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I've been reading these forums with interest since my illness began in June.
I presented at minor injuries with severe back and rectal pain, I was sent away with a diagnosis of soft tissue damage and painkillers. Over the next few days it became excruciating and I returned and was firmer this time in wanting further exploration. Unfortunately I was sent away again. A few days later it became so bad I went to A&E where I was taken for emergency surgery to drain a large abscess in my left buttock. I went home the next day and attended dressing clinic, things got a bit confusing here as I became very confused and unwell. My right buttock was bright red (abscess has been drained on the left) the nurse said to see Dr if it got worse over the next few days... Fast forward to 4am the following morning and an ambulance was called, turns out I had stage 2 sepsis and the abscess hadn't been fully drained leading it to cross my midline and effectively eat away at 1/3 of my right buttock. Next few days are a blur and I had 2 more operations to fix it. I then spent the next 3 weeks in hospital having dressings changed under gas and air and lots of anti biotics. I went home for a week and had nurses visit daily to pack and dress it but then I got an infection and was re admitted to hospital. I spent a week in then and had an MRI which showed a fistula in my left buttock. I returned home when then infection had cleared up and had daily nurse visits for the next month or so. In September I had a seton stitch procedure which was then changed in December to a different material as the original one gave me a reaction. It drains daily a clear or grey foul smelling fluid and the big area that was cut away has now scarred over nicely (although the pain from the scar is awful, consultant is suggesting a procedure to trim the scar after next surgery)
On Thursday I'm having surgery to lay open the fistula. It's about a finger length long and from my anus is around the 2oclock area.
I wondered if anyone could tell me what that will look like, is it going to be like an open trench? My consultant said It will heal from the bottom up, does that mean it will be packed?
I'm so low and fed up of this now, my consultant is amazing and has said it could all have been avoided if it was picked up sooner I struggle with bowel movements and also the sepsis damaged my prudendal nerve which causes a lot of pain around the vaginal area and then bit where my thigh meets my bum Cheek.
What are your experiences of a Fistulotomy? Any info greatly received x
PS, I was tested for chrons and don't have it. I did have a fissure but this was successfully treated with botox
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