Finally got into see neurotologist.

Posted , 4 users are following.

My app finally got here. Drove a hour and a half to see the specialist. He said I do NOT have simple bppv like I been told for years. I have menieres. That's why the treatments are not working anymore.

0 likes, 10 replies

Report / Delete

10 Replies

  • Posted

    I was told a long time ago when I was in my 20's I was told I had menieres because I had hearing loss and silent migraines with a fear of heights being in high heels more like depth perception issues. I suffered from myalgia through out my body. Everything hurt, my stomach, my lower intestine, my muscles ached all the time. I never took pills, although working in the medical field offered me vast amounts of my pick, but I refuse one and all. Then long story short I ended up in the ER unable to breathe from an antibiotic, I was quickly given an antihistamine, and hospitalized for severe pain in my abdomen. After a few days of surgeons wanting to do an exploration as to why I had severe pain, my stomach pain settled after a massive post op cleansing brought me back to life. Given the clear to go home they felt surgery wasn't necessary. I was told to take Metamucil or something of similar fiber to help with digestion. This is where I started to get sick again, ending up in the ER but this time I was told I was allergic to wheat and a host of other foods. After changing my diet, things in my body took a drastic change for the better. My menieres went away, my myalgia as well, my overall health improved and since then have only suffered with bppv a few times but generally in good health with an occasional cold from the nieces and nephews.

    Since then I have come to believe our bodies tell us when something's not right. After this experience, I took care to listen to my body. Maybe there's something that is causing you to have menieres. Have you ever thought about what might be causing it, or maybe there's a food that makes it worse or a medicine that triggers it?

    Report / Delete Reply
    • Posted

      Yes, so this means that there maybe some food allergy causing it. My family was the same. My mom was a long time sufferer. When I told her of my allergies, she too changed her diet, which in turn stopped her migraines, vertigo, nausea, and vomiting that she had been living with all her life.
      Report / Delete Reply
    • Posted

      Great post! I'm at my wits end with tinnitus, vertigo, migraines and fibromyalgia. I never considered diet. I take a B12 vitamin every morning, 1000 mcgs. Initially, it helped but does nothing now that I can relate to.

      Have you heard anything on the development of the new drug for Menieres? I think it's called AM-101?

      Report / Delete Reply
    • Posted

      No, Glenn since being cured I've had no need to look for treatment. When I worked in the medical field it had nothing to do with Internal medicine. I'm retired now from working in the medical field.

      However, I had fibromyalgia and I know it can be very debilitating. When I cut out wheat from my diet, in other words stopped eating cereal, it changed my life. Maybe you should see if wheat is your enemy. You may just feel a difference after a month of not eating it. What are you taking for your menieres?

      Report / Delete Reply
    • Posted

      After visiting the ENT and having all those tests, he wanted me to come back if I had two consecutive days of loss of hearing in my left ear. Well, guess what.? I've had quite a few days hooked together. Today I vacuumed my car and the noise from the vacuum has my left ear really roaring.. Louder than ever.  Diuretics can spike the tinniitus, I'm imagining? What are the common mdes prescribed for Menieres? Is there one med better than the other. This is a real bad day for tinnitus let me tell you... This is hell...

      Report / Delete Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up