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Fibromyalgia treatment

Posted , 6 users are following.

loxie
loxie

Has anyone here participated in hyperbaric oxygen treatment for fibromyalgia/arthritis/fatigue?  Our local MS treatment centre is opening up this treatment and offering courses of it to a wider range of ilnesses.  Just wondered if anyone had had any success with it.  Thanks

0 likes, 14 replies

14 Replies

  • pollmadoll64
    pollmadoll64 loxie

    Posted

    Has anyone had shoulder surgery along with Fibromyalgia. I am now 7 months post surgery and still am in pain?
    • bronwyn97278
      bronwyn97278 pollmadoll64

      Posted

      Hi Pollmadoll.....although not part of the above conversation, Yes I have had shoulder surgery in 2010, and it took me over 12 months to get somewhere near healed.......we cannot say it is just due to the Fibro though, as others I know, who do not suffer from Fibro, also took this time, too............................chin up......................Bron
  • sadie1980
    sadie1980 loxie

    Posted

    Hi Hun

    Just wanted to see what this treatment was as I never have heard of it X

  • kaz_40
    kaz_40 loxie

    Posted

    Sorry loxie not heard about this treatment, will mention it too my gp when next speak to her. sounds very interesting. I will have a google about it. How are you doing hun hows things with you take care
    • loxie
      loxie kaz_40

      Posted

      Hi Kaz. How are you hon.  As with lots of people, it's very 'up and down' with me presently.  Some days are awful, some are bearable.  Had a few other health problems and a death in the family, so it's been a bit of a stressful time lately.  Re the hyperbaric oxygen treatment, I'd never heard of it either but apparently it's been successful with MS patients and considered of help with a wider range of conditions now.  The local MS treatment centre is opening up their treatments to those with a whole range of other diagnoses, including fibromyalgia.  I googled it to find out what it was and it doesn't sound dangerous or problematic but I've no idea whether it really is effective.  I dont really want to shell out lots of money on something that hasn't been proven to help however.  If you look online, there's a lot of information about what the treatment consists of and what it's supposed to help with.
    • kaz_40
      kaz_40 loxie

      Posted

      Hi Loxie sincere condolences for your loss  in your family. sorry to hear you havnt been good hun. copeing with fibro is hard and bad enough with out other health problems thrown in as well as dealing with anything else. Ive had  a bad flare up and other health problems going on.I have read up researched hyperbaric oxygen treatment. I found a story where a woman had had some treatment in it and she was pain free for3year.s But then her pain started again. she hadnt got fibro or ms sorry brain fog I think she had some nerve damage  to do with an injury. she ended up back on pain relief from the dr. as where she had her treatment it had closed down. her specialist told her she was no longer elidgeable for that treatment for what ever reason. I read that treatment for it cost between £180 and a £1,000 you could spend up to 5 hours in the chamber. take care
  • bronwyn97278
    bronwyn97278 loxie

    Posted

    Hi Loxie and others......I'm not sure if you got my other reply (but can't see it so I feel it's gone into Cyber Space???).....but if you read up on Hyperbaric Treatment for Fibro......there is a lot of encourageing statements for it's benefits..............the real question for me is the cost and availability..........how do we get a referral to use same, by whom and how much  persuasion do we have to use to get our GP/Medical carers to believe us  (it has been hard enough getting a diagnosis for many of us....so will they believe us re this, too????)...............let us know if anyone is able to trial same and it's results................Bron
    • loxie
      loxie bronwyn97278

      Posted

      Hi Bronwyn.  Yes, I've done a lot of reading on the subject and the centre that provides the treatments has given me a large amount of literature.  I was just wondering if anyone had already participated and to get their views on the effectiveness of it for things like Fibro/ME/fatigue syndrome.  GP's won't refer under the NHS, it's purely on a private basis.  There are some private health insurers that will consider covering part of the cost but not all.  Costs vary I  understand from £150 to over a £1000 per session, depending on whats offered/time taken etc.  The session at my local MS therapy centre are 1hr each so I'm guestimating somewhere around the £200 a time level.  I've read it can take many sessions to experience benefits - quite a lot of money, which I can ill afford.  So before I jump in I'm trying to find out from those that have actually used it whether they got enough benefit to make it worth the outlay.

      I was offered a free 1hr trial which should have been today but unfortunately I have a chest infection and I dont think I'm up to it, nor would I wish to spread my germs to the others involved - on the trial sessions there are up to 7 or 8 people in the chamber, for the paid sessions it's a personal one person treatment.

    • kaz_40
      kaz_40 loxie

      Posted

      Hi Loxie sorry to hear your unwell with a chest infection hun, hope you are better soon. let us know if you do  decide to have a free trial in the chamber and how you get on. Its worth haveing the free trial to see how you find It I havnt heard of anything like that where I live unfortunatly. take care
    • loxie
      loxie kaz_40

      Posted

      Aww thank you kaz. My immunity to infections etc is a bit compromised lately. I seem to catch everything going. Hopefully it'll pads soon.
  • Zbeil
    Zbeil loxie

    Posted

    Hi Loxie

    My answer has been deleted by the site moderator for a relevant reason on his forum I imagine. I am just trying to help, but can't make it.... I hope this time you'll get the answer you are looking for. Yes I have seen interesting and hopeful progress on internet relating to hyperbaric oxygen fibromalgya treatment. If you use these words in your research you will find them. sorry I can't tell you more as no link is allowed here. 

    To the moderator: would you be kind go to my pages on social medias, in order to make sure that I am not advertising for any drug company, as this could have been a reason why I was supposed not to follow the rules of this forum... I am realy sorry that my help could not pass through last time, and I hope it can now...

    Jean-Paul from Draveil, France

     

    • loxie
      loxie Zbeil

      Posted

      Hi Zbeil - it's frustrating isn't it when you want to give info to others via a link etc., and the moderators deem it unsuitable - if  you ever want to provide specific links, you can do so in a private message to individuals but they will remove them here in the open forum.
    • Emis_Moderator
      Emis_Moderator Zbeil

      Posted

      Hi both,

      Links are allowed if they are not to commercial sites etc. The post above was deleted as it looked like an "SEO" type post and users can easily find  information by Googling hyperbaric oxygen fibromyalgia treatment.

      Regards,

      Alan

    • Zbeil
      Zbeil Emis_Moderator

      Posted

      OK, I know you do you best ;=)

      But this link woukld have been helpful to many, right?..

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