Fibromyalgia - feeling low

Hi katharine;  yes, I'm sorry to have to say so, and I am terribly sorry that you have to endure this condition as you are too young, with which should be a case of being at your Peak in life.   I, too, as do many others, feel our life has been taken from us....from the Inside, and so little is known about Fibro (and usually the Chronic Fatigue that comes with Fibro)

     There is not a lot that any of us can say to make you well again, but if I tell you what I have done/do, it may make it easier to help yourself, as I feel this is all that can be done    "help ourselves".....

   If you havn't already found yourself a Good Rhuematologist, do so immediately....research the net for one who Understands Fibro...ask around amongst your local community.   Hoping that you are prepared to take the appropriate medications that will help with your pain  (I have found Amitriptyline to be the best...and also helps with our emotions)....for the Joint Pain, there a few alternatives, from hotpacks to gels, and anti-inflammatories..(I use Voltren with Pariet to protect my gut lining; and A Dencorub with Aspirin-like pain relief in gel form for joints)...I also ensure that I have either Physio or a Remedial Massage regularly, as this is necessary to keep my muscles "loose", and follow through with some Very Gentle Exercises....the ones that are taught by Pilates.   I can also understand how you feel re your husband having to do what you feel is your Share of the household/baby needs....but if you push yourself to do these things, you will only have to pay the price a few days later....our body Just does not like us to overwork itself...I'm not sure of your financial situation, but I do feel that if you could afford (or talk to a Social Worker) to find someone to do a few hours a week to help with the cleaning etc, then you maybe able to spend those Precious hours with your husband and bub...always remebering that any major Stressor, will make you worse....I have been unwell for 20+ years, and have learn't that with each new stressor, another part of my body becomes afffected....Most of us have also felt that supplements play a big role too....Magnesium, Epsom Salts Baths (not too hot, as the heat is an exacerbator), and I also take Berroca dissolved in my Water Bottle, as it contains Many vitamins that help my immunity, and give that extra bit of oomph.......I am sorry, as I have said, that you are having to go through this, and I really hope that now this condition is becoming more Recognized, that New treatments will be found, and that you will be lucky and can get some quality of life.......keep inputting onto this site, as many others will give you the support that you need......Hear from you soon with a gentle hug from over the net/ocean..............Bron

Hi Katherine, I would like to add my support to the reply you have received from Bron. We must be aware of what our body is telling us, or allowing us, to do. There is no one thing that works. Initially it is a case of 'trial & error' but you will get to know what works for you, and what doesn't ! I have particular issue with my neck and shoulders, I have learned to always carry a scarf in my handbag, in the summer I use silk or linen, in the winter wool or a wool mix. I am fairly new to this site but I am finding it invaluable so yes do keep in touch via here. Good luck to you.

Hiya Katherine, gentle hugs to you fom over the seas, really feeling for you...I remember it well but not quite as young as you...agree with Bronwyn..just keep on blogging, we are all here to help and encourage eachiother especially in the rough times...but as Bronwyn said..the importance of a good Rhumotologist....try really hard to be as stress free as you can....stressless is the jey to living with Fibro..be blessed. have a lovely day...:-) xxx

Evening Katharine;  just "checking in".....wondering how your day has been since we last spoke?..Im'  pleased that you have received others' support, it is what keeps us going........just remember to take each day as it comes, and take it slowly with your emotions, as I really believe that they are our Main Issues......please reply and let us know how you are going/getting through each day....the early stages are "hard" , but remember that we are all here to help you through...there are so many on this forum who have been through the "trial and errors", and it will make it easier for you by reading everyone's replies, and trialing their suggestions.               Hoping that we can help, and you are with us, as we are with you on your journey............  (I love these faces, they bring that smile to me, as I hope they do to you).......Bron

Hi Katharine

Like others on this site it helps to know you have people out there that understand what you are feeling. I am very glad I found this site. When I am struggling I know I have some one who will help.

I hope you find this site helpful too.

I feel like I have lots of new friends.

I thank you all for your support. Hugs to everyone x

Wow I cannot believe what lovely words of support I've had! Thank you so much to each one of you who has taken the time to share and send words of encouragement.

5bronwyn - I've had an ok day today, it the wall as I call it and had to rest but pleased I managed to be out and about with the family a lot of the day.

As others I suspect, I have better days than others, and returning to work this week for the first time in 5 months was definitely a struggle.

I've started today back taking some aloe products that I had to take some time ago so will let you know if I find they help!

Many thanks again, it sounds like some of you have replied from America!!! Wow thank you

Hi Katerine

I echo what has already been said by the  fellow fibro folk.   You are still coming to terms with your"label".  Be kind to yourself. Learn to say "no" to anything you feel will leave you exhausted.  My colleagues understand I cannot join them on evenings out not because I do not want to but because I would be fit for nothing the following day or possibly week afterwards.  Explained the right way they will understand.  No is the hardest word. I took ages to learn but feel I have to use it to preserve my own sanity.   I use various supplements, alternative therapies. As everyone's fibro is different it is a case of trial and error to find out what works for you.  Chin up - there is always help and a listening ear on these boards.

Take care

Hi katherine, having something like this is very hard to digest especially at your age being so young and with a young family. you will feel that there is nowhere to turn and everything is a blur at first and as you digest one thing be prepared for something else, try and pace yourself and involve your husband, friends and family around you if they understand your illness that will be a massive help in your journey xx hugs

Hi katharine try not to be hard on yourself, none of us want this condition or asked for it hun. any one that has fibro and children to look after I dont know how they do it. it  is a very hard condition to cope with it. it throws so many symptoms at you. I have ME fibro and other conditions. It took from 2004 to 2014 to get a diagnoses. Im so thankful for this site as 2 weeks ago I was at a very low eb and to be honest just felt like I didnt want to carry on any longer I was so fed up with the pain and other worries I have going on in my life. finding this site has been a god send as the girls on here are great we all try help support each other. as the only people that truly understand fibro is those that have it. My advice is research fibro as much as you can. get as much help support advice as you can. your dr will help with pain relief and may refer you to a pain clinic. its trial error with most pain meds. its what helps you what doesnt. sleep is very important if you can sleep I have trouble not being able to sleep. we go through all different symptoms  and emotions with fibro. we grieve for the person we use to be we can feel useless as we cant do the things we use to do. we have to learn to pace ourselves where I use to be able to do all my house work in a day do 2 jobs take the dog for long walks I can no longer do. I feel quilty for what my husband has to do and the fact he has to take care of me. help with showering dressing push me in a wheel chair when out. I would love to wake up and feel normal again and have m life back. but all we can do is take each day at a time get as much help support as we can. us ladies on here try support each other all we can we are all in this togeather your not alone. take care gentle hugs