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I am a 42 year old male. I have been suffering with Proctalgia since I was in high school. For decades, I would hide it thinking I was cursed or something.
I have gone 8 years without an episode, then back with a vengenence. The only way I can describe it is it feels like an alien trying to explode out of my butt. I haven't passed out, but close. On a pain scale from 1-10, I give it a 20. The worse is when I get it at work, driving, or when I wake up with it in the middle of the night. I really haven't found any help with an outbreak, but will definitely try some suggestions I read on these forums.
What is weird is I get it sometimes out of the blue, sometimes after I pee, poop, and sex. I am trying to brainstorm about what might cause the episodes, change in habits, etc. Stress might be a cause.
Anyway, glad I found these forums and good luck to all my fellow Proctalgia sufferers.
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