First it helps, then it doesn't?
Posted , 4 users are following.
Well, I was going down on the pred and tried 5mg for a month, but ended up in great PMR pain, so the dr said go up to 10. So 10 made me feel better for about a month, but now it doesn't seem to help as much. My arms and hips are hurting all day long. When I went to the dr the other day, he wanted me to try 7.5mg if I could before seeing him again in three months. Why would 10 be good for awhile and now not, I wonder? Is that the PMR or my need for the steroid that's making the pain?
2 likes, 4 replies
mrs_k DebbieHurts
Posted
The drop is too big, once on 10mg, the current thinking is that no more than 10% at a time. There is a pattern that can be followed and if you send me a PM with your email address, I will send you a copy and you can try it and see if it works for you.
Also have you had your Vit D levels checked as Vit D deficiency can and does have pain exactly like PMR (it is an exclusion test that is done before diagnosing with PMR but quite often it is missed). If it is low you need to be prescribed Dekristol at the right level. There is a paper on this site, use the search engine which tells you all about Vit D deficiency.
taff77 DebbieHurts
Posted
DebbieHurts
Posted
mrs_k DebbieHurts
Posted
Let us hope that your GP never gets either PMR or GCA.
So pred has its side effects, but they are well known and not eveybody gets them, some people never experience any.
He need to look at you as a patient and listen to what you are saying. Pred is the only medication standing between you and GCA, never mind the PMR. Have a talk to him gently.