First post

I have also just seen that I have poseted in the wrong discussion, I thought I had posted in the vertigo one. I am sorry my head isn't clear right now. I'm unsure how to delete? Or if I can delete? Again if Anyone does have any advice from this discussion I would be very grateful. X 

Hi there. Sounds very much like Menieres.Loss of balance, pressure in head distorted hearing sone nausea. Best thing woukd be to get an appt with an ENT specialist. Ear Nose and Throat. Try not to be alarmed you are not alone and not going mad. Good luck ana

I sympathize, but not being a doctor not able to say for sure.... I suffered similar effects and going to ENT to check if the cause could be Meniere's disease! I wish you well ....

Hey don't knock the out of body feeling, some people spend a lot of money for it..... I have was diagnosed with Meniere's last week so this is all new to me too. I had similar symptoms about 18 months ago but still have the dizziness. I am on Betahistine which seems to be controlling the "events" as I haven't had one for 5 months. The constant dizziness is still a work in practice and am going to try Tia Che to reteach my brain to ignore the messages from my dodgy ear. Push your GP for a referral to ENT and get a diagnosis and get the help you need as it sounds like it is affecting you badly.

I wish you well again.

All the best.

Ana,

              I know what your going through. 

I had the same symptoms many times, as many other people struggle with them as well. Try to remember you are not alone ok. 

             My advice is to get a doctor that is VERY receptive to your needs. No one can ever understand what it feels like unless it happens to them. It's a terrible thing! I know, I was diagnosed with Menieres a few years ago. I went through several ENT Docs. I changed general practice docs three times. I had ENT surgeons tell me that I will have to basically have my left ear essentially gutted. I would be deaf but that would probably fix the problem. 

          I'm not trying to scare you at all. 

I'm emphasizing how important it is to find a doctor willing to try anything first before the surgery of last resort!

          I have read endless reports, blogs, books, and tried all the exercises. I have found that we are all very unique in that all of our lifestyles are different. We all eat differently. Our environments are different. We each respond to medications differently. So, what work for me may not work for you.

        For me I found that my lifestyle was go go go. I noticed that my attackes seemed to be brought on by higher anxiety moments. I would have Vertigo

For hours on end! It would take me weeks to return from the Cloud I was in.

         For me, what works so far, was  anxiety meds (Paxil) 

For what I believe might be Viral I take Acyclovir 2000 mg total per day for first 6 months then  600mg total per day for maintenance dose. (I found a study that was done at John Hopkins University that showed  some improvements using an antiviral for Ménière's disease and luckily my doctor said. Let's try it why not!). Now before I go any further I would like to say that all the information I found was online and the university as I remember was John Hopkins. But look and you with find it ok. I'll try to post a link myself soon. 

     Next I take 10 mg per day of triametrene. Hopefully spelled that right. Anyway it's to help reduce the amount of salt the body absorbs? The  theory being that the fluid around the ear swells causing vertigo. Someone else can be more technical that me I'm sure. 

         And lastly for times I don't feel quite right I take a Valium and go to bed!  Sleep is very very important. I have found make me feel a lot better. If you have and attack either an antihistamine like  Benadryl ( to reduce the swelling our the inner ear) and take something that's doctor supplied like Valium to put you too sleep!  

          I haven't had an actual vertigo attack or even moderate dizziness in a few years now. What I've told you works for me. 

         I wish you well and above all find a doctor willing to listen and try things!

And give each thing you try time.

If I can help right back.  

                   

                            Ray

        

https://www.ncbi.nlm.nih.gov/m/pubmed/25940200/

Ana read this. Might help with what I said earlier. I'm not really good the computers. But tried to paste a link to a John Hopkins study on menieres.  Ray

Ana,

          I remember that my vertigo was very sporadic, would happen out of no where. After about three months I noticed I haven't been feeling so bad. So as time went on the ringing in my ear went from a serious ten! to about zero to a one now! I have read that others that take the Acyclovir (antiviral) route, that it does take time to work.

I think that what I've learned is sleep, diet (low sodium),keep the anxiety down (because this problem is connected with our brains). Hope this helps.   Ray

Hi guys, just wanted to do an update. Thankyou so much for your replies. After going to the doctors again I got sent to the hospital to do some tests, bloods ECG and CT scan came back fine and I've been feeling loads better the last couple of days. They said they thought it was Benign positional vertigo and it had a big affect on me. Doc said to get some normality back in my life which I have done today by going out and seeing friends and feel loads better from that. Still not 100% but I no I'm getting there. I wouldn't wish it on my worst enemy it was very frightening and hoping it doesn't happen again. Can sympathise with you all and hope you all recover ok. Thank you again for your replies xx 

So pleased to hear your good news and thanks for letting us know. Every good wish fir the future.

Sounds like Meniere's to me...I have felt everything you have explained....Sorry you are having such a rough time...keep your head up!