Fibromyalgia & other fun complications
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Been ill off & on since being very unwell with glandular fever in 2003. I never really recovered but managed to keep working until this year after a settlement agreement in January.
I've been diagnosed with Fibromyalgia, functional neurological disorder, depression etc.
Basically I have all the aches & pains from Fibro plus many other weird neurological problems like finding it difficult to tell when I need to go pee (great for sleeping thru the night tho!), I get olfactory hallucinations, involuntary muscle spasms, burning feet, loss of sensation in various areas.
The absolute worst thing for me is every once in awhile couple be 6 weeks, could be a few days I'll just suddenly feel violently sick and spend 24-48 hours Vomiting, so much that I can't keep water down & end up bringing up bile :-(
After the sickness passes I'll then spend about a week in crippling pain from torn stomach, intercostal, back etc muscles from all the puking made worse of course by the fibro. Then I'll be "ok" until the next random session. Does anyone else get like this?
For me it's the worst bit we've tried changing meds which doesn't make a difference, I'm on butrans patches now but this was happening before those. I already take omeprazole twice daily & ranitidine once due to terrible reflux (wake up at night with vomit in sinuses) but again the sickness happens with & without.
2 likes, 9 replies
Maggers richard_00654
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emily253 richard_00654
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TeresaJS richard_00654
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Let me just just say that I get it and that I'm sorry for what you're going through.
Were your adrenals, adreal funtion, thyroid, etc, tested?
How were you tested neurologically?
A few things should be ruled out:
- all diseases that involve peripheral neuropathy (numbness and loss of feeling) which are symptoms of nerve damage;
- adrenals disruption that would imply also extreme tiredness:
- food allergies and intolerances - you probably know this but gluten is an opiod and in intolerant people can provoke allucinations;
- the same for thyroid:
- do you live in a mouldy place?
All of these thisngs should be taken in to account. It may also be just an exacerbation of fibromyalgia.
Meanwhile I don't know if you're keed on homeopathy... I recently came accros a remedy called silica or silicea (look it up) that is used in homeopathy for extreme fatigue derived from glandular problems and toxicity.
Before you rule out others things it might give you some relief.
Take care. Teresa.
Meg53 richard_00654
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I use to get painful muscle spams also. since taking magnesium supplements they seem to have backed off. Still get the burning pain and strange twitching of muscles in my legs, but not painful.
Do any foods bring on your vomiting, just a thought. I find keeping a food/ pain diary helps me keep track on things.
Best of Luck
Meg
🌺
lisa52101 richard_00654
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I was doing fine until about 6 weeks ago, with the usual aches and pains and then I was admitted to hospital with severe abdominal pain and vomiting. I had to immediately come off Naproxen as this was damaging my stomach terribly but compared to when I went in, I felt like my stomach issues had settled. I was wrong because since then I have continued to have pain , nausea and vomiting. Not good given that I also have arthritis in my spine and a couple of prolapsed discs, so my pain has been pretty bad. I've found acupuncture has helped for some things but not others that are affected by pain.
i too have had issues with bladder sensation, but was told that might be due to a genetic collagen defect syndrome that I am unfortunate to have (seems like I'm greedy!). No sensation in my hands and incredibly painful feet. The feet have only ever been painful for the past 4wks with no hint of pain before. Now sometimes it's painful just to stand.
Solutions... I've taken note of the soaking feet with Epsom salts and whilst it's early days, just4, I haven't felt any improvement yet, but they haven't got any worse either.
I too take omeprezol 40mg twice a day and it's settled the reflux greatly and with that cyclising for nausea and vomiting. Again it's not gotten rid of the symptoms but it has significantly helped.
As for the rest, I've been told there is nothing else I can do or try. Sorry there's not much else I can offer, but like everyone else on here, if we find something of use we post it.
I hope something helps for you, take care.
lisa52101 richard_00654
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shelagh6 richard_00654
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have a great day
Shelagh
richard_00654
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Epsom salts are great I stick about half kilo in bath. Keep adding until water starts getting soapy. I saw an article on this from Bath uni funnily enough they found serum magnesium levels rise dramatically after a 30 min soak as it hits your blood thru the skin. Magnesium helps with the pain.
Collected my meds from Dr's today just taken 4 amitryptyline as normal and just realised they've given me 25mg tablets instead of 10mg so I can't get the right dose on those AND the sticker says take 4 a day there's no actual dosage instructions on the sticker pretty sure it should say 4 10mg tablets
So tonight instead of 40mg I've taken 200mg si just a SLIGHT overdose.at least it's a drug that's not a problem as it's still very low dose so not worrying but am furious.
Dr's says we need 3 working days to safely process your prescription so they take 3 days and STILL MASSIVELY screw up.
2 months ago the dispenser didn't think I needed omeprazole and ranitidine and got the ranitidine cancelled so had to make appt to see Dr and get it back.
Off to see practice manager Monday to make HUGE complaint.they couldve killed someone!!
kaz_40 richard_00654
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