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Hello to you all,
I need advice from good people here J
Here is my story.
I am a health 27 male.
Last year, after training for a half-marathon I experienced some pain in my shoulder area. At the time I ignored the symptoms and continued with the training.
This continued till one night my arm went purple and very swollen. I went to A&E and was diagnosed with subclavian DVT. They put me on Warfarin and sent me home. The next few months I continued with taking Warfarin and my arm improved pretty much to normal appearance within 2-3 months. After they checked all the blood work I did (and all was ok), they sent me to do MRI scan with the dye injected.
After that I saw a vascular team once and they said I have significant narrowing of the subclavian veins only when I raised my hands. Both arteries look fine. This is the case on both sides. After that they offered me a surgery, but didn't really push for it. They said it is surgery (first rib resection on both sides) or I would need to down my training and to be careful with any future intense physical activity + to keep taking warfarin.
I must say I don't have any pain or any other significant symptoms. Sometimes when I run (I still do), I feel some pain in my shoulder area but it's not too bad. (3 or 4 out of 10).
Reading all the experiences on this forum, I found that most people do the surgery because of the pain or other symptoms. I didn't have any symptoms apart from DVT and I have very occasional pain in shoulder area.
What are you thoughts on this? I am mostly afraid that I would feel much worse after the surgery than now. But on the other hand I don't want to risk getting another clot or bleeding due to taking warfarin.
Any good surgeons dealing with vascular TOS in UK?
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