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Finally getting somewhere

Posted , 5 users are following.

kirsty08752
kirsty08752

I have been suffering for well over a year now an I finally feel like am actually getting somewhere finally. I have appointment pain specialist to hopefully get the right meds for me. Also going to get checked by neuro team for any underlining problems an it's all been a big thanks to my urology nurses am feeling positive right now. I have more help off these two nurses than my own gp and four different hospitals.. Gentle hugs to all xx😊

3 likes, 20 replies

20 Replies

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  • sadie1980
    sadie1980 kirsty08752

    Posted

    Are u in the UK may I ask as my doctor is rubbish!
    • kirsty08752
      kirsty08752 sadie1980

      Posted

      Yes I am Sadie am in Liverpool my gp kept telling me I was a mystery which so frustrating upsetting and very annoying
  • christine26761
    christine26761 kirsty08752

    Posted

    Sounds sooo familiar Kirsty have you been diagnosed with Fibromyalgia yet??  It's great news that your seeing a specialist..a Rhumotologist. Is the best...great a diagnosing Fibro..gave a lovely day Kirsty be blessed:-) xxx
    • kirsty08752
      kirsty08752 christine26761

      Posted

      Hi christiene no not by the rhumtologist but my nurse as spoke to him an he sed yes it sounds like what it is but wants to see me personally an do more tests.. Thanks you to christiene xxx
    • christine26761
      christine26761 kirsty08752

      Posted

      Wow!! That was a quick reply..I'm in Australia and it's 20past 10am..where are you?  Once you get a diagnosis you will on the road to coping...good meds will help..also remember this: stress is really bad for Fibro...be blessed..:-)
    • kirsty08752
      kirsty08752 christine26761

      Posted

      Ha ha am not sleeping very well at the moment due to pains in my knees an legs.. Am in Liverpool England.. I can't wait just to get some help with the pain I have suffered for over a year an it's been so horrible for my family seeing me like this.. My gp is useless as I sed so fingers crossed onwards and upwards xx
    • christine26761
      christine26761 kirsty08752

      Posted

      Awwww UK....I moved here from there as a kid in 1959, so it must be about 12-1am..poor you...I had Fibro fir 10 years befire I was diagnosed...the then doctor just kept treating me for the different symptoms ....if ever I have moved and changed doctors..I always ask if they know much about Fibro first...you just have to your health into your own  hands sometimes...I believe if they don't know much about it well then they should educate themselves on it..that gies fir any illness really...a doctor with no knowledge if a Fibro is just not an excuse today...have a good sleep soon Kirsty...:-) xxx
    • kirsty08752
      kirsty08752 christine26761

      Posted

      Yep it's nearly 2 now ano I find doctors nw really don't no a lot I have struggled with consultations an doctors at the hospitals many of times to where I was blue in the face thanks for the chat been nice. Hope you have a lovely day xx
    • christine26761
      christine26761 kirsty08752

      Posted

      Try to be positive Kirsty..I've found hospital doctors/registrars usually are no where near as knowledgeable  as specialists..they should refer you to one straight away if they don't know what's what....be hopeful of that good report..:-) xx
  • lisa52101
    lisa52101 kirsty08752

    Posted

    Hi Kirsty, 

    Im so pleased for you that you're finally getting somewhere. I know a year feels like such a long time but to get the help and support with this this so soon is a real achievement. Congratulations on having health care professionals that have been so responsive. It took me almost seven years to finally get a diagnosis but when I did get a pain clinic referral it made a huge difference. I was able to get pain medication, acupuncture and a specialist pain psychologist, who really helped me to understand all I needed to know about pain and then some. 

    I truely hope you get as much benefit from them as I did. 

    Take care and gentle hugs xx

    • kirsty08752
      kirsty08752 lisa52101

      Posted

      Thank you Lisa wow 7 years an here is me ranting on over a year my urogoly nurses have been fantastic support these nurses have done so much for me an always there just to listen I have never been so grateful.. Mine all started over eptopic pregnancy with twins an have never been right since 1 was in my tube and other was normal I lost both an my health went dwn hill as well.. This site as been great found so much info off it an support gentle hugs xx
    • lisa52101
      lisa52101 kirsty08752

      Posted

      Hi Kirsty,

      lit sounds like you've had a really tough time of it. Didn't mean to make you feel like you were moaning. We all know how tough it is to live with fibro and the great thing about this site is that there's a wealth of info and support. We understand just how difficult it can be to get a diagnosis and getting the right support to help us all live the the myriad of symptoms and obstacles that fibro can throw at us. 

      Im genuinely pleased that you have really observant and understanding nurses who have listened and referred you. Good luck with the pain clinic and it would be good to know how you get on. By the way I live in Manchester so not that far away from you. 

      Take care, gentle hugs xx

    • kirsty08752
      kirsty08752 lisa52101

      Posted

      Hi Lisa I never meant that u made me feel like that sorry if it came across like that I have just how long a lot of ppl have suffered b4 getting diagnosed or help 😊...

      I am these nurses are so nice an helpful even when my gp kept fobbing me off they kept on saying well that's not right there is more tests an scans you haven't had yet...

      I will keep use updated on my progress thanks for all ur help an support an chats they alway help me gentle hugs xxx

  • kaz_40
    kaz_40 kirsty08752

    Posted

    Hi kirsty09752 Thats good to hear you are finally getting some where. It took 10 years before I was diagnosed by a rheumatologist. That was after seeing many specialists and many many many tests. its sooo frustrating trying to get a diagnoses.Hope your appointment comes through soon to see the rheummy.take care gentle hugs x 
    • kirsty08752
      kirsty08752 kaz_40

      Posted

      Thanks kaz God I feel like a right moaner nw knowing how long ppl have actually waited to get the diagnose an to the rhumtologist. But it is all dwn to the nurses am with they have been excellent gentle hugs take care xx
    • kaz_40
      kaz_40 kirsty08752

      Posted

      ahh bless you your not a moaner hun all we want is a diagnoses and answears, thats not too much to ask from drs specialists. Thank goodness the nurses have been so supportive to you.hope rheummy appointment comes thru soon keep us posted how things go take care gentle hugs xx
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