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How long do these flare-ups last? It started with a cold but it's two weeks now and if anything I feel worse. Not just "fatigue" but so weak I can't even do the washing-up without a rest in the middle. I haven't been out of the house for five days, can't stand up long enough. I don't have a temperature but I am on antiiotics. I'm sorry if I'm repeating myself (from "Lassitude"wink but I'm so scared. Will I get better? How long? I do have chronic anxiety and this is just feeding it.

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  • Posted

    Sue five days is short. A week or two usually for me but everyone is different. Do speak to your GP if you are worried. My mom used to say I was always worse when I worried - it does affect your breathing - so if you can relax as much as you are able. And rest and sleep. It might seem like it but you won't be like this all the time. Thinking of you. X

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  • Posted

    Hi, Antibiotics take time to work, from 7 to 15 days generally dependent on the seriousness of the infection, how long it's been established, and the kind of antibiotics in use.. I've had Bronx for 10 years and strive all the time to avoid possible infection. Kids are the biggest threat as carriers so Granddaughter gets the once over after school if I'm on pick up duty. Every day is a risk day, and it kinda ruins some occasions when you need to socialise. I'm forever apologising for hopefully clandestinely using anti bacterial wipes after hand shaking or contact with a suspect. One wonders if paranoia is part of the bronchiectasis experience. Luckily I live rural so plenty of space to recuperate after an infection, and for company my trusty black lab. Exercise is the key ingredient for a swifter recovery in my view. Good luck and easy breathing to all fellow sufferers

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  • Posted

    Hi Sue

    Haven’t had a flare up as I’ve only just been diagnosed. 

    But I do have a big problem with anxiety like you , although I do have meds to control it.

    I think that whenever something like you describe hits us , the anxiety thing goes into overdrive.

    I think that compared to others on this forum I am very inexperienced and you will get lots of helpful advice from others.

    But I really feel for you and send love and good wishes and hope that this will pass soon.

    Thinking of you and wishing you well


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    • Posted

      I too am anxious but not about the bronchiectasis. I take it too much for granted and sometimes that makes me careless about taking it seriously. However I have some other medical issues which worry me to death.

      Anything I can help you with I will.

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    • Posted

      Thanks for that, very kind of you😊👍

      I have so many health issues as well as the BX now so I will have to watch out that the anxiety doesn’t get out of control as it sometimes does.

      I take 100mgs of sertraline, 20mgs Amytriptiline and 1 mg of Clonazepam daily which keeps it under control.

      I can increase any of those if I need to.

      Finding this forum is great though, because I don’t feel that I am on my own. I can ask plenty of questions and find answers which is difficult to do with a 10 minute GP appointment.

      BTW , I have been discharged by my consultant but he has referred me for physio for my breathing and cardio in case I’ve got a dicky heart!  So I guess my GP is the one to go to for inhalers, antibiotics etc.

      If anything really bad kicks off, I suppose they will refer me back again.

      Is this generally how it works?


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    • Posted

      I have had bronchiectasis for so many years and have a course of antibiotics always at home in case an infection starts, I also have repeat prescriptions for my two puffers and montelukast (a form of anti-allergy medicine usually prescribed for asthma but it helps me). Lots of other people have more drugs than I do but I am allergic to many so keeping it simple works for me. Our practice has a nurse practitioner who sees me once a year for a check up and to offer any advice she can. That's often my most useful appointment of the year. I still go to the Brompton every six months. I would make an appointment with your GP and discuss what's been happening and where do I go from here. You may get more help but it does depend on the practice.

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    • Posted

      Hi Operalyn

      Thanks for that 

      Just off to the surgery to get some inhalers

      My regular GP isn’t available until Thursday or Friday so the discussion will have to wait till then.

      Seeing another doc in the practice today as the asthma nurse wasn’t available either !

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  • Posted

    Dear Sue:

    I am so sorry u r going through this but it will get better. I have had a bronchial flare up 5 years ago and it took 7months to heal. You have to be patient because you will be unable to many simple things for sometime because you can't breath like a normal person. Think as if you are breathing through a straw. You lungs are like that at this moment as such there is only limited air that can come through at a time. One thing my doctor told me when he first diagnosed me with this disease was that I am not a normal case. Unfortunately, your body is more prone to get infections then other people. I used to feel just like you I couldn't walk to bathroom without support of a wall and could only walk a less that a block for sometime. It will take time to heal and understanding your limitations sometimes is frustrating but hang in there it will get better slowly. If I can help in anyway please let me know.

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