1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Finally a diagnosis.......but what now?

Posted , 3 users are following.

chellie73
chellie73

Hi all, firstly, I have to say Thank you to one and all of you who have posted on this forum for the last two years.... You and you alone have kept me sane, I don't wish this Fibro on anyone and I honestly wish none of you suffered but you've helped me so much to finally get a diagnosis.

So I've finally been diagnosed with fibromygalia, but what happens now?

A bit of background, very brief as it's been over 20 years with this and that. So last week, I went to see the Rhumatoligist and he diagnosed fibro along with current illnesses, this after several years of testing this, that and the other and everything being blamed on other issues I already have like disc disease in my lower back, diabetic peripheral neuropathy & autonomic neuropathy and severely aememic, oh and in the latter years my weight! I was already on  Zomorph, oromorph, gabapentin, dolouxitine and several other tablets including Citalopram, but this new pain was unbearable all over my body and the fatigue was getting so overwhelming I was scared to be alone as I felt my body was shutting down. So after a new Dr joining our practice and piecing all the bits together, and not just blaming the diabetic issues, I get to see the man himself who after viciously proding me (probably lightly touchingly really) agrees with my Dr that I Defo have fibro, so I ask him what now? Will this pain and fatigue and the other stuff go way? So he gives me a leaflet and says to read it and then we can work out a plan.....so can you guys point me in the right direction? Do I go back to my GP, do they help control it? Is this pain and stuff I have a flare up? (It's been this bad for at least two years, at this level, even with all the other drugs) I'm no better off than I was last Monday....can anyone advise what their experience after diagnosis was, and please tell me it can't get any worse than this if I get a flare up, am I right in assuming flare ups are short lived or can it be the two years I've had.......so many questions. I'm sorry but you guys seem to be the experts on this, hope you don't mind me coming to you....I'm getting a little desperate with this unfair, invisible but extremely painful "syndrome"....whatever that is. Thanks in advance. Hugs to you all who suffer xxx

0 likes, 8 replies

8 Replies

  • Carinaeta
    Carinaeta chellie73

    Posted

    Hi Chellie, so glad you got a diagnosis at last! Medication is different for everyone with this illness so its trial and error with what will work for you, either the painkiller route or reducing the stress and therefore reducing the pain route or both. Particularly with you taking so much other medication it going to mean a lot of trips to your GP to try and finetune what works for you, this was the most frustratiing part for me! You have to give each drug a couple of weeks before discounting it. Also you can try other stuff like hot baths, hydrotherapy, relaxation, yoga, ANYTHING that you can think of that might ease the stress/pain. At least you are now on the way to finding what works for you and i wish you all the best in doing that xxxxx
    • chellie73
      chellie73 Carinaeta

      Posted

      Thanks for your reply. Can I ask what medication is helping you?
    • Carinaeta
      Carinaeta chellie73

      Posted

      Hi, its citalopram, it doesnt have any side effects for me, just chills me out, reduces the stress and by doing that the pain is relieved, also take paracetamol.
    • chellie73
      chellie73 Carinaeta

      Posted

      Thanks yeah I'm also on that 40mg a day . I have to say it's good stuff. Thanks for your reply, I'm a bit disappointed your the only one who has bothered though. Was hoping to get some input from others too. Guess this isn't the forum for me. Thanks again for your replies.
    • Carinaeta
      Carinaeta chellie73

      Posted

      Not sure where everyone is at the mo, normally we're a chatty bunch, hang in there, im sure there will be other comments. xxx
    • chellie73
      chellie73 Carinaeta

      Posted

      Ignore me Carinaeta, I'm a grumpy bugger! Lol they all seemed chatty maybe mine was a bit too long.....I even lost interest in it. Hope we chat again soon. X
  • Flowerlady
    Flowerlady chellie73

    Posted

    Hello Chellie...I am here, guess we are all half asleep still. I have just logged on. I were diagnosed in 2011 tried numerous pain relief over the years, but now only take Paracetamol and Oramorph. It just takes the edge off thats all. Have a good day..Anne..
  • anne90395
    anne90395 chellie73

    Posted

    Hello Chellie,

    Please don't give up on this site, there is lots of really good information and support here. Having said that, I am so sorry, I may be the bearer of bad news. In my opinion meds are not the answer here. Many people seem to be on truckloads of them and still in pain. My own doc will only prescribe amitriptylene, helps more with sleep than with pain. His reasoning is, other painkillers have too many side effects.

    But don't lose hope! There are other strategies that people use, so they live the best life they can. Namely CBT (cognitive behaviour therapy), meditation, mindfulness, warm water therapy, pacing, and of course asking your family for help.

    I think everyone finds there own way to deal with it, so I wish you luck.

    Take care, Anne

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.