Flare

I have had pmr for 18 months and have had to give up looking after my farm biking and skiing. Also over this period i have had many episodes of pain in various places. All the pain was bilateral in shoulders hips back legs groin feet and hands. I found as soon as you mention hands and feet the dr thinks LORA. So i guess they are still not sure if its PMR or both. As far as your hands Daniel when i first went back to some of the farm duties and my office job my hands were extremely painfull. It was very much like carpal tunal syndrome. I wore fairly sturdy compression gloves and they helped alot. Eventually it went away. Moderation is the key aspect for any activity so go easy on the diving. Joanne

The Leeds, UK group did a study and showed that PMR does affect feet and hands - but I think it tends to be at the beginning as it is tendonitis and synovitis and once you are on the right dose of pred it slowly eases - certainly did for me. It will be noticable if you do a lot with your hands but tends to settle again if you rest them. I was told my hand pain was OA (no it's not) and the foot pain was fairly much ignored - it felt as if I was walking with bound feet like Chinese babies had, and on sharp pebbles and broken glass. It took about 6 months on pred at above 10mg to fade, but it did and has never returned. 

I would agree with you about the feet and hands at the beginning although the pain as you describe is coming back on my right foot. Thankfully, it does not have the feeling of walking on pebbles which it did before diagnosis. Interestingly, it affected my left foot more prior to starting steroids. It feels like a Mortons neuroma at present but I think the higher dose steroids helped and I am only feeling it again as I reduce. I'm on my second week of slow reduction to 8.5  and feeling great. Fingers crossed it continues.

 

I had terrible pains in my toe that crippled me walking and it was my podiatrist that pushed for further diagnosis and not OA which the GP'S first thought i had pre PMR diagnosis.

I had the return of this on my last drop but not as severe as well as pains in my hands but i get this if i overdo anything with my hands and mainly with my right since I'm right handed.

Definitely not used to this weather Helen. I'm on the south coast (Co. Waterford) but I shan't be complaining. :-) Personally I find the "normal" damp cool weather upsets me more although getting out and doing more in this nice weather has its effects as well. Good luck getting back down to 5mg. I've just got down to 12.5.

Ron

I feel the heat is helping the PMR and am so much better but that may be because it is getting better anyway.

Let's hope it's the latter.

Thank you, that's what I am hoping.

"over 20 degrees"... pffft.

You lot don't know what 'heat' is!!!

Start complaining when you get over 40*C for a week!

LOLOL

Ah yes - but as Helen has said it all depends on what you are used to!

And whatever else, over 20C will be in Ireland it will be all soggy and claggy - cos the humidity will be god knows what! I don't mind heat - though 40C is a bit unpleasant when you live somewhere with no air-con - but when the humidity is 70% or 80% even 22C is downright unpleasant when the sun comes out and you have radiant heat too.

Rats - that punctutation is rubbish! Far too early in the day! 

Ignore that comma after else and stick it after Ireland if you need it...

trust me, NOBODY gets used to 40* +.... it's just awful.

Personally I like the weather around 22*C.

Oh yes - wouldn't dispute that! 

But I assume you DO have aircon? Even here in northern Italy we rarely have it - even in hotels. Ireland doesn't need aircon - it needs a massive dehumidifier...

True dat. Although it is funny seeing the bright red bodies here the last couple of weeks. We're just not used to two weeks without rain let alone temps of above 20c. I think I've got my yearly dose vit D and it appears that it's colour is red.

Yes. When did we last have wall to wall sunshine for weeks? We must be overdosing on vit D. I don't know when we last had to water the garden morning and evening. 

On the other hand - I can't remember when it rained here every day for a week 

In the early 1980s (we were in Germany) the west coast of Scotland had 16 weeks without rain - which either triggered or nearly triggered a hosepipe ban on Skye...

We were in Skye more recently when they were having water brought in by bowsers. The west coast of Scotland either has rain or sun and it's down to luck when one happens to be there.