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I have never been so lost with my health. Someone smashed into me in recent years. From that moment, the list of what I've suffered is absolutely endless. So much so that I've lost confidence and most days don't know where I am with myself. Been to see two orthopaedics, yet they can find little wrong with me. Been referred to a rheumatologist under the question that I may have fibromyalgia. I was tested on "point" scale. Not only was I tender on all of the fibromyalgia points, but everywhere else, too. Then I get forwarded to a Consultant Neurologist. I get a diagnosis of Functional Neurological Symptoms.
Here's a list of some of the things I'm dealing with each day and night:
Spasms - Can be everywhere, but mainly through the spine and left side.
Shoulder and shoulder blade ache
Itching (very uncomfortable) but almost permanent and throughout the body and left side.
Collapsing. Mainly the left side, lower back, left hip and leg. No warnings, just gives way. Permanent pain in these areas, too.
Reduction in grip strength, plus some pain when trying to grip. Also, some pain when not trying to grip.
General muscle and joint aches and pains and nagging.
Neuralgia and nagging from neck upwards. Horrendous when trying to eat hot or cold food - so it usually has to be room temperature now. Yet can still get neuralgia.
Balance problems. Won't walk anywhere without my partner. I often drift, or body gives, or spasms, etc, so I have to hold on to him.
Crawling sensations throughout the skin (really uncomfortable) and awful restlessness. Often takes me ages to drift to sleep, even then I wake up tossing and turning. Which is unusual, because when I'm up and "trying" to do things, I feel permanently tired. I've felt lack of energy for very long now.
My mind goes blank, often in the middle of the sentence. Not only do I get words back to front, but I also say one word when I mean another, and they'll have no connection whatsoever.
I'm permanently forgetting things, which can be dangerous, because I'll put something in the oven and completely forget, which is why I will insist on waiting until my partner comes round to my flat.
The pain and discomforts I suffer can include the following and, often, all at once; muscle tightness, burning, itching, tingling, stabbing, shooting and I get cramps every day.
I suffer other symptoms, too. I also struggle to digest now.
When I do slightly collapse, ie, body gives (which is most days) the pain can be horrendous, even if just a threat, yet when I fully collapse, it is excruciating and I cannot get up off the floor for ages and then without help.
I don't know whether I have fibromyalgia or the diagnosis from the Neurologist, or both.
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