Fibromyalgia & other fun complications

Yep - get the nausea/vomitting and IBS luckily for me only lasts hours and I have been fortunate in only having it first thing in the morning or last thing at night so it has not interferred with my working hours.  Burning feet that feel like I am walking on broken glass - yes. Baths in epsom salts help.  All part of the delights of our fibro fiend or Sprite as I call him.  Drinking peppermint tea was recommended to me and it helps if only to give the stomach something to line it.  I am sure other fibro folk will be along to add their slant to the individual symptoms that are fibro. Take care

I feel sickly too, almost daily, but its only really bad for about a week a month. I attributed mine to fluctuating hormones, dr gave me anti nausea (promethezine) or zofran, and that pretty much fixes it. Hoping it gets better for you very soon !

Hi Richard.

Let me just just say that I get it and that  I'm sorry for what you're going through.

Were your adrenals, adreal funtion, thyroid, etc, tested?

How were you tested neurologically? 

A few things should be ruled out:

- all diseases that involve peripheral neuropathy (numbness and loss of feeling) which are symptoms of nerve damage; 

- adrenals disruption that would imply also extreme tiredness:

- food allergies and intolerances - you probably know this but gluten is an opiod and in intolerant people can provoke allucinations;

- the same for thyroid:

- do you live in a mouldy place?

All of these thisngs should be taken in to account. It may also be just an exacerbation of fibromyalgia. 

Meanwhile I don't know if you're keed on homeopathy... I recently came accros a remedy called silica or silicea (look it up)  that is used in homeopathy for extreme fatigue derived from glandular problems and toxicity. 

Before you rule out others things it might give you some relief.

Take care. Teresa.

No I don't get the nausea and vomiting, well not yet anyway.  I do find however that fibro plays havoc with my senses, taste, smell, hearing and sense of touch, heightening them. I do take probiotics every day which for me prevents the stomach pains, I use to get.

I use to get painful muscle spams also. since taking magnesium supplements they seem to have backed off. Still get the burning pain and strange twitching of muscles in my legs, but not painful. 

Do any foods bring on your vomiting, just a thought. I find keeping a food/ pain diary helps me keep track on things.

Best of Luck

Meg

 🌺

Hi Richard,

I was doing fine until about 6 weeks ago, with the usual aches and pains and then I was admitted to hospital with severe abdominal pain and vomiting. I had to immediately come off Naproxen as this was damaging my stomach terribly but compared to when I went in, I felt like my stomach issues had settled. I was wrong because since then I have continued to have pain , nausea and vomiting. Not good given that I also have arthritis in my spine and a couple of prolapsed discs, so my pain has been pretty bad. I've found acupuncture has helped for some things but not others that are affected by pain.

i too have had issues with bladder sensation, but was told that might be due to a genetic collagen defect syndrome that I am unfortunate to have (seems like I'm greedy!). No sensation in my hands and incredibly painful feet. The feet have only ever been painful for the past 4wks with no hint of pain before. Now sometimes it's painful just to stand.

Solutions... I've taken note of the soaking feet with Epsom salts and whilst it's early days, just4, I haven't felt any improvement yet, but they haven't got any worse either.

I too take omeprezol 40mg twice a day and it's settled the reflux greatly and with that cyclising for nausea and vomiting. Again it's not gotten rid of the symptoms but it has significantly helped.

As for the rest, I've been told there is nothing else I can do or try. Sorry there's not much else I can offer, but like everyone else on here, if we find something of use we post it. 

I hope something helps for you, take care.

Sorry, I meant cyclizine not cyclising. Dammed autocorrect.

I've never associated the vomiting and really bad reflux with fibro, yes I do get it at random times but the vomiting isn't as bad as yours. I wear Butrans patches at 20mg and have for years I also take Pregabalin , Dyhidrocodeine, Amitryptiline and Paracetmol the only change is the Pregabalin which was added about three months ago, I don't think any have made a difference to the reflux. It is odd and would normally be caused by a hiatus hernia but then it would be constant not random like ours. I know the last reflux I had was about a week ago, it was the worst one and burned my throat. It will be interesting to see if anyone else has it.

have a great day

Shelagh

Thanks everyone I'll have a proper read thru your replies & make notes to try things. We've done all the usual food diaries etc without much luck. I've had a gastroscopy which came back fine. I've had every bit of me MRI'd my digestive area has been CT scanned & there's no obvious cause so chalked up to fibro, had barrage after barrage of bloods done all normal.

Epsom salts are great I stick about half kilo in bath. Keep adding until water starts getting soapy. I saw an article on this from Bath uni funnily enough they found serum magnesium levels rise dramatically after a 30 min soak as it hits your blood thru the skin. Magnesium helps with the pain.

Collected my meds from Dr's today just taken 4 amitryptyline as normal and just realised they've given me 25mg tablets instead of 10mg so I can't get the right dose on those AND the sticker says take 4 a day there's no actual dosage instructions on the sticker pretty sure it should say 4 10mg tablets

So tonight instead of 40mg I've taken 200mg si just a SLIGHT overdose.at least it's a drug that's not a problem as it's still very low dose so not worrying but am furious.

Dr's says we need 3 working days to safely process your prescription so they take 3 days and STILL MASSIVELY screw up.

2 months ago the dispenser didn't think I needed omeprazole and ranitidine and got the ranitidine cancelled so had to make appt to see Dr and get it back.

Off to see practice manager Monday to make HUGE complaint.they couldve killed someone!!

Hi richard I suffer with nausea quite alot my gp gave me some tablets to help with it. I also suffer with Ibs. I became ill in 2004 and was finally diagnosed with fibro in 2014. after having so many tests that I lost count of and blood tests galore. finally I saw rheumatologist that diagnosed me last march he told me to go and see my gp for pain relif. Ive tried different tablets pain patches morphine. but everything ive tried Ive reacted badly too. so now I just use a hot water for on my back and I take Ibuprophen my dr also said to try paracetamol. get as much help support as you can. Take care