First visit to Rheumatologist.

Posted , 8 users are following.

I saw the Rheumatologist today for the first time.   After an exhaustive consult for an hour I was told I didn't have PMR; rather, I have Rheumatoid Arthritis.   He gave me a script for Methatrexate and folic acid. along with a pathology request for a battery of tests and an a request for an Xray of my hands.   I should feel better somehow knowing it's not PMR, but I don't, I don't think RA is any improvement, I still can't use my hands or arms and won't be able to for along time - reading between the lines!

I'm just so dam sick of all this, nearing the end of my tether!

1 like, 17 replies

17 Replies

Next
  • Posted

    He also consulted on my urticaria and advised me he believed the urticaria and RA are linked and possibly brought about by the elbow infection after the arthroscopy.   Oh joy, now I get to take methotrexate whilst trying to get off the Prednisone.   What a wonderful life this is turning out to be!
    • Posted

      Don't despair, Tony.  Believe it or not we are the LUCKY ones.  PMR, RA may be painful but they are not life threatening.  It's difficult to adjust, but we have to manage and re- think our lives.  We all go through the frustration but we get there in the end.
  • Posted

    I'm sorry Tony that is disheartening. I know you feel upset right now.  Are you in the US or have insurance?  If so, I always vote for a second opinion (maybe I am overly cautious).  No matter what it is I have had I always get one or even two additional opinions.  By the third rheumy (or opthalmologist or whatever), I am then confident they have sorted it out (or maybe that they actually listened or had more experience).  It took me three orthopedic doctors just to figure out a torn meniscus, sheesh.  But I do hope that you are able to wean down off the pred.  Please keep us posted on how you do. I guess the good news is they are pouring more money into RA research and medications than they are for PMR.  Hang in there!  
  • Posted

    hang on buddy. it's about change...and challenge. check out your options. exercise as you can. it won't cure you but you'll begin to feel better. check out supplements such as SAMe. keep as active as u can. try to think positively. things could be better but perhaps they could be worse. be kind to yourself.
  • Posted

    I think I might have more faith in the opinion had he said that AFTER an x-ray and blood tests. What were his grounds for dismissing PMR in favour of RA?

    I was dismissed by a rheumy as "it's only OA, why are you wasting my time". After 6 months of pred all the so-called signs of OA that she claimed she could feel had gone and have never reappeared. Another rheumy was insistent it wasn't PMR despite a textbook set of symptoms and response in 6 hours to 15mg pred. He was desperate that I had a history of psoriasis or ankylosing spondylitis - ruled out by x-ray. There is a real feeling they think PMR is beneath them. 

    However - on a lighter note: how long have you been on pred? If you are not reducing to find the right dose for PMR where pred is the only medication that works, reducing your pred dose shouldn't be too bad because as you reduce the pred, the mtx should start to kick in over the next few months if it is RA. It can take up to 6 months but many patients notice a difference sooner than that. On the other hand - if the symptoms increase with reducing the pred then you could ask for a rethink.

  • Posted

    Ex serviceman with Gold Card so medical for me is free, I'd hate to pay for all this!  

    Standard test for PMR that I've found 'all' Doctors do:   ask you to rise from a chair without use of hands and ask you to raise your arms above shoulder level.   I could look around and vist a thousand Doctors but in my experience it would be pointless: if it doesn't affect your hips and shoulders then it is not PMR

    I've been splitting my Prednisone dose for a while as I find this the best compromise: half on waking and half before retiring, this allows me to get up in the morning and function reasonably well during the day, I've found taking the Prednisone in one hit makes for severe pain when rising..   The Rheumatologist suggested I continue splitting the dose , but half on rising the other half at lunch.   Won't be doing that again, this morning I couldn't use my hands or arms at all and my neck and ribs are killing me.   To make it worse I can't even apply saline or sorbolene for the urticaria and I hate asking my wife to do this for me, it is just so humiliating, so here I sit itching and hurting like never before... .

    I have no doubt the Urticaria is linked to RA and the RA is linked to the elbow infection after the arthroscopy, it all seems to fit.   But at least the Methatrexate hasn't shown any side affects - yet.

    I'll stick with my current Doctors for now, any more will only confuse the issue.   Doctors are loath to disagree and all seem to be afflicted with the same tunnel vision: if the symptoms don't match standard paradigms then it's not happening.

    Very difficult to have confidence in the medical profession but unfortunately they are a necessary evil if only to gain access to medications they may help.

    My elbows are so bad now, they ache all the time and I cannot touch my face, neck or back, even with the one on which I had an arthroscopy.   The Rheumatologist noticed this, took some measurements and seemed quite concerned.   I'd like to get my left elbow done also as it is the worst  but I'm very reluctant to have another medical butcher cut into me for fear of what they may let loose on me next time.

    • Posted

      The urticaria COULD be the pred - it is a listed side effect. 

      No doctors I saw ever asked me to stand from a chair - I'd already told them I couldn't! Though I do see where the doc is coming from suggesting a reactive arthritis. But the stress of the op could have triggered PMR too - or it could even be coincidence.

      And what is humiliating about asking your WIFE to apply some cream? Don't be so daft - pride, they say. goes before a fall!

  • Posted

    I suppose that would depend on your perspective, I don’t ask for help, never have, that is the way I choose to live MY life.   If you wish to go through YOUR life seeking help from others then do so, that is your choice.  

    I would also suggest you refrain from calling others ‘daft’ because their life experiences don't mirror yours..   

    Here's a tip: , ignore my posts and I will ignore your advice - sounds good to me!

    • Posted

      I agree with FlipDover. I read back through all the repsonses to your initial post, and everyone has been supportive, and trying to encourage you. I hope it's the fact that you're not feeling good that caused you to snap at Eileen. I did not see that she was putting you down--at least I would not have taken it that way if it was me she was responding to. I guess I don't understand. If you don't want help and never take help, what are you doing on a forum where everyone is posting because they need help, whether it be for information or encouragement? Eileen seemed to be trying to encourage you to take some help instead of suffering because you won't. I think the word "daft" was meant more in teasing, and we need to try and keep a bit of a sense of humor with all we're going through. Hang in there, and I hope things get better for you. I'm not big on asking for help either, but I'm turning over a new leaf because it's making my life easier as I go through this PMR journey. Good luck!
    • Posted

      Eileen keeps us going!  Her comments cheer us up.  I LIKE being called "daft" - it makes me smile.  A laugh a day, etc etc!
  • Posted

    I partly agree, 'almost' everyone has been supportive, just one notable exception.   Calling someone daft, even in jest on a forum such as this is not supportive.   If I was to call Eileen a silly old cow, would you feel the same way, or is your perspective coloured by your friendships..

    If I was asking for something I guess there would be one of these things there somewhere:   ?????

    Why am I here?   simple really, have you heard of 'venting', 'musing' or or just plain frustrated..  

    If you don't want people to arc up then don't give them a reason to!   You never know who you are talking to, more to the point, you don't know other's circumstances.   'Common sense':   it's not for everyone but nice to have just the same!

    Tell you what, lets call it quits here, before this gets out of hand!   Deaf ears here me thinks...

    • Posted

      I agree on calling it quits. Lets all get back in the holiday spirit!confused
    • Posted

      You may call me a silly old cow if you like - I certainly wouldn't get as uptight as you have. 
  • Posted

    I didn't call you anything Eileen, nor would I. I leave that sort of infantile behaviour for others. Amazing what some will do to feel good about themselves.
    • Posted

      Did you say "infantile" Tony?

      Have a great, pain free, trouble free day.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.