for joints)...I also ensure that I have either Physio or a Remedial Massage regularly, as this is necessary to keep my muscles "loose", and follow through with some Very Gentle Exercises....the ones that are taught by Pilates.   I can also understand how you feel re your husband having to do what you feel is your Share of the household/baby needs....but if you push yourself to do these things, you will only have to pay the price a few days later....our body Just does not like us to overwork itself...I'm not sure of your financial situation, but I do feel that if you could afford (or talk to a Social Worker) to find someone to do a few hours a week to help with the cleaning etc, then you maybe able to spend those Precious hours with your husband and bub...always remebering that any major Stressor, will make you worse....I have been unwell for 20+ years, and have learn't that with each new stressor, another part of my body becomes afffected....Most of us have also felt that supplements play a big role too....Magnesium, Epsom Salts Baths (not too hot, as the heat is an exacerbator), and I also take Berroca dissolved in my Water Bottle, as it contains Many vitamins that help my immunity, and give that extra bit of oomph.......I am sorry, as I have said, that you are having to go through this, and I really hope that now this condition is becoming more Recognized, that New treatments will be found, and that you will be lucky and can get some quality of life.......keep inputting onto this site, as many others will give you the support that you need......Hear from you soonsurprised with a gentle hug from over the net/ocean..............Bron

  • Posted

    Hi Katherine, I would like to add my support to the reply you have received from Bron. We must be aware of what our body is telling us, or allowing us, to do. There is no one thing that works. Initially it is a case of 'trial & error' but you will get to know what works for you, and what doesn't ! I have particular issue with my neck and shoulders, I have learned to always carry a scarf in my handbag, in the summer I use silk or linen, in the winter wool or a wool mix. I am fairly new to this site but I am finding it invaluable so yes do keep in touch via here. Good luck to you.
  • Posted

    Hiya Katherine, gentle hugs to you fom over the seas, really feeling for you...I remember it well but not quite as young as you...agree with Bronwyn..just keep on blogging, we are all here to help and encourage eachiother especially in the rough times...but as Bronwyn said..the importance of a good Rhumotologist....try really hard to be as stress free as you can....stressless is the jey to living with Fibro..be blessed. have a lovely day...:-) xxxwink
  • Posted

    Evening Katharine;  just "checking in".....wondering how your day has been since we last spoke?..Im'  pleased that you have received others' support, it is what keeps us going........just remember to take each day as it comes, and take it slowly with your emotions, as I really believe that they are our Main Issues......please reply and let us know how you are going/getting through each day....the early stages are "hard" , but remember that we are all here to help you through...there are so many on this forum who have been through the "trial and errors", and it will make it easier for you by reading everyone's replies, and trialing their suggestions.               Hoping that we can help, and you are with us, as we are with you on your journey............wink  (I love these faces, they bring that smile to me, as I hope they do to you).......Bron
  • Posted

    Hi Katharine

    Like others on this site it helps to know you have people out there that understand what you are feeling. I am very glad I found this site. When I am struggling I know I have some one who will help.

    I hope you find this site helpful too.

    I feel like I have lots of new friends.

    I thank you all for your support. Hugs to everyone x

  • Posted

    Wow I cannot believe what lovely words of support I've had! Thank you so much to each one of you who has taken the time to share and send words of encouragement.

    5bronwyn - I've had an ok day today, it the wall as I call it and had to rest but pleased I managed to be out and about with the family a lot of the day.

    As others I suspect, I have better days than others, and returning to work this week for the first time in 5 months was definitely a struggle.

    I've started today back taking some aloe products that I had to take some time ago so will let you know if I find they help!

    Many thanks again, it sounds like some of you have replied from America!!! Wow thank you

    • Posted

      Hi Katharine....pleased to hear that you enjoyed your day with family...these days are very important in keeping our sanity...even if we have to take it slower for awhile....will be waiting to see how your day at work went....but remember, rest and look after yourself when you get home (even if it means playing with bub on the floor and you just lying with bub, while bub plays with toys)......also I am from Australia, although there are some on this site from America...and all over....to me it's gaining Penpals again...........cheery smile....Bron
    • Posted

      Hello Bron - many thanks for your kind words. I was overwhelmed when I saw so many people had responded to my post, and when ready yours I shed a tear or two. It's amazing that we are able to communicate with people from around the world, who are experiencing the same and are the only few who can truly appreciate what we are experiencing and the emotions we feel.

      Many thanks again

  • Posted

    Hi Katerine

    I echo what has already been said by the  fellow fibro folk.   You are still coming to terms with your"label".  Be kind to yourself. Learn to say "no" to anything you feel will leave you exhausted.  My colleagues understand I cannot join them on evenings out not because I do not want to but because I would be fit for nothing the following day or possibly week afterwards.  Explained the right way they will understand.  No is the hardest word. I took ages to learn but feel I have to use it to preserve my own sanity.   I use various supplements, alternative therapies. As everyone's fibro is different it is a case of trial and error to find out what works for you.  Chin up - there is always help and a listening ear on these boards.

    Take care

  • Posted

    Hi katherine, having something like this is very hard to digest especially at your age being so young and with a young family. you will feel that there is nowhere to turn and everything is a blur at first and as you digest one thing be prepared for something else, try and pace yourself and involve your husband, friends and family around you if they understand your illness that will be a massive help in your journey xx hugs
    • Posted

      Many thanks for your kind words. I'm trying to get a balance between pushing myself enough so I'm not say all day, to also not being so active that I suffer for it the following days. Having put a stone on over the last 5 months I really feel uncomfortable in myself due to how my body is to look at, and also how it reacts. I suffer badly with the trigger points in my back so cannot do lots of play with my son which is horrible and heartbreaking but I really want to turn this around and actually be active and feel good about myself again x
  • Posted

    Hi katharine try not to be hard on yourself, none of us want this condition or asked for it hun. any one that has fibro and children to look after I dont know how they do it. it  is a very hard condition to cope with it. it throws so many symptoms at you. I have ME fibro and other conditions. It took from 2004 to 2014 to get a diagnoses. Im so thankful for this site as 2 weeks ago I was at a very low eb and to be honest just felt like I didnt want to carry on any longer I was so fed up with the pain and other worries I have going on in my life. finding this site has been a god send as the girls on here are great we all try help support each other. as the only people that truly understand fibro is those that have it. My advice is research fibro as much as you can. get as much help support advice as you can. your dr will help with pain relief and may refer you to a pain clinic. its trial error with most pain meds. its what helps you what doesnt. sleep is very important if you can sleep I have trouble not being able to sleep. we go through all different symptoms  and emotions with fibro. we grieve for the person we use to be we can feel useless as we cant do the things we use to do. we have to learn to pace ourselves where I use to be able to do all my house work in a day do 2 jobs take the dog for long walks I can no longer do. I feel quilty for what my husband has to do and the fact he has to take care of me. help with showering dressing push me in a wheel chair when out. I would love to wake up and feel normal again and have m life back. but all we can do is take each day at a time get as much help support as we can. us ladies on here try support each other all we can we are all in this togeather your not alone. take care gentle hugs 
    • Posted

      Hello - sorry for the delay in replying to you. I've been on holiday so not had access to respond. So sorry to hear of how low you had become. I'm glad you have found this site and this has picked you up! It's amazing how knowing others are feeling the same and that actually we are all in the same boat helps pick us up. Keep staying strong and positive and don't ever feel alone. We are all here. Take care
    • Posted

      Hi Katherine Hope you had a good holiday and a restful one. Before joining the forum I was very very low didnt feel I could carry on any longer. I happened to stumble across this site Im so glad I did its been a god send to me. being able to talk to people that are in the same position as you and who understand how you feel what your going through. Its helped me no end. take care smile

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