Fibromyalgia finding it awkward to sit and lie diwn

Posted , 3 users are following.

hi

Anyone finding it difficult  to sit and lie with comfort, I find it more comfortable to stand, but then can only do so for a short time, before feeling fatigued.Anyone using aids to help.

Pat

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22 Replies

  • Posted

    hi i am excatly the same if i sit with my legs up for to long my hips become stiff, and my back sore .if i sit with my feet on the floor say at a table or desk ,my bum and legs go numb,

    better for standing and moviing around , but like you said then you get fagtied , its so agraviting, i would rather die than use aids thats me personaly i am very stuborn, i even hate using my walking stick , because it makes me feel old and vunerable which i am not, makes me feel like a walking target if i am in town .

    i often think that i wished i had one of those rest boards that actresses used to use between scenes so there dresses didnt become  creased , in the 1930s 40s

    it was a  board body height with a kinda of shelf to stand on and it leaned backwards slightly so you were of your feet and resting but not sitting .

    sounds great to me wish i knew someone who would make me one.

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    • Posted

      I am feeling really emotional today,  must be the antibiotics I finished last week, could cry at the drop of a hat., which is making my fibromyalgia  and anxiety worse.

      i wish some days I would never wake up, but there you are again ready for a another day of the same, even my relaxation and hypnosis tapes are not doing the trick at the moment. 

      My support team is non existant having to chase them up, just when I need them most. I am sure thus fibro gives you depression.

      sorry about the moan.

      how are you, how do you keep your pain level down to 4, and how is the pain in your under your ribs, have you been to the Doctors yet?.

      Pat

       

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    • Posted

      nope i am still getting round to it.

      i hate siting in surgeries so many germs in there i dont like running the risk of picking anything up.

      il get round to it i need my check up make sure nothing eles is being hidden by the fibro,

      i keep my pain down to around 4 most days.

      but the last few days iv been run down and my neck glands have been swollen and i felt real rubbish . picking up now thou, iv gone back on my colloidal gold i think thats helped. 

      i put up with the pain for about 6yrs before i even knew i was ill i thought i was just mad,

      so once i found out was wrong and looked at whats on offer  i thought iv coped for 6yrs with out might as well continue as i am ,

      then i started looking in to alternatives for pain relief and supplements

      so i went down that route ,and i shall stay on that route ,

      aslong as it works , no point me bombarding my body with toxic chemicals putting a strain on the liver ,unless i have to .

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  • Posted

    Hi..me too I am up and down  like a yoyo. When the pain is bad I go for a walk around the garden weather permitting. As for bed time I get pain in my hips so hence unable to sleep much, I feel so fatigued..
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  • Posted

    do you have a mattress topper on your bed .
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    • Posted

      oh god yes i would be a wake all night with  out it .

      memory foam is terriable its hot and goes flat and hard ..

      i got one from an ebay seller i sleep alone so i just got  asingle one

      about £33 ,its 4 inches thick hotel quality slight seconds its so cosy .

        

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    • Posted

      i brought from ebay seller . price for a 4inch thick single mattress topper £33.99, cotton cover not sure about filling but its soft and not to warm . makes abig diferance to my bed , my bed cost £1000 hand made supposed to be medium sprung still to hard .
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    • Posted

      well something is its been years since iv slept in bed all night with out having to get up and sleep in the chair. but i am also taking homeopathic remedies  as well maybe its the combination .

      i think your bennifit from the topper

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    • Posted

      IV BROUGHT MANY SOME REALLY GOOD SOME NOT SO, ITS TRIAL AND ERROR.  I AM LOOKING INTO BUYING A MINDFULLNES CD FROM EBAY AS IT SEEMS TO BE THE IN THING AT THE MOMENT

      ABOUT LIVING IN THE PRESENT NOT THE PAST .

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    • Posted

      just go to ebay cd section and put in search for mindfullness several will come up they verey in price from differant sellers [ same cd ] so look carefully. if i remember i will look up the item number and get back to u.
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    • Posted

      Found that one you mentioned, but I want one for beginners, don't know about the yoga poses, and it's from the USA.

      She Has got for beginners on as well, might go for that.

      They have quite a few on Amazon as well

       

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    • Posted

      i copied the wrong one down , there are several others on there to some from the states and australia  to expensive with import tax ,

      the cheapest uk one was from norfolk £5.99 others on there were from uk as well but around £10. i read it as its a relaxation cd but i get what your saying with the mention of yoga its a bit confusing.

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    • Posted

      I think mindfulness is a bit more challenging, but great I should imagine if you can master it or get into it, I think it is a bit more about your breathing control which I find quite hard to do. That's why we need a beginners cd to explain what it is all about knowing what it is like being in the here and now.

      there is one called Kindly Awareness which is about managing chronic pain and stress through mindfulness, in two minds whether to get that one.

      They sell that one on Ebay and Amazon.

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    • Posted

      oh thanks that sounds good ,i will have a look, i did send and email to the seller that i mentioned previously and they very kindly replied he said he had listened to samples on amazon and he was still not quite sure ,either .

      so its not me and my fibro fog the description isent very clear

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