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flare up Lichen Sclerosus

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sheila37434
sheila37434

I was diagnosed with LS last April. I am 48 and also have hypothyroid and Alopecia Areata Totalis and was told it was linked to having those auto immune conditions. Once I started clobetasol ointment and oestrogen pessaries my symptoms became well controlled. However since last December I have had hardly a day symptom free, usually mild itching in the morning or if I forgot to moisturise. However some fare ups have been particularly bad and I am experiencing one at the moment, constant needle type itching, sore red skin. I have tried diprobase ointment, cetroban ointment, emu aid, I only use aqueous cream or e45 wash (never soap) to wash with.

i have read some posts recommending Hydromel. What is that and do you need a prescription?

I have just listened to the webinar by Dr Goldstein and wondered whether I haven't rubbed in the steroid cream for long enough. I had been applying it twice a day as it got so bad but stopped the past few days as I worried that the flare up was caused by overuse.

Any body have any suggestions? The discomfort is hard to live with.

thanks

0 likes, 18 replies

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  • sheila37434
    sheila37434

    Posted

    Thank you to everyone who replied I'm really grateful for you taking the time.

  • sheila37434
    sheila37434

    Posted

    Thank you everyone who replied. I am very grateful for this site. I have changed to the clobetasol to ointment rather than cream and spend longer rubbing it in as per Dr Goldstein's advice.

    Also doing bicarb soaks twice a day over labia prior to clobetasol. (have stopped steroid cream on anal area but using anusol cream on the sore broken areas around perineum as I think the skin had broken down and become inflamed. This has now cleared up)

    Also using diprobase barrier ointment after urinating.

    Have had sweet relief from LS symptoms the past 3 days and feel normal for first time in nearly 3 months.

    The hygiene and creaming rituals are tiresome but well worth it.

    Thank you again, especially the bicarb advice

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