Finally a diagnosis.......but what now?
Posted , 3 users are following.
Hi all, firstly, I have to say Thank you to one and all of you who have posted on this forum for the last two years.... You and you alone have kept me sane, I don't wish this Fibro on anyone and I honestly wish none of you suffered but you've helped me so much to finally get a diagnosis.
So I've finally been diagnosed with fibromygalia, but what happens now?
A bit of background, very brief as it's been over 20 years with this and that. So last week, I went to see the Rhumatoligist and he diagnosed fibro along with current illnesses, this after several years of testing this, that and the other and everything being blamed on other issues I already have like disc disease in my lower back, diabetic peripheral neuropathy & autonomic neuropathy and severely aememic, oh and in the latter years my weight! I was already on Zomorph, oromorph, gabapentin, dolouxitine and several other tablets including Citalopram, but this new pain was unbearable all over my body and the fatigue was getting so overwhelming I was scared to be alone as I felt my body was shutting down. So after a new Dr joining our practice and piecing all the bits together, and not just blaming the diabetic issues, I get to see the man himself who after viciously proding me (probably lightly touchingly really) agrees with my Dr that I Defo have fibro, so I ask him what now? Will this pain and fatigue and the other stuff go way? So he gives me a leaflet and says to read it and then we can work out a plan.....so can you guys point me in the right direction? Do I go back to my GP, do they help control it? Is this pain and stuff I have a flare up? (It's been this bad for at least two years, at this level, even with all the other drugs) I'm no better off than I was last Monday....can anyone advise what their experience after diagnosis was, and please tell me it can't get any worse than this if I get a flare up, am I right in assuming flare ups are short lived or can it be the two years I've had.......so many questions. I'm sorry but you guys seem to be the experts on this, hope you don't mind me coming to you....I'm getting a little desperate with this unfair, invisible but extremely painful "syndrome"....whatever that is. Thanks in advance. Hugs to you all who suffer xxx
0 likes, 8 replies
Carinaeta chellie73
Posted
chellie73 Carinaeta
Posted
Carinaeta chellie73
Posted
chellie73 Carinaeta
Posted
Carinaeta chellie73
Posted
chellie73 Carinaeta
Posted
Flowerlady chellie73
Posted
anne90395 chellie73
Posted
Please don't give up on this site, there is lots of really good information and support here. Having said that, I am so sorry, I may be the bearer of bad news. In my opinion meds are not the answer here. Many people seem to be on truckloads of them and still in pain. My own doc will only prescribe amitriptylene, helps more with sleep than with pain. His reasoning is, other painkillers have too many side effects.
But don't lose hope! There are other strategies that people use, so they live the best life they can. Namely CBT (cognitive behaviour therapy), meditation, mindfulness, warm water therapy, pacing, and of course asking your family for help.
I think everyone finds there own way to deal with it, so I wish you luck.
Take care, Anne