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Finally and end!

Posted , 9 users are following.

JonWHut
JonWHut

just waiting on a date to remove my stump and have a perm ileostomy...

Cant wait, bring it on! feel a weight has been lifted and life can get kick started again...

biggrinbiggrinbiggrin

0 likes, 22 replies

22 Replies

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  • Darasdad1
    Darasdad1 JonWHut

    Posted

    Good luck. I have to make a similar decision later this year.
    • JonWHut
      JonWHut Darasdad1

      Posted

      My decision wasn't really in my hands...but still what I was pushing for to resolve...
  • pca
    pca JonWHut

    Posted

    Very best of luck with the op and my sincere good wishes for a happier and healthier future.  Pete

     

    • JonWHut
      JonWHut pca

      Posted

      Not really a choice for me, the drugs weren't working so the last bits coming out for a permanent solution...15-18-20 BM's a day was pulling me down...so back to some form of normality...
  • alison23639
    alison23639 JonWHut

    Posted

    Hi Jon

    I am having mine next week. I know they say having a pouch is a better option but I can't wait to get rid of it! Good luck on your op!

    • JonWHut
      JonWHut alison23639

      Posted

      I tried without a pouch and don't want to take a chance on a pouch and it not work (saying that a pouch wasn't discussed). Just happy to be finally over it all!

      Good luck with your op and hope all goes well!

      Speedy recovery!

      Regards,

      John

  • rachelle52846
    rachelle52846 JonWHut

    Posted

    Fantasic news Jon I am happy that you have the go ahead now !!  wishing you all the luck in the world and lots of happy times ahead with enjoying your life with your family best wishes x  
  • sheila91262
    sheila91262 JonWHut

    Posted

    Hi Jon, good luck with the surgery, shame that the "old style reversal" didn't work for you. Thank goodness the stump removal and j pouch surgery worked for my son. Just shows these surgeries are improving all the time.

    Hope it works out for you , Sheila.

    • JonWHut
      JonWHut sheila91262

      Posted

      just waiting on the date coming through, but likely to be in March! Woohoo!!!
  • rachelle52846
    rachelle52846 JonWHut

    Posted

    Great News Jon!! the light of the tunnel is here wishing you all the best with your operation keep us posted. ;-)
  • Colitisjanet
    Colitisjanet JonWHut

    Posted

    Im a newby to all this forum and ulcerative colitis stuff but I'm at my white end.  I was diagnosed about 18 months ago after suffering for about 2 years silently.  I had a big flare in January and was hospitalised after 3 days of constant bleeding, dr's sort of got things under control and I left hospital 4 days later and have just finished 56 days of prednisalone but I really don't feel they'd done much good. I'm still loosing a little blood, feel shattered and am now short of breath. And wait for it!!!!! I've just been to the logo for the 8th time today and notice that one of my 3morning octasa tablets was in the pan!!!! Any advice guys??
    • rachelle52846
      rachelle52846 Colitisjanet

      Posted

      Hi Janet

      Welcome ! I had UC under control till last year Prednislone didn't work for me either was still bleeding and had my flare for 9months while pregnant and after my little boy was born I got so ill I was on all the meds and the immune suppressants which didn't work for me I tried anything and everything but had an illestomy in sept 2015 I have no regrets as I have my life back next stage is j pouch but I'm not rushing right now X just back to work and enjoying my family and friends if u need anymore advice let me know X

    • Colitisjanet
      Colitisjanet rachelle52846

      Posted

      Hi Rachelle,

      thanks for your reply, I'm just so shattered and couldn't believe that my octasa tablet hadn't been absorbed is that normal? What ever normal is, I'm lucky to have a job that I can do at Home most of the time but have lots of office days at the moment and using the toilet in a public building isn't nice. I've a follow up appointment at the end of this month and bloods scheduledbefore that.  I dread the thought of a bag but you seem so positive which is great 

    • alison23639
      alison23639 Colitisjanet

      Posted

      Hi Janet, you really must suffer in silence. One of the best things I have done is ask a question on this site, there are lots of people in the same boat as you and full of really useful advice and support. Now about your colitis, it really is a heinous disease and flare ups can be very exhausting and worrying. It's a shame the steroids didn't help improve things for you. You must keep drinking fluids and eating. Don't worry about the octasa passing through. It has a coating on it that ensures it can pass through the stomach without being dissolved, the coating dissolves as it reaches the colon so it can deal with the inflammation there. Sometimes the coating doesn't break down fully if it is travelling quickly and it can pass intact. Sounds like what is happening to you. Are you taking any loperimide to slow everything down . You might know of it, if not it helps absorb water from the colon I think. You can buy it over the counter as immodium, it's used for diarrhea. The box says max 8 a day but my consultant says you can take up to 64! I am not suggesting you do that! Talk to your doctor about it.

      I had colitis for 17 years, lots of trouble but have recently gone for a permanent stoma, ilesotomy. Am starting to get my life back, it's not so scary if that's were you end up. Keep asking questions , keep in touch. I hope you start to feel better soon. Alison x

    • Colitisjanet
      Colitisjanet alison23639

      Posted

      Wow, thanks Alison your comments have really helped to put my mind at rest thank you
    • rachelle52846
      rachelle52846 Colitisjanet

      Posted

      Looks like the flare is agressive I was the same anything I put in my mouth even water I would be running for the loo!! I was exctally the same about the bag but you have to weigh up what's more important for me it was no life I was a nervous wreck had so many accidents lost all my confidence before my op and yes it's life changing but my little friend (my stoma ) has given me my life back I never thought I would cope with a stoma but I'm sure the ones that have one now will vouch it's a lot easier than battling with UC I hope your follow up goes well and this flare gets better X
    • JonWHut
      JonWHut Colitisjanet

      Posted

      Colitisjanet, I've pretty much been om prednisalone since Feb last year in one form or another and seen marginal difference if any. I also had pentasta granules which I'm sure I used to see in the stools, but then everything was going straight through me so thats not a surprise.

       

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