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Fibromyalgia syndrome

Posted , 11 users are following.

patricia17763
patricia17763

Has anyone tried the Alpher Stim Machine to relieve Fibromyslgia symptoms,I have heard that they are good but a little expensive, would like hear any reviews before purchase or rent, and has anyone had a free trial with it.

suppose to help with anxiety and fibromyalgia.

Pat

1 like, 26 replies

26 Replies

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  • alig39
    alig39 patricia17763

    Posted

    Hey ladies......

    I am also a Fibro sufferer and was browsing sites for different info when I came across this conversation. I wanted to say that I too feel at my worse times that I just want to swallow all my pills at once. I have other health issues....Bipolar Depression, Chrones Disease, Lumbar Degenerative Disc Disorder, Restless Legs Syndrome. It took almost 3 years and a number so different doctors to finally diagnose the Fibro. I have never know pain like it. The only time I can get any sleep is between 6/7 am to 11/12 and even that is broken sleep. I go to bed at night and as soon as I lie down and just about to drop off the pains in my legs start so I'm up and down all night long. I'm currently taking paracetamol and tramadol for my back pain, Sertraline for my depression, Ropinorole for restless legs and Salazapine for Chrones. I have tried all sorts of ways to ease pain but no luck. The last couple of months the Fibro has gotten much much worse. My doctor has put me on Amitriptilyne, I was taking this some years ago for my depression but I can't remember why I stopped. My doctor said that it would take 2 weeks to start working and that her other Fibro patients seem to be ok with it. I started on the 3rd week but things were getting soooooooo bad I had to stop them. Going back to my doc in the morning. Besides the pain the worse thing for me is the serious lack of sleep. I'm constantly exhausted. They say exercise helps but I'm finding that doing little bits around home seems to aggravate things and then doing nothing as well. If anyone has had any relief from anything they have tried I would be very grateful. I'm in London.

  • martina73898
    martina73898 patricia17763

    Posted

    Hi  all,  Havnt used this before was just checking on some information about the subject.  I was diagnosed about 6 years ago but have had lots of health problems from I was 25 yrs old am now 51.  I have had a thyrodectomy, hysterectomy and have Ceoliac desease.  Last year my doctor perscribed me with Cymbalta because I was very sressed and it has really helped me with the pain, I am sleeping slightly better but find around 4 in the afternoon that I am exhausted and brain dead..lol  not good when your working full time, but I cant afford at present to reduce my hours.   Currently my pain is coming back would anyone know if this could be due to the cold weather? I am on the highest dose of Cymbalta Atm.  I dont tell many people about me having Fibromyalia as I do look really healthy with make up on and I do have a good work and social life. I continually push myself , if I didnt I would be in bed 24/7. 
    • diane65123
      diane65123 martina73898

      Posted

      Hi Martina, I havn't been diagnosed officially with fibromyalgia but have struggled with the symptoms for years, in fact it was about 20 years ago my doctor said I had Me and although my fatigue improved gradually over about 10 years my all over pain didn't and I still do get tired quickly and have to consider what activities I can manage without feeling ill. I have been really well during the summer bit have really gone down hill again the last couple of weeks and like you am wondering whether it is the weather turning cold and damp. I really do seem to feel the cold. I also don't tend to label myself as it is such a varied illness and some days I appear fit and well. I even managed to do my first race for life this year with my sister who also has fibromyalgia but not diagnosed! But lately I feel like a have gone back to the years of feeling tired, in constant pain, my head, neck shoulders and arms are so painful and heavy and I just cannot get comfortable to sleep. I do think it's the winter affecting us. I too will keep taking painkillers and put my make up on and turn up to work but it's really getting me down. I found a lady on the Internet who lives in derby who claims to treat fibromyalgia with physio and nutritian advice I am interested in giving her a go, I will let you know if i do. Keep warm and I hope you improve soon x
    • anne90395
      anne90395 martina73898

      Posted

      Hello Martina,

      Sorry to hear all your problems, and you have suffered them a long time. To keep on working is great tho. I don't know too much about the cold weather affecting pain, a lot of people do think this. I  also push myself to complete a days work, but if I am home I do have a nap, am finding I need to pace myself to be able to cope.

      Take care, Anne

  • martina73898
    martina73898 patricia17763

    Posted

    Hi Patricia, congrats on doing a marathon, that is some going.  Yes def think the cold has a lot to do with aches and pain, but found out yesterday I had a kidney infection so maybe some of it was due to that.   I do find that Cymbalta is really good, I have been on it since January,  I have also had hyperbaric oyxegen therapy which was good for my pain, sleep and gave me energy.  I am hoping to complete another course but am waiting to see occupational health in work as I would have to get time off during the day to go to it.    Am laying up on clothes...lol

    Hope you are doing well and yes let me know how things go with the lady in Derby.

    Take care x

    • diane65123
      diane65123 martina73898

      Posted

      It wasn't exactly a marathon lol just 10k but when I think back now I can't believe I did it, I couldn't do it now. What is Cymbalta? I have never heard of it. The lady in derby is booked up till January so looks like I'm putting up with it for a bit longer but that's also a good sign, hopefully it means she's good. There are more people suffering with this than you think isn't there? I feel like a fraud not having been diagnosed but the doctors don't seem to want to know about the many symptoms we have, they like quick easy diagnosises. I work in a GP surgery and wish my own doc was like my boss, but of course I can't really discuss all my ailments to him, he would probably sack me haha. Can anyone tell me how they got diagnosed, was it through a specialist or was it just own GP saying thats what they thought they had. Have you had the test with the tender points? X
    • anne90395
      anne90395 diane65123

      Posted

      Hello Diane,

      Just about the diagnosis, I had been going backwards and forwards to Doc for 2 years, with various random symptons. Had hospital admission and MRIs -two, lumbar puncture and blood tests. All came back normal. Saw a new doc and he suggested the diagnosis. He referred me to rheumatologist, who immediately diagnosed. No-one ever did tender point test, but I do get pain in all those areas.

      Take care, Anne

    • diane65123
      diane65123 anne90395

      Posted

      Thank you Anne, I think I will ask to be referred to a rheumatologist, I know it won't change anything but sometimes you feel like your going mad not knowing what is wrong with you. I also had mri that was normal but some x-rayed have shown up spondylosis and wear and tear. But I have so many other symptoms as well and I cannot explain my ark pain and numbness. I hope you are managing your symptoms well and that there will soon be some help out there for us. Take care x
    • tiswas24537
      tiswas24537 anne90395

      Posted

      do you know how dangerous lumber punctures are hun , never in a million years would i have that done unless it was a matter of life or death

      . i had 3 epidurals for the birth of my kids which i very much regreat . .an alternative doctor who  also a held a medical lisecence told me i had had 3 epidurals just by feeling my back . he could feel the lumps where there had been and said some of my stiffness he said was down to them .

      any doctor worth his salt should have done the tender point test. only 2 years hun ,it took me 6 yrs going back and forth to quacks . certainly the right name for a lot of them . any how hope you get on your feet soon 

    • martina73898
      martina73898 diane65123

      Posted

      Hi Diane, 10k is a big achievement, a marathon to me...lol

      Cymbalta Overview

      Cymbalta, also known as Duloxetine, has been shown to be effective in reducing depression, alleviating the pain due to diabetes and in treating the effects of fibromyalgia. The mechanism that makes the drug effective is unknown, but it is suspected to involve the stimulation of serotonin and norepinephrine in the brain. Cymbalta is a serotonin and norepinephrine reuptake inhibitor, available only by prescription.

      There are several possible side effects associated with Cymbalta, including cough, diarrhea, constipation, dizziness, dry mouth, fever, frequent urination, headache, lack or loss of strength, loss of appetite, muscle aches, nausea, sleepiness or unusual drowsiness, sleeplessness, sore throat, stuffy or runny nose, abnormal orgasm, change or problem with discharge of semen, decreased interest in sexual intercourse, inability to have or keep an erection, longer than usual time to ejaculation of semen, loose stools and loss in sexual ability, desire, drive or performance, according to drugs .com.

      I find this suits me really well . I am on 90mg which is the highest does and dont have any side effets now at all.

      I had been suffering from a lot of think along with FM so It wasnt diagnosed until about 8 years ago. I found out I was a ceoliac 11 years ago and that I also had thyroid eye condition and a goitre. I got my thyroid removed and am on tabs for that then four years ago I had a hysterectomy and am on hormone patches for that. All in all I only take the Cymbalta and Thyroxine and pain killers to keep me going. My diet is extremely healthy but I dont loose any weight and the docter says I dont need any supplements as my results are all ok.

      The doctor did the point test on me and he was the one who gave me my diagnosis. Was I delighted!!!! I thought my head was going away. In my last job I used to go home at lunch time and have a sleep, now thou I take a walk about 2pm and sleep when I get home at 4.45.

      Most times it is a matter of forcing yourself to do things and go to work. I am 51 so have some time to go before I can retire..... lol My body tells me when I need to rest and I go by that nothing else for it although my mind does be buzzing to do things... : )

      Hope all is ok with u.

      Martina x

  • patricia78625
    patricia78625 patricia17763

    Posted

    Hi patricia

    my name is also Patricia I was diagnosed with FMS 8years ago at the age of 55 after going to my GP with pain and fatigue and virtually crawling home from work I couldn't understand it nobody was interested as I looked so healthy but my GP at the time was wonderful she sent me to a rhumatologist who diagnosed it which came as a great relief as I thought I would go out of my mind with pain I was sent to the pain clinic and given different medications but nothing eased the pain I now only take co-cocodomol and amitriptilyne sadly my GP retired and the others who took over have not the same regard as she had and as I look so well I don't like to complain and I do get looked down on by some of the staff at the surgery I hope you don't get the same treatment from yours at least I understand what you are going through I did not realise how many other people suffer

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