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Hey there, I was wondering if anyone has been diagnosed with Fibromyalgia, when really they have Lyme?
I went to see my Doctor this morning for my 6 week check after having a baby. I brought up Lyme disease as I've had my doubts about my diagnosis of Fibro. She hadn't even heard of Lyme and had to look on her Doctors symptom checker! She said it's not Lyme after reading the notes. Could someone please read my little story below and tell me if you think it could be Lyme.
I went to Thailand in April 2014. I visited Bangkok and one of the islands called Koh Chang. Whilst there I got bitten by what I thought were mosquitoes, but one of these bites inparticular became very inflammed and grew to about the size of the palm of my hand. I just thought I was maybe allergic to mosquito bites (I had never heard of Lyme). These bites took about a month to go, and about 2-3 weeks of being back in the UK, I began to feel unwell. Flu-like symptoms, general tiredness, muscle aches and pains etc. I continued to deteriorate over the next coming months, being fobbed off by the practice nurse and even being told it's my diet causing my illness! I got all the bloods done which all came back negative, but was never tested for Lyme. It got to the point where I became so weak, that I couldn't even squeeze the shampoo bottle in the shower, getting out of bed took me about 10 minutes, I'd wake in the night and I wasn't even able to pull the duvet back over me. I couldn't get in the bath/sit on the floor at all or walk up/down stairs properly and when my feet had swollen so much that I could barely walk, I got referred to the Rheumatologist. He then diagnosed Fibro and then that was that.
I then went on to get pregnant about 4 months after diagnosis, so had to come off Fibro meds and all symptoms went away whilst pregnant, and I'm still mostly symptom free now (just stiffness in mornings). I read up on Lyme symptoms and I can pretty much tick every box (before I got pregnant). My main worry is that I've passed it to my baby through pregnancy (if that's possible?). I asked the Doctor about this today and she said "you can't pass Fibro to your baby".. so I just gave up, she obviously wasn't listening anyway. Any feedback would be much appreciated :-)
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