Posted , 6 users are following.
Diagnosed three years ago but suffering 8 to 10 weeks at a time with pain no relief with any medication feeling low no end to my suffering also vitamin d difitcent some people have suggested that might be something more serious wrong with me but I have had all blood tests but they have all come back negative so if any one can help please help me
0 likes, 6 replies
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VooDooU phillip_32408
Posted
denise_97435 phillip_32408
Posted
Hello Phillip
I’ve had fibromyalgia for years and was medically diagnosed 2015. I’m in pain 24/7 I wake with pain and fall asleep when I sleep with pain. Drs are still working with me to try to take the edge off so I know what you are going through. I went to Emory University where amongst other things I’m Vit D deficiency and take otc vit d tablets I’m 48 and dr said this is not uncommon for my age. My bone density was overall fine . So it’s good everything thus far is negative. I have tried so many things and meds with very limited results but I try to remain positive so what I can do I do and that I can’t do I don’t. Take one day at a time and keep sharing here this site is so helpful. Big hugs 🤗 to you.
nancy27623 phillip_32408
Posted
Most of you writing in are young people with new diagnosis. And you want a way to live with this pain that will allow you the full life you planned. In my case, I was diagnosed when FMS wasn't recognized as a diagnosis in 1999. And life has not been easy but until of late, I worked everyday but because I couldn't work 9-5, I started my own business and worked when I could. My clients were pleased with my work and rates and so it worked out great for me. My pain level has been more constant as I've grown older and seems more intense. I am in so much pain right now that I can hardly bear my legs. Over the years I've been diagnosed with Graves Disease, Arthritis, Heart Disease etc , But based on all I read, the underlying issue that interrupts my life the most is FMS.
Lyrica caused my blood pressure to bottom and I passed out and ended up with a bruised face so I leave it alone. But others say if it helps with the pain, I'll take my risk. I'm Vitamin D deficient also. I've read of several in these discussions that are. Maybe that's a by product of FMS? Which we could do a simple unauthorized survey of those on this website and see how many get tested and how many are deficient. Right now I take an injection once a month for the Vit D deficiency but I'm still worn out. I wish you well. Surely one day someone will get active in researching FMS (the disease someone told me won't kill you; it just makes you wish you were dead) I frankly after all this time have more questions than answers.
VooDooU nancy27623
Posted
Flutterbie57 phillip_32408
Posted
Hello Phillip,I do remember the early days of Fibro, always looking for relief or a medical answer for my pain/problems. Someone pulled me up one day and told me to stop looking to others for answers ,accept the cards I had been dealt, and to concentrate on trying to alter my life so as not to put myself through too much pain.
?I reassessed my life, changed jobs because mine created more pain for me (only computer and writing) and I did more things that I really enjoyed, just to get myself mentally in a better place. It worked.
?I have only found a few things for some relief. I go to a Chiropractor/Osteopath when I need it. Massage is a relief for a short time. A warm bath after physical work helps. I do stretches for my muscles in areas that are in pain. Physical work always brings on pain, so I usually know when I have overdone it so I take pain relief before the pain really sets in. I do not usually need a second dose . I used to wait and hope that the pain would subside by itself - it didn't - then I would have to take about 3 doses before I got relief. Pace yourself when doing physical work - it drives me mentally crazy, but I suffer less.
?I only talk to people with Fibro, about Fibro. Those who do not suffer it, do not understand it and often do not accept it.
?I check Dr Google about once a year, to see if they have come up with a miracle cure for us all.
?I have had it for years and I still have my melt down days, but I know if I keep myself mentally stimulated, it keeps my mind off my aches and pain. After awhile it becomes the new normal.
Hang in there and treat yourself more often than you used to.
dave0865 Flutterbie57
Posted
Hello... sounds like you've been on a similar journey to me, I've been going to GP's and specialists for pain and ailments most of my life if I think about it (I'm 52) with no real answers or solutions. Never been officially diagnosed with Fibro (I have most of the symptoms that people on here suffer from), as you say I try to handle my problems myself these days.. I've changed careers several times to avoid pain (though it always seems to be chasing me whatever I do!). I'm self employed so just stop and start as it suits me now (doesn't help my bank balance!). I try to stay positive by doing the small things I enjoy every few days. I currently Nordic walk in my local country park whilst listening to classical music. (find it compliments the walk whilst looking at nature!). Long hot Epson/ dead sea salt baths also work wonders for me. Have recently bought a recumbent Trike (ordinary upright bikes cause me too much pain now) which I'm looking forward to taking on some cycle trails when the weather improves! All in all the only way in my opinion to try and cope with the cards we've been dealt as you say (until a cure is found) is positive thinking, simple pleasures and have things in life to look forward to... life can be grim but but hey the sun is shining today so that's something good at least!!!