Fibromyalgia & LDN

been to gp no dice she wouldnt even consider prescribing it 

she says its not liscensed for use in fibro which is true 

so shes covering her back .

i am now looking into ordering on line from a online chemist 

so fingers crossed 

Those are just "excuses". There are the Stanford Univ. studies, besides so many others. Anyway you can always contact the people from ldnnow and others that are supporting this treatment. It woud be better to have some medical support since you have to adjust the doses. Let us know how're doing. Teresa.

i know teresa i printed that information of even told her it was backed by 

dr chris steel and that a petition was going to downing street to try and get this tested by goverment funding for these conditions . 

but nope wouldnt consider it really made me mad took me ages to sort out stuff to take , and i even typed out the important information like its safty record,how long its been on the market etc so she wouldnt have to read the whole article to get to the facts it took ages to do with my brain fog

but she just wasnt interested ,quite happy to prescribe fluxten and gabetan

lycria all with a list of side effects as long as your arm . 

but not ldn . like my brother said its not about care and whats best for the patceint its all about covering there backs , yes i wanted to do it via my gp 

simply because i wanted to be monitered now

i am going to have to try it alone from a private prescription . i am so angry , they have prescribed medication for my brother that isent even on the market for depression 

but something proven to have a good safty record over 30 yrs nope ,

Hi Tis.  

You’re right in being mad.  Well you're just being responsible in taking good care if your health.  

It's going to be a bit lonely for you to be on your own with LDN. It's actually being lonely for me (that’s why I am posting so mch about it) because although my GP accepted to prescribe it he has no experience with LDN: I’m his guinea pig on this.

Now  that I’m on 4mg a day I’ve been feeling really weird…. I suppose it’s part of the process: I may have to bring it down to 3,5 mg again.  I’m also willing to try other supplements that are beneficial for FibroM and chronic disease that don’t conflict with LDN such as Lugol’s Iodine , extra magnesium, and on and off Vitamin D3. 

If you’ve ran out of options I would definitely recommend give LDN a try. XX.

if i can get a private precription on line 

i will go for the sublingual drops that go under the tongue and are supposed to go striaght into the blood stream without affecting the stomach 

which means people can get a higher dose in without it causing nausea 

and stomach upsets . i think you start of with one drop and work up . 

may i ask 

whats the worst side effect you have had whilst taking this .

When I started at 2,5 I felt drowsy and  lethargic and interrupetd sleep patterns, now at 4,mg I feel that again and I'm also feeling quite bloated during the night. I continue to feel tired. More is not, apparently better. 

so would it not be advisable to drop down the dose again 

strange most people say it keeps them a wake .

 

thanks for update teresa

Hi Tis, How have you been doing? X

rubbish hun had a so called medical on friday for pip with attos

that went well not! 

someone sat in a room with me firing a load of questions at me 

me feeling like crap after a really  bending winding road journey and suffering from fatigue . and moderator giving me a hard time 

after struggling to reply to posts .

give up going back to health page on f/b hope your having a better time 

 

I hope you get your PIP...Take care.

no i answered yes to to many of the question theres no yes with diffitcultiy section its yes or no .

i think the only one who could get this would be some one 

who sits in a chair with a bib dribbling, needs to have help eith the toilet

and someone to wash them and cut up there food for them.

lets face it steven hawking wouldnt get it because his brain works 

iv got no chance as do most people with hidden dissabilitys 

Have you contacted the ukfibromyalgia charity? Perhaps they can guide you through the legal rights process,

no i have not    might take a look thanks for info