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Financially struggling

Posted , 12 users are following.

maurice1962
maurice1962

Hi is anybody still doing any work for a living. Ive been a labourer sll my life . Im 54 yrs old and know nothing else . Now im broke after 3 months off . What the hell to do now????

0 likes, 20 replies

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  • donna60512
    donna60512 maurice1962

    Posted

    I am not in the UK.  I hope that someone can suggest services for you.  I am suprised at the numer of younger males who are suffering from PMR.  I thought it was mostly older females.  Good luck.
    • maurice1962
      maurice1962 donna60512

      Posted

      I too am not in the UK i live in brissy australia. They tell us that my mrs makes too much money a year so im not entitled to anything. I guess i need to find something else to do other than labouring.This PMR sucks never heard of it until a month ago. For a man who has been to the gym regularly 4-5 times a week for the last 40 yrs its very hsrd to take . Depressed😡😡
    • donna60512
      donna60512 maurice1962

      Posted

      Okay, Australia, I shouldn't have jumped to the conclusion of the UK, just that lots of people on here are from the UK.  It was the Briish spelling of labouring.  We don't use the "u" in the U.S.  I have always been surper active too, so a bit of a surprise.  I am new to this too.  Wish I could make suggestions for you, just don't know the system there.  Maybe there is somehting you could do as a supervisor or advisor in construction.  Good luck.

  • Anhaga
    Anhaga maurice1962

    Posted

    Go to your political representative.  Go to the local media.  Talk to your clergyperson.  Tell your doctor about your situation, beyond your medical history.  Tell everyone you can.  Write to the minister of health or equivalent in your country/state/province, wherever it is you live.  Be a squeaky wheel.
    • Anhaga
      Anhaga

      Posted

      Just saw your new post.  I think your first order of business is to look after yourself, acknowledge that you have serious but not fatal disease, and one which WILL get better if you look after yourself.  Can you think about somethng less taxing on the body which you could get some training in?  Also, it's very common to get depressed when coming to grips with the "new normal" that PMR forces on us.  Be assured that this, too, will get better.  And you can always come on here and grumble.  We understand!

  • lodgerUK_NE
    lodgerUK_NE maurice1962

    Posted

    Maurice

    Go to the Citizens Advice Bureau.

    Type into your search engine 'Read Tim's Experience and Guide to State benefits'.

    The following is a personal account of Tim, a PMR sufferer's experience with the Benefits system.

    You can also download the Welfare Rights Officer Handout under "Health and Well being". on the same website as Tim's story.

    If your lcoal council has a Welfare Rights Dept they will also assist you in  claiming. 

  • noninoni
    noninoni maurice1962

    Posted

          If you have enough to live on, for goodness sakes learn to enjoy it!  I know when you stop working, one feels terribly guilty, but dump that!  Guilt doesn't help anyone.  The world is still wonderful if you look.  

          If your missus earns enough, then help her out and learn to clean and cook.  I sit down on a rolling chair to push the vacuum around, for example.  I use a cart to bring in groceries.  I stand to wash dishes by hand in the sink since I don't have to stoop to load the dishwasher.

          I think it is harder for men to find volunteer jobs and company, but then again they are most appreciatedl.  For example, you could sit at the desk at the humane society.

  • maurice1962
    maurice1962

    Posted

    Thanks everyone for your input and comments. Is there anybody out there that has only had PMR for say 3-6 months a year maybe or is it as ive been reading 2 to 6 years and it may go away???
    • Handbrake
      Handbrake maurice1962

      Posted

      Hi Maurice,

      i haven't seen any rapid recoveries so your latter assumption is possibly the most likely result. It's been 21 months since I started with PMR and although I have been off prednisolone 4months I class myself as in remission and still working on building up muscle strength to that which I had pre diagnosis..

      Re work, try and find something flexible where you can work from home easier said than done I know but once you start treatment with prednisolone ( not sure of the name in Australia) the pain is less but the tiredness continues.

    • maurice1962
      maurice1962 Handbrake

      Posted

      Ok sweet as handbrake thanks for your comment . I was hoping there was some one out there who may have had this condition only for a short while although months arn't short lol.Yeah youre right i will have to find something easier on the bod.THanks again????

    • lodgerUK_NE
      lodgerUK_NE maurice1962

      Posted

      The upside, is that it appears that most men seem to go into remission within the 2-3 year quoted.  However don't bank on it - but!!!!!!!!!!

       

  • gilman
    gilman maurice1962

    Posted

    Have you gotten relief from Prednisone?  I was crippled from pain and stiffness for four months before being diagnosed.  The prednisone reversed all that.  I am very active now and virtually pain free. My challenge is to taper off without flare ups.

    hopefully you will be able to work and enjoy life again soon, even with the disease as long as you respond yo the medication.

    • maurice1962
      maurice1962 gilman

      Posted

      Hi gilman yeah im on 20 mg prednisone and virtually pain free . Ive been on that dose for about 2 weeks. Yeah youre right about nearly crippled before getting daignosed, never ever been in pain like it.If i do too much my hands swell up and shoulders ache for next few days so just trying to be careful. Just wondering how long i can hold my job at the abbatiors. Its not easy work!!!
    • maurice1962
      maurice1962

      Posted

      When i say virtually pain free,thats if i do nothing at all . Lol .Havnt tried going back to work yet on the knives. Its been 7 weeks since i worked😡😡👎👎
  • artfingers
    artfingers maurice1962

    Posted

    I live in the United States (Michigan) and yes, I am still working.  At first it was a real struggle until they diagnosed PMR and I got on pred.  Started at 10mg and had a miraculous response.  Now I am at 7 mg (split between a.m. and p.m.) and still reducing.  I teach elementary school art which is a lot of on your feet work.  I have noticed that now that school is out for the summer it is much better and of course, less stressful.  So my pain is less.  In the U.S. some folks I know of have gotten disability on Social Security.  I'm not planning to do that, as I am still able to be pretty active.  I hope you are able to find another kind of less-taxing work somehow.  I'm 64.

    • maurice1962
      maurice1962 artfingers

      Posted

      Ive been up about an hour and literally watching my hand inflame . Playing a word game on my phone, so all the phone is doing is sitting in the palm of my hand. I can hardly close my fingers now . This PMR is really sh-- ing me😡😡😡😡😡😡
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