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Hi guys, I've never posted on anything like this but what I'm experiencing is really starting to scare me. Brief description. Here goes. A couple of weeks ago I experienced my first attack of vertigo. It happened when I was lying down and had myhead at a 45 degree angle. It didn't last very long but since then it happened a few times during the week and I would just shut my eyes till it stopped. My head didn't feel right after it was like the old me had gone and I was looking through new eyes. But it was manageable. I then went to the doctors and she said it was BPV and to do some head exercises. It then happened again a couple of days later so I tried the head exercises and it made everything so much worse. I completely lost my balance and nothing felt or looked right around me, the attack of vertigo lasted about 5 mins but my balance was unsteady for the hole day. I went in to A and E because I couldn't walk straight and I was scared. The doctor then diagnosed me with viral labrynthitis and said to take buccastem and it will pass. I've since been staying with my mum and not been able to work at all this week. Nothing seems to be getting better, when I'm in the house I seem to be able to walk around ok, sometimes when I'm watching tv the world feels like it's moving from underneath me but I just focus on a point and it settles. I then read that it is good to keep active as my brain needs to compensate so I tried walking outside and that's when everything went wrong. I'm not dizzy or experiencing vertigo but I feel like I'm not in my body and my feet can't touch the floor and just trying to get to the end of the road seems so hard yet I have pushed myself to do it. Yesterday I managed to go into a shop but just that simple task was exhausting. Nothing seems real outside. I'm a very active person I work full time and love life and adventures but I'm so scared that this has done some real damage to either my ear or brain. I'm 25 and not sure what to do. I've also been having a lot of pressure in my head And my left ear feels blocked/full. I experience very mild ringing sometimes and I'm pretty sure I haven't had any hearing loss. I've googled for days and at my wits end. Any advice or if any one could relate in a way I would be so grateful. Thank you x 

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  • Posted

    You are not on your own I've suffered for 4years now drs don't know nothing still haven't been properly diagnosed it's life changing I feel like a recluise I don't go outside the door I've been on so many different tablets acupuncture helped a little tho and physio

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  • Posted

    I feel for you!! I'm in the same boat (well it feels like a boat), First happened three years ago I was having black splodges in front of my eyes then passed out for a couple of seconds, then nausea and I felt quite poorly and frightened. My doctor said Labrynthitis and gave me a prescription, he said It was unlikely to happen again, but it has, so many times. I've been to A and E twice because I thought I was having a stroke! But three doctors have said Labrynthitis. I've never been sent for any tests either.

    This Monday it started again so back to the surgery, and there was a new doctor there, he said not Labrynthitis, you have Migraine, I said I don't always get a headache, he said you don't need a headache to have Migraine. He gave me Sumatriptan pills (6), and that was that. Like you I'm not sure what's wrong really and I'm going to ask to be referred to a specialist.

    Sorry I'm not much help. I'd definitely go back to your doctor and get referred to someone who knows more.

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  • Posted

    Consider that is could be your SCM muslce in your neck. Google SCM muscle issues and see if that fits. I am seeing an Osteopath doctor for this but I have also heard that dry needling has helped if this is the issue. 
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  • Posted

    BPPV. Go see and ENT and they can fix this in minutes.
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  • Posted

    Hi, I've recently posted something similar as I'm in my 6th week of having labyrinthitis (supposedly- not got a proper confirmation of what it is). But like you I've had BPPV episodes in the past but it was nothing major and now I'm still recovering from labs that just sprung on me out of no where. I too was like you in the beginning, the first 2 weeks seemed like hell but it does get somewhat better (and I'm saying this whilst still in recovery mode). I do advise you to stay active and walk about as much as you can. Don't push yourself if you can't and I do recommend you take a family member or a friend with you on your walks to help you and also keep you distracted with conversation so that your mind isn't too fixated on what's happening to you. Also drink so much water (max recommended 2 litres a day) and have a regular sleeping pattern (try to get 8hrs). try to get a referral to an ENT specialist as well because it is good to get this looked into. I too did feel more or less the same as you've described in the beginning of experiencing symptoms, I am now able to walk around and do things I wasn't able to do before but I do get anxious about walking for too long and sometimes do feel wobbly and uneasy but taking it a step at a time. Try to not look at a computer screen for too long or do activities that require full concentration because I know how difficult it is and even now I do find it still somewhat difficult. Try changing your diet also, have more vegetables and fruits and cut out caffeine/chocolate for a while. Good luck and hopefully you'll be on the road to recovery! Stay optimistic and hopeful- I can tell you from experience worrying too much does absolutely no good. Just take things one step at a time smile

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  • Posted

    How do you walk around and do things I'd give anything to be more active but I only have to bend over a little and I'm spinning x

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  • Posted

    Hi guys, just wanted to do an update. Thankyou so much for your replies. After going to the doctors again I got sent to the hospital to do some tests, bloods ECG and CT scan came back fine and I've been feeling loads better the last couple of days. They said they thought it was Benign positional vertigo and it had a big affect on me. Doc said to get some normality back in my life which I have done today by going out and seeing friends and feel loads better from that. Still not 100% but I no I'm getting there. I wouldn't wish it on my worst enemy it was very frightening and hoping it doesn't happen again. Can sympathise with you all and hope you all recover ok. Thank you again for your replies xx 

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