Film "unrest"

Part of Jen's regimen is the anti-viral Valcyte.

I lived in San Diego for many years and went to San Diego State University for 2 years. I believe Jen and Omar are now living in Glendale, CA. I think they moved because of mold issues where they were living on east coast. Jen's regimen (Valcyte, etc.) has helped her greatly. I did ask my doctor, Dr. Chia, about going on Valcyte. He told me there's only a minimal chance of it helping. Also, it has scary possible side-effects. I tried Naltrexone, which many have talked about. I had to stop taking it because of terrible side-effects, even on the smallest dosage.

Ugh. Was beautiful there! Im taking valacyclovir now but not seeing a diff. Ive heard that also, about valcyte. Scary. I think ive has this too long for anything to help. Id be afraid of naltrexone because of my heart issues/angina. Isnt it like caffeine? What were your side affects? Are u still doing good after saline drip? I think it was u. Lol

Never heard of Naltrexone being like caffeine. But I'm certainly no expert on that. My side effects were suicidal thoughts, in a big way. I realized these thoughts were linked to the drug after seeing a commercial on TV! I think effects of saline drip are fading, 3 weeks or so after the drip (assuming it was the drip that helped me, and not the anesthetic or just natural ups and downs of illness). It's so hard to know what's happening. But I will see if my doctor will prescribe another drip, just to see if it helps. Possible side effects are almost nil.

I have no idea. But you can Google "Dr. Jose Montoya ME/CFS." His protocol typically includes Valcyte, and this protocol is used by some other ME/CFS specialists here in the U.S.

That's great that you meant them. It took alot of courage for them to do this. I've been married for 36 years and have two beautiful grown educated daughters and a new granddaughter. This illness is very hard on family's and marriages. We have always used alot of humor. Alot! There was anger, indifference, some real acting out by everyone. I've learned that blaming myself and feeling like I'm letting everyone down daily almost killed me. I does not help at all. It made the situation worse. When I accepted the situation and learned how to function with boundaries it made life easier. Me being depressed and self blaming really hurt my kids. Don't do it!!!! It's a waste of precious energy. Live in the here and now. And get on with living even if it sucks. I get one thing done everyday no matter how small. I have to find the joy in life every day. Because we all little power over our bodies got to find it elsewhere. I make my own rules what I can and can't do. And if people can't respect that they can all kiss my ass!!!

Lisa--Hear! Hear! To everything you said. I, too, have been married 36 years. I've come to the exact same conclusions as you mentioned in your post. I do the best I can every day. Yes, a lot of humor goes a long way. Add in some chocolate and I'm good to go.