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Fibromyalgia HOT HOT HOT !!!

Posted , 8 users are following.

Bee70
Bee70

Hi All

As I have been suffering for over 20yrs with pains. When I was in my 30's I started to get hot flushes and went to see my GP as thought it could be early signs of menopause. Blood test was carried out and confirmed I was NOT at the early stages of menopause. Again now in my 40's I was still getting hot flushes but now my hands were constantly hot. As my boys tell me that I am their central heating. So again went to the GP and again had another blood test. Everything showed that I was a healthy person no concerns. Only last Aug I requested another blood test as the heat from my body was very uncomfortable. I quite enjoyed the winter months as I didn't feel the cold but was also frustrated as to why I was feeling like this. Blood test again showed all is well. So almost in my mid 40's and not going through the menopause but hot flushes, heat are also aggrevating my pains.

Does anyone else share this with me?

2 likes, 12 replies

12 Replies

  • christine26761
    christine26761 Bee70

    Posted

    Hiya Bee, yes I had shocking hot flushed...still get them sometimes, not menopausal...ive been through that years ago...it's almost the same but it's NOT..still get the flushes today......it's the Fibro..Ive had it for over 22 years now..it's my own private summer..my husband calls it..lol.   I can have it in bed or in the pool it just happens when and where at any time..I take "black cohosh " root ...helps heaps...it's all part and parcel of Fibro..unfortunately..you are not alone...have a lovely day Bee...be blessed:-) xxx
  • tiswas24537
    tiswas24537 Bee70

    Posted

    i can be burning up one minute then cold the next it drives me mad 

    some times i am so cold i go to bed under loads of covers and i am still shivering

    then othere times i am so hot my palms and feet itch and i have to fan myself like mad to cool down ,

    i find summer a nigth mare esp last year when it was so humid if i was so hot sweating just sitting still . 

    i dont like going out for ameal or anything because i am so uncomfortable i couldnt live with out my chillow mats in the summer althou i have to freeze mine placeing them in the fridge dosent make them cold enough for me .

    i actuly had a brain wave a few days back and thought i could take one out with me and place it behind my back on a chair to kelp keep me cool.

    same for traveling . 

  • karen24623
    karen24623 Bee70

    Posted

    Hi Bee , I've also been through this getting bloods done been told I'm not going through the menopause WOW the hot flushes feel like you might ignite but then I got to the next extreme of being freezing . I can only think that the muscles are inflamed and causing s rush of heat through the body . How often do you get them ? I've had about 2 a week at the moment . Take care Bee x x
    • tiswas24537
      tiswas24537 karen24623

      Posted

      i get them everyday .

      your lucky bunch being able to get bloods done for menapause my doctor wouldnt even consider it ,said at 55 i was either going thru it or gone thru it and with the fibro proberly wouldnt show anything anyway .

      i wish i was a dog get so much better treated at the vets .

  • JulieBadger
    JulieBadger Bee70

    Posted

    Hi Ive had Fibro and M.E/cfs since I was at least 14.  I am now 37. For years my hubby has been saying he cooks if he gets near me in bed some nights, even sometimes unable to stand the heat that comes off me.  However, I don't feel that heat at all, I even sometimes feel cold at that time.

    When I was pregnant the first time 9 yrs ago I would suddenly start over heating and have to go outside.  I would be holding a cold drink next to my face whilst another pregnant woman would be in a thick cold.

    Last year I started over heating to the point of feeling very sick and even collapsed twice in places which were hot to others.  This still the case. I used a hand held air conditioning fan last year. It's like a fan but you wet the sponge bit of it so the air coming off it is cooler. Last year was terrible during the summer.  I could only eat out if we could sit outside, then it had to be in the shade with a breeze. Looks like this year is going to be the same as during the winter I still can't go in warm / hot places.

    Didn't know about chillow mats, now going to look them up.

    Advice how people are cooling themselves down would be great.

    Here's to a not hot summer (sorry those who love heat) xx

    • tiswas24537
      tiswas24537 JulieBadger

      Posted

      i think it was me who suggested the chillow mats ,

      i brought  a single bed sized one to put on my side of the bed

      but because obviously to big to put in a freezer i place 3 or 4 smaller ones that i have frozen underneath the big one.

      it really helped me get some sleep last summer , and i had one behind my back during the day helping to keep me cool but i had to keep swapping it every 2 hrs because the heat from me melted it .

      i was house bound most of last summer it was just to humid 

      you can get them on line auction sites they come gel filled or some times you fill them with water ,i prefer the gel ones myself 

      iv also brought a waist coat that has pockets  that you place little gel packs in after being frozen , apperently men who work as labourers in hot countrys use them .

      i dont think its going to look to trendy but if it means i can go out without feeling faint or sweating like a stuck pig at least it will be something .

      i got my waist coat from  british auction site from germany  after reading how they helped people with MS .. i do believe that some moter bike shops stock them to help keep bikers cool when wearing leathers in the summer . there differant to the one i brought thou .

       

  • becky000
    becky000 Bee70

    Posted

    Yes I've noticec that when I have a flare up I have really bad hot flushes and they're not the same as menopause ones, they are so much worse!  Glad to hear there are others in the same boat.  Thought it was just me.  I recently moved to the UK from South Africa where I really suffered during the summer.  I am so enjoying this cold weather, although people think I'm crazy when I say that!  Perversely, my Fibro has flared up badly during the cold.  Maybe because I'm not used to it.  Seems to me that with Fibro ones body thermostats stop working.
  • sha1271
    sha1271 Bee70

    Posted

    Omg, I never thought to connect it to the FM. I have other issues so always thought the itchy hot hands and feet were from that. And thought the hot spells were hormonal imbalance or something. It's insane how much FM causes.
  • MrsShipo83
    MrsShipo83 Bee70

    Posted

    Hello, I'm 31 was finally diagnosed in dec 2014, I have really hot hands all the timeach, no idea if it's a side effect to citalopram or codeine..
    • christine26761
      christine26761 MrsShipo83

      Posted

      Hot hands....hot feet..cold feet..clold hands I get from Fibro..also hot flushes are the worst..but it will all go away...you will just get flare ups intermittently..well I do anyway...have a nice day..try not to stress it's the worst thing ever for Fibro....hard nit to do but...when worry or stress happens it can bring on lots if different Symtoms ...be blessed :-) xxxx
  • Bee70
    Bee70

    Posted

    Still the heat in my body stays with me day in and day out.  I feel like I'm on fire over these past few days.

    I suppose this humid weather is not helping much either. Sleep in non exsistence.

    This precise moment in time I wish I could sit in a bath full of ice.

    Just sharing my feelings with you all as I heat up just typing these few words.

    Gentle hugs to all and I hope I cool down soon. wink 

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