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I hope there are someone out there that can help me, I am at my lowest. - So depressed, in pain 24/7. Constant leg pain, back pain, numbness and ache. Fatigued - not getting a full nights sleep, neck ache etc etc etc.. In all honesty I could go on all day about my problems. And the best bit about it - I am 21 years old, had this for almost 4 years and just want it to end, and I know that if it keeps up like this for ever then I want my life to end also.
I am tired of making constant calls to the doctor, I have a list of symptoms that seems never ending, and none of which ever improve. I have forgotten what it feels like to be 'comfortable'. And I am almost at the point where there is no more medication that can be given.
I currently take: Tramadol 50mg 2 every 4 hours. Naproxen 500mg 1 twice a day for hormone imbalance, Lyrica 100mg 1 4 times a day, Duloxetine 60mg, Zomorph 1 twice a day. Loratadine for hayfever and Buscopan.
I have been through various meds, I have try Hydrotherapy, Acupuncture, Physiotherapy, Rheumatologists and referred to the pain clinic. I saw a consultant who told me again that 'there aren't many options left' and that I will need to wean of Lyrica and then up my Duloxetine, and if that doesn't work then come of duloxetine and go onto topirimate.
I am also awaiting an MRI scan as my 'down below' is so painful, and it hurts during sex. I am urinating so frequently and always constipated. I also have gall stones but that isn't causing the pain in my pelvis area.
I had an MRI scan a couple of years ago and it shows my left disk is inflamed and compressed against a nerve. The rheumatologist has said that this isn't what is causing the pain - and I think it is, and it has definately worsened. I have seen physio and they feel this is causing extreme pain.
I am so tired, and so fed up, I can't imagine living my life with this pain. I feel like pouring my pot of Tramadol down my throat in attempt to make the pain go away.
I feel like I am kidding myself, hoping that oneday a breakthrough cure will appear, and I feel like all health professionals are concentrating on is trying to help us 'live' with the pain rather than worrying about curing it. Clearly they are scared of what they don't understand. I have worked in the NHS for 5 years and all the doctors I've worked at say similar things when I ask them about Fibromyalgia. There is no cure - And it is a matter of trial and error on what works for you.
Am I missing something? Or is there something your doing that works? Is there something else I can try? Do I have any hope?
Any help would be much appreciated
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