Finally Saw Doctor and more confused than ever!

Posted , 9 users are following.

Hello my LS friends! Well 6 weeks after being diagnosed with no prescription, no treatment advice, no follow- up and self- treating, I FINALLY got in to discuss my test results wirh my Dr.’s MALE Partner. 🙄🙄 He apologized that I “fell through the cracks” during her transition out of the office , and he wanted to discuss the report results. Of course it said LS and he immediately said he was going to prescribe me Clob and I just let loose! Asked him about side effects of clob, alternatives, dietary change impact, etc. it was like everything I had been thinking for 6 weeks just came pouring out! And you know what? He listened. He didn’t dismiss me out of hand, he ordered all the thyroid, autoimmune and liver congestion panel tests Nancy had talked about. He discussed the benefits of adding a Tumeric supplement ( wasn’t too sure about the validity of the others) , encoraged a Paleo approach to diet ( getting rid of Gluten, sugar, additives), and was even open to discussing alternatives like the laser. He said he would read more research before he saw me again, encouraged me to continue my homeopathic concoctions, and said I didn’t need to use the Clob until I was in a flare. Took some current pics, said my anal fussure was not bad, dismissed my introitus scarring as from 3 vaginal deliveries in 4 years and wasn’t worried about it tearing during sex, said he could do a little sniping around my clitoris to peel back the hood,  encouraged the use of lube during intercourse and discussed possible hormone pellets which I am leery of being a singer ( testosterone can make bocal cords grow and change the voice- no thx! ).  He didn’t think my restrictive low oxalate diet woukd effect LS mch, but was good due to my history of kidney stones. I go back in 3 weeks, I will fill the clob prescription and use it on the anal fissure only - no pain or itching anywhere, and see what blood tests show. 

At least I feel somewhat proactive now....

Am a little concerned that he didn't think diet was that big a deal, I hv tried to be so good last 6 weeks and it is currently under control, don’t want to mess things up now.  Your thoughts my knowledgable friends??? Nancy? Guppy? Hanney? 

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  • Posted

    Karen, Well, Let me just say congratulations!! on finding a doctor that actually listened to you. It sounds like you were super assertive and it worked for you.

    I liked that he said he would do some more research before seeing you again, which brings me to your comment re diet...he is learning....he sounds open to listening and learning but you cannot expect miracles, I would have been shocked if he had agreed with you re diet as well Lol!  

    The main thing is that you are fortunate in having found someone and sadly it is rare.  You are now in a position to give him information on how you are doing and it sounds like he will listen which is good for other women...great news.

    One thing that I wanted to mention and I have a feeling that it may just be me but do you all feel upset if you have to see a male doctor with your LS?  I am seeing a female doctor but I have had a bad experience with her and now dont know who I will see next time.

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    • Posted

      Hi Guppy,  I feel more comfortable with a woman, but my Gyn, who I like very much and did my initial biopsy, did not believe that LS was an autoimmune issue or that my liver was involved, so I am hesitant to pursue a relationship with her.  She seemed to poo poo any homeopathy or other natural relief initiatives.  Her only recommendation was the continuation of Clobestol and maybe try some HRT cream.  My next doctor will be a vulva specialist.  
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    • Posted

      Hi Susan, once you realise that you are dealing with someone that cannot think outside the box there is not much point in returning.  LS is complex and tricky and you need someone that wants to work with you not against you.

      I think I will start a new thread regarding doctors...and I will tell you my awful Gyno story!

       

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    • Posted

      You are absolutely right.  I do think that Nancy has so much valuable and researched information that it should be printed out and left in all doctor's offices.  No one should leave a doc's office with LS and not have access to the information that we are getting here. That goodness we googled and got here.

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    • Posted

      Guppy- I have always had a female gyn, never wanted a male Dr, didn't think he could understand because he doesn’t have those parts, and my husband was also more comfortable ( I was a virgin with him and raised in a strict Catholic home). 

      I went to her partner because she left the practice. Only wanted to go have him read me the report, had no intention of letting him exam me. But he was very knowledgable, very reassuring and he presented his case from a male perspective, as a man who has sexual intercourse with women, that he can provide a different point of view.  He also encouraged me to try oral sex , see if it hurt and report back to him, instead of beibg afraid to try. I dd not get any kind of creepy vibe and he was very reassuring. 

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    • Posted

      Thanks, Susan.  smiles - but for the "big time" of ALL doctors.. I think we'd need to uptick my list. I Only used Google to find easily accessible articles, that are admittedly designed for us laypersons.  But for going up the medical route it would be good to find slightly more rigorous articles that can be acquired through Google Scholar.  I just don' t have the time or dollars to pay for science articles and make my eyes go cross-eyed. Hum oh, but the links do go to links of medical references so maybe that is enough. you are so sweet. 

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  • Posted

    So so so happy for you Karen that you lucked in to a receptive doctor.  Since he ws so receptive aabout "reading more why don't you send a email to his office of my protocl article he'll have a runnnng start at find the medical links? ya never know...

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