First sip of water in morning brings on lump in throat sensation!

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I am so disgusted!I have had all the tests. Have small hiatal hernia and when scoped by ENT have inflammed throat - LPR. I feel good during the night but the minute I get up and have a few sips of water I start with the lump in throat sensation. I was on Omopraozle 40mg for 6 weeks but it didn't work. Now I am trying the low acid diet and losing so much weight! I am so depressed cyring myself to sleep  each night. My husband is fed up with me and I don't have anyone esle to talk to since both my parents are deceased. I also sknow I am always under a lot of stress related to health due to my uterine cancer 4 years ago. Every ache or pain to me means I am doomed! I just need to get off this roller coaster. I am taking Makuna honey, DGL, probiotics but nothing seems to work. I feel like I am in a black hole and cannot dig my way out. This all started with an upper endoscopy in April and after that the lump in throat sensation started. Any advice on how to cope?

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  • Posted

    Did they do the test to measure the amount of acid you are producing to see if you have reflux?

    It could be that the Omozprale dose wasn't enough and you need to take it for about 8 weeks. I am on Lanzoprozole so I would go back and try another PPI with a higher dose, in my case I take 30mg instead of the usual 15mg. 

    DIet can be very important and trying to find the triggers isn't easy. I wouldn't worry about the HH many people have then.

    have you had an endoscopy done, if not, then you need to see a reflux specialist not an ENT person, just my thoughts 

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    • Posted

      I have not had the 24 hour ph test/mamotry test yet- the doctor wants to do this next. I am quite scared of this test as I don't want to inflame or damange my throat anymore then it already is. I did have an endoscopy -for IBS cramping in my upper stomach- after that test I started having this lump in the throat sensation and no longer had the cramping- so weird. I still wonder if this could be a nerve although the ENT said my throat is inflammed so not sure a nerve issue would cause the inflammation. I am just so confused and not sure where to turn. I think I am going to try and go back on the Omoprazole 40mg twice a day.  I only tried this for a couple days so I think I need to give it several weeks this time. I have osteopnia from the cancer so I have to watch how long I stay on PPI's. Thanks for your response!

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  • Posted

    I have a lump in the throat sensation too that also seems to disappear when going to sleep. It comes back first thing in the morning. Driving me crazy. There are some videos you can google on fixing a hiatal hernia naturally. These methods give me a little relief. One is drinking water first thing in the morning and then going from standing on your tip toes to a hard heel down. I guess you are supposed to be jerking the stomach down. I don't know, but i am desperate too. There is always surgery, but it does seem kind of extreme. 

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  • Posted

    Sorry to hear all you are going through. So the lump in the throat sensation came after your endoscopy? What were your symptoms before that made you go to the ENT to begin with? Were you having typical GERD sypmtoms before, and now you are experiencing LPR symptoms? My Larngyologist has told me many of his patients that experience the lump in the throat sensation may not even be due to LPR. Typically won't even start on a PPI, because there isn't really sound scientific evidence that PPI's even help with LPR or non-acidic reflux. For myself I started on nerve drugs, and this has seemed to help me. When I went to ENT 3 months ago for the same issue I was told I had GERD. When the Laryngologist scoped me he didn't see anything abnormal and didn't suspect LPR. I also did a peptest which came back negative in all 3 samples. The Doctor I saw last time told me that 80% of his patients have full relief of those symptoms after 6 months, if it doesn't get better by that time he will then have the impedance testing done, or possibly try them on nerve medications.

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    • Posted

      Yes the sensation of lump in throat started about 1 week after the endoscope. I was having IBS cramping in my upper stomach that is why I had the test. Then after the test the cramping is gone but I am left with this lump sensation. I still wonder if I have a nerve iss ue or not but when teh ENT scoped me he saw my throat was inflammed so not sure that nerve issue would cause inflammed throat. I have my pepsin spit test from the UK that I will be taking soon. Just have to be off of the water for 48 hours. That will be hard as I find a bit of relief from it.  You said that the dr said 80% have full relief after 6 months are these people on PPI's, have LPR? This happened the end fo April so I am about 4 months in.

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    • Posted

      This is the best news I have heard so far. My lump in the throat started about 3 or 4 months ago and I don't have bad acid reflux. Mostly just belching. I have always had low stomach acid. If this lump feeling goes away after 6 months that will be great! 

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    • Posted

      Hi Marcy, actually what the Laryngologist told me wasn't a surprise. Many of the publications I have read dealing with these symptoms including LPR indicate that usually symptoms resolve in 3-6 months with PPI treatment and lifestyle changes. If you search youtube under LPR overdiagnosed there is a lecture from stanford medical Otalaryngolgosist department that mention this. I think many of us on these forums share the same symptoms but the cause could be something besides LPR. Also the people who tend to dissappear on these forums probably got better. Did you have a scope done already? Did they see any inflammation? In my case the ENT dr I saw End of May said it was GERD or LPR, but when I saw the Laryngolosit 2 weeks ago he said he saw no signs of GERD. However it is possible that I had an epsiode of reflux, I do remember I had both a virus and heartburn around the same time, after some research I asked m y Primary doc to give me some Elavil 10mg in case of PVVN. Which actually did help the globus, but not the mucus. The Laryngologist told me to increase to 20mg since 10mg made a difference, especially he said 10mg is very low. Sure enough the 20mg is helping even more. Before I would wake up and within the hour I had terrible globus, throat clearning, post nasal drip, and now usually don't feel anything until about mid day, but it's mostly just mucus and raw throat. The mucus still lingers around after I eat, but it doesn't bother me, I've been going back to eating normally, which is the best thing. I lost 20pounds in just a month because I feared eating anything, and I wasn't overweight which didn't help. I still take double PPI, mainly because the doc told me he only wants me to change 1 thing at a time. Next month I will start 30mg elavil to see if I get 100% relief. I think most importantly try to stay positive and try not to get stressed this seems to be the constant thing that causes the symptoms to get worse. If you have low stomach acid you might have them check H Pylori, make sure not to be on PPI before taking the Pylori test as this will give false readings.

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    • Posted

      From the inflammation I would suspect possibe reflux and not nerve damage. Usually the vagal nerve damage occurs after a virus, and doubt the endoscopy caused it. If I were you I would take double ppi and go back for another scope to see if inflammation is gone. I dont know how well the peptest is, I think you need to have the reflux event right at the time you do the spit test. If you have constant symptoms not sure you will get positive results. Be great to hear someone on this forum who actually had peptest followed by ph testing to see how accurate it really is. The doctor basically said people with these symptoms, he doesnt really want to start them on meds or do any testing unless they have typical signs of gerd not lpr symptoms. But that most of those patients have globus relief after 6 months, unfortunately just a really long time to wait to see whether they get better. I myself just not that patient thats why ive been on ppis and now elavil. The globus for me is pretty much gone, but my throat till feels raw and tight at times especially when I get stressed at work. Please keep us posted if you see any improvement, best wishes on your recovery.

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  • Posted

    Hi your bound to worry after going through what you've been through. No wounded you feel stressed.

    Do you take your Omoprazole 1/2 before food once in the morning and again in the evening.

    You also a steroid nasal spray from the docs to heal your inflamed throat. 

    Ive taken both these which have helped such a lot but it took nearly 10 weeks before I started seeing a difference.

    The lump in the throat is called a globus it is common and is a pyscological response to your physicals symptoms if that make sense. Tell yourself this and breath slowly deeply and relax........it will make a difference.

    Drink lots of water eat heathy and get a good nights sleep. This is all aimed at being positive and taking control to improve your health. Excercise to if you can even if it's a small walk do it for your mind and body.

    Thats how I dealt with it all and how I coped 

    Debs 

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  • Posted

    Hi, I really know what it is like that nobody takes me serious! I have had 3 tests so far to see why my Gerd has gotten so bad. I was diagnosed over 10 years ago due to a feeling of a lump in my throat. They put me on prilosec an it has worked up until now? Horrible pain in chest and burning in my esophagus. They came back from the Egd and said that I had a small hiatel hernia ans esophagitis as well. They are determined it is my gallbladder, but so far everything has came back normal. I am waiting on a hida scan for the results... The Gerd has gotten worse in the mean time. Not sure where to go from this point. I really hope they give you some answers!
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  • Posted

    Hi, I'm so sorry to hear you're going through this. Luckily I have never gone through anything like you have but someone very close to me did and now I'm the same. The slightest symptom and I spend night and day obsessing convinced I have something terminal. I have very similar symptoms to you at the moment. I've been put on omeprazole (20mg once a day for me). I'm half way through week 5 and not seeing much (if any) change. I sleep fine but within minutes I have a burning in my throat and chest (although not like the traditional heart burn). I haven't had any tests yet but I think mine is LPR as I also have the sore throat/hoarse voice. I know you've probably tried most things but have you tried a wedge pillow at night? That's my next step. Also, do you use Gaviscon advance? Apparently all the other Gaviscon reduce stomach acid but this is the only one that directly helps reflux. It forms a gel like barrier on top of the fluid in your stomach to stop it coming up. With LPR although the omeprazole lowers acid it doesn't stop the liquid coming up and because the higher up part that's affected by LPR is more sensitive than the oesophagus even the neutralised liquid can still irritate you. It was on a medical website and seems to make sense but if anyone knows different please feel free to correct me because I'm a newbie to this! Maybe give that a try if you haven't already. I hope things get better for you. Xx

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  • Posted

    Do you take the Manuka honey half an hour before food? It helped me but put my blood glucose so high that I had to stop taking it.
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  • Posted

    I was put on Omopraozle prior to my gallbladder surgery, but couldn't handle the side effects. I have anxiety, and nervousness is one of the side effects listed for that med, and other PPI's.

    Both acid and anxiety can cause the globus sensation, but the trick is trying to figure out which one it is.

    I'm new to the refulx game, so still looking for answers. Prior to surgery I didn't have any symptoms, except for a sour burp once in a blue moon. Now I have every symptom of silent refulx, including the lump in the throat. I was never told that this could happen after surgery, therefore I wasn't given any info on it. I think the only reason they gave Omopraozle was to settle the stomach in preparation for surgery.

    Hopefully we'll all get the answers we need.

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