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Fistulae and Setons

Posted , 4 users are following.

jamie44738
jamie44738

I was diagnosed with Crohns near the end of 2017. Fast Forward 2 and a bit years and I now have 3 seton threads all fitted around my anus area.

The pain is horrible, like a constant sting.

Worse, they had to put one, it feels like, right through my scrotum.

I'm so sick and tired now, I know it could be worse (I haven't got to the bowel removal stage) but this is incredibly frustrating.

I'm on Azathioprine (2 pills nightly) and Infliximab (though I keep having it cancelled because of operations). My drug levels will now be low and I'm slowly going to the toilet more and more often.

It's getting me down now, I just want it all to end so I can get back to working in the office pain and risk free.

To those of you who think you have Crohns, you need to push hard for a diagnosis and keep on top of your doctors to make things happen.

0 likes, 2 replies

2 Replies

  • kim46236
    kim46236 jamie44738

    Posted

    so sorry to hear your going through this rough time. try to think that there will be a end to this and hopefully pain free

  • Gloria814
    Gloria814 jamie44738

    Posted

    Sending thoughts and prayers your way. Jamie, I do hope the pain has eased some for you. It sounds so painful and discouraging. We on this site are wishing you the very best

    Gloria

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